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@TheRealMcCoy aka Meghan Profile picture
@TheRealMcCoy aka Meghan
@RipperMD41
Chronically ill. Until we land on one, Instagram: @/RipperMD41, Mastodon: @RipperMD41@disabled.social T2: same as here @rippermd41.bsky.social
Jul 31 • 15 tweets • 3 min read
CW: medical abuse/neglect, death

Catching up on #MaeveInquest today and I have a few thoughts.

Begin rant If I had a patient with an illness I knew little about, you’d bet I’d be digging into the literature, looking to experts and finding the best clinical advice I could.

Instead we’re seeing the consequences of hubris, overwork, and stigma.

#MECFS #MaeveInquest
Feb 2 • 9 tweets • 2 min read
As many of you know I tipped over into severe this past year (not good).

I'm now housebound.

Depressingly l also lost the ability to listen to music. I had limited how much I listened before but now even 1-2 songs was too much for my brain and could trigger PEM.

#MECFS I should add I was really surprised by this drop because previously I was always able to handle auditory stimulation better than visual stimulation.

#MECFS
Jan 27 • 15 tweets • 2 min read
CW:

This 🧵 mentions suicide, euthanasia, medical neglect.

And anger. Lots and lots of anger.

#MECFS Yet another person with Myalgic Encephalomyelitis (ME) left this earth.

I’ve lost track of how many that is now. The posts appear every week or two. This person died by suicide. That person is setting a date for euthanasia.

#MECFS
Dec 31, 2023 • 10 tweets • 3 min read
I thought this might give you some perspective @JonFavs

From the earliest days of the Covid pandemic, people with #MECFS sent out warnings that there would be a large wave of a post-Covid condition like #MECFS
But no one listened.

#PodSaveJon That same month first person accounts of what patients would call #LongCovid began appearing on Twitter.

#PodSaveJon

Dec 29, 2023 • 23 tweets • 6 min read
It seems many don’t understand why this bland cookie cutter statement is upsetting to some of us.

Let’s break it down.

🧵 First to get it out of the way:
He’s isolating —> good
In accordance with CDC guidance —> 🫤

CDC guidance is inaccurate and does not follow the science. Many are still contagious past day 5 of illness.

(Side note: the 5 day rule was created to appease businesses)
Jan 27, 2023 • 5 tweets • 3 min read
Covid Concerned: 3,000 people are dying each week from #Covid.

It increases your risk for blood clots, strokes, and heart attacks.

#LongCovid is disabling millions. Look at how extensive the symptoms and damage are <shares studies>

Media: WhY aRe YoU fEaR mOnGeRiNG? CC: But isn’t it right to be slightly scared of this virus? Especially if you expect us to get infected 3-4 times/year.

Media: yOu’Re Too AnGrY

CC: You’re not upset that we’re disabling millions? Or that #HighRiskCovid19 can’t go anywhere safely?

Media: wE hAVe To MoVe oN