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Steve Topple Profile picture
Steve Topple
@MrTopple
Staff Writer @TheCanaryUK | Journalist @BywireNews | Vibes @Reggaeville @PauzeRadio | Contrib @RadArtReview | Project lead @ #CanaryAmplify | Views my own etc.
May 12, 2020 • 7 tweets • 4 min read
#Thread for #MEAW2020

So it's #MEAwarenessDay #MEAwarenessWeek. That's the disease #MyalgicEncephalomyelitis if you don't know.

My Queen @NicolaCJeffery lives with this. We've been treating her for 15 months now at a cost of thousands of pounds, because the #NHS won't help 1/7 2/7 Or rather it will help, but only by telling the 250k+ people who live with #MEcfs in the UK that it's 'all in your head'.

Today was a milestone for Nic. We've now reduced her from 78 tablets & 9 oral solutions a day to 40 and 4.

I'm not sure many people really 'get it'