Covid long hauler. Private about my personal health but value Twitter expertise on my #longcovid #longhaul recovery journey
Sep 10, 2020 • 4 tweets • 2 min read
#LongCovid community. Where am I going wrong? I’m off work (other than doing a small amount of “essential” and thought I was pacing but now having another relapse. This is my diary
Monday
No work
Pilates 1 hour
2,964 steps
Slept 3 hours in the afternoon
9 hours sleep
Tuesday 1.5 hours of work
Swimming 30 minutes
4,088 steps
Slept 1.5 hours
Rested on bed for further 2 hours
Muscle aches, chest pain and heart palpitations
9 hours sleep
Wednesday
1 hour of work
Felt OK
Went for a walk 10,602 steps
Swimming 12 minutes
Went to bed for 10 hours
Aug 29, 2020 • 4 tweets • 3 min read
1/3 #Longcovid#COVID#covidlonghauler
Things I wish Doctors would say to me:
I’m sorry you are feeling like this.
I’m going to explain why I think you are experiencing each symptom and if we don’t yet know why I’ll say that too.
2/3 I’m going to help you consider the treatment available for each symptom where I can
I want to keep track of your recovery so will see you again in xx weeks
I’m going to be researching the latest science and treatments to help you and my other Long Covid patients
