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Tilman Andris Profile picture
Tilman Andris
@TilmanAndris
Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
Aug 16 • 16 tweets • 4 min read
Grateful to Ann Milne for submitting a comment to @cochranecollab regarding their systematic review “Exercise therapy for chronic fatigue syndrome” by L. Larun et al. (2019).

The comment:

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#MEcfs #MyalgicE #pwME #LongCovid #pwLCcochranelibrary.com/cdsr/doi/10.10… The review claims: “Exercise therapy probably has a positive effect on fatigue in adults with CFS compared to usual care or passive therapies.”



2/cochranelibrary.com/cdsr/doi/10.10…
Oct 10, 2023 • 49 tweets • 9 min read
A short (somewhat disjointed) primer on Cochrane's flawed review "Exercise therapy for chronic fatigue syndrome", followed by a collection of references, some of which shocking.

(See petition by @s4me_info linked below!)

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 #MEcfs #pwME #LongCovid #pwLC
chng.it/zTZ7vX9Czd • A patient group numbering many millions: people with ME/CFS.

• A trusted provider of systematic reviews - Cochrane - failing to take timely action on an outdated and potentially harmful review affecting that patient group.

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Mar 23, 2022 • 10 tweets • 6 min read
Not such good news for #pwME in the Netherlands?

Dutch patients should no longer expect that future Dutch guidance for #MEcfs will be based on the new NICE guideline.

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#MEawarenessHour
#MyalgicE #MEcfs #MillionsMissing In December 2020, the Dutch Care Institute (Zorginstituut Nederland) had announced it would work towards a new "quality standard"/guideline for care for people with #MEcfs. In that announcement it stated that the British NICE guidelines could possibly serve as
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 #MEawarenessHour
Mar 9, 2022 • 26 tweets • 26 min read
The team of German #MEcfs petition #SIGNforMECFS released a statement on 24 Feb., replying to the submissions made by undersecretary of state Sabine Dittmar on behalf of the German government during the public hearing at the German parliament.
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#MEawarenessHour
#pwME #MEcfs Those submissions were perceived as inappropriate and ill-prepared by many #pwME who followed the hearing online or watched the recording.

Since many of the statements by Dittmar are standard fare,

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#MEawarenessHour
#pwME #MyalgicE #MEcfs #LongCovid