A short (somewhat disjointed) primer on Cochrane's flawed review "Exercise therapy for chronic fatigue syndrome", followed by a collection of references, some of which shocking.

(See petition by @s4me_info linked below!)

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#MEcfs #pwME #LongCovid #pwLC
chng.it/zTZ7vX9Czd • A patient group numbering many millions: people with ME/CFS.

• A trusted provider of systematic reviews - Cochrane - failing to take timely action on an outdated and potentially harmful review affecting that patient group.

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Not such good news for #pwME in the Netherlands?

Dutch patients should no longer expect that future Dutch guidance for #MEcfs will be based on the new NICE guideline.

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#MEawarenessHour
#MyalgicE #MEcfs #MillionsMissing In December 2020, the Dutch Care Institute (Zorginstituut Nederland) had announced it would work towards a new "quality standard"/guideline for care for people with #MEcfs. In that announcement it stated that the British NICE guidelines could possibly serve as
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#MEawarenessHour

The team of German #MEcfs petition #SIGNforMECFS released a statement on 24 Feb., replying to the submissions made by undersecretary of state Sabine Dittmar on behalf of the German government during the public hearing at the German parliament.
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#MEawarenessHour
#pwME #MEcfs

https://twitter.com/loy_daniel_de/status/1496872176334434305

Those submissions were perceived as inappropriate and ill-prepared by many #pwME who followed the hearing online or watched the recording.

Since many of the statements by Dittmar are standard fare,

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#MEawarenessHour
#pwME #MyalgicE #MEcfs #LongCovid