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Jess Morley Profile picture
Jess Morley
@jessRmorley
💯 health data nerd. PhD @oiioxford. Previously @BennettOxford. Postdoc @DECyale
Oct 22 • 16 tweets • 3 min read
Looking through the NHS Change website at the digital/tech related suggestions & it's clear that the public really just want the basics fixed. The most common suggestions are:

1. Centralised record
2. Online appointment booking
3. Digital communication

🧵 These are old ideas inc. in the National Programme for IT, Paperless Care 2020, & the NHS long-term plan.

The fact that people are still asking for these basics 25+yrs after they were first suggested is why I'm always banging the 'fix the foundations before AI' drum.
Jul 27 • 8 tweets • 2 min read
I. Am. Tired NHS data are a fantastic resource that are already, and should be increasingly, used to produce benefit for *patients*, public health, social care, and the NHS. But repeating old misinformed narratives won't help achieve that goal 🧵.thetimes.com/article/800ba1… 1. "At the moment, people can apply for access to data relating to one very, very specific type of cancer and it’s released to them." This is simply not true. For anonymised datasets, approved research databases, registries etc., permission is broad. Less for *identifiable* data.
Sep 27, 2023 • 17 tweets • 3 min read
⏰NEW PAPER⏰ WHERE DOES NHS DATA GO?? This is a BIG one. When @bengoldacre and I wrote the Goldacre Review last year, we recommended that all NHS data flows be mapped. Now Dr. Joe Zhang & I (with some help) have done just that: Some key takeaways 🧵thelancet.com/journals/landi… 1. It’s really hard to do. There are no unified registers of patient data extraction, sublicensing, or usage in NHSE. To find data flows, we reviewed 9 categories of information inc legal docs, admin data use registers, academic metadata registers, FOI, & MEDLINE
Apr 11, 2023 • 17 tweets • 5 min read
It’s only been a few weeks, but I’m SO TIRED of the idea that LLMs are tech’s gift to medicine. There’s more to good medicine than parroting back answers (not to mention LLMs are unregulated & generative). A 🧵 thread of my fave papers about why medicine is more than Q&A: First, go back and read the definition of EBM. It's not just about regurgitating medical studies. It's about contextualising the best available evidence for the specific patient: bmj.com/content/312/70…
Jun 24, 2022 • 42 tweets • 6 min read
RIGHT. I’ve read all of these multiple times now and I have some thoughts. Specifically, I have 3 categories of thoughts: things I’m happy about, things I’m worried about, and things I’m ‘on the fence’ about. First. If you want my views on the NHS Data Strategy, you want this thread:
Jun 13, 2022 • 60 tweets • 20 min read
🚨ANNOUNCEMENT🚨 Today @NHSTransform has published the final version of its data strategy: Data Saves Lives - Reshaping health and social care with data gov.uk/government/pub…. It’s moved on leaps & bounds since the draft last year AND it responds to our @bengoldacre review. A🧵 @bengoldacre First, we must congratulate the team involved in working on the document. It always takes a monumental effort to get to this stage & this document shows a rare willingness to move beyond aphorisms and get into technical detail.
Apr 18, 2022 • 9 tweets • 5 min read
🤓FINISHED🚨 The entire @bengoldacre Review is now in HTML, pdf, exec sum, summ, full text & Twitter versions (to which I’ve I’ve added my personal chapter reading lists 👇). I’ll now return to my PhD on the totally unrelated topic “designing an algorithmically enhanced NHS” 😂 Chapter 1: NHS Service analytics
TLDR: Value, Develop & Professionalise the NHS workforce
Thread:
Reading List: docs.google.com/document/d/17h…
Apr 17, 2022 • 33 tweets • 11 min read
🐇ALRIGHT🍫 it’s Easter Sunday and have I got a treat for you. It’s the GRAND FINALE. We have finally reached the final chapter of the @bengoldacre Review: “Chapter 7: Strategy” It’s a short and sweet ending, so let’s get right to it. Image @bengoldacre It’s been a long, detailed, and technical road. But, hopefully, you will have seen that this has been necessary to set out a clear path for how the NHS can benefit from better, broader, and safer use of health data for research and analysis.
Apr 16, 2022 • 50 tweets • 20 min read
ARE YOU READY?? Here goes nothing. Chapter 6 of the @bengoldacre review: “Data Curation.” Like chapter 4 (TREs) this is a long & technical chapter, but we can get through it. It’s also the penultimate chapter, so there’s not much more to take in.

Let’s dive in. Image @bengoldacre (ICYMI
Chapter 1: NHS service analytics
Chapter 2: Open Working
Chapter 3: Privacy & Security
Chapter 4: TREs
Chapter 5: IG, Ethics & PPIE )
Apr 15, 2022 • 44 tweets • 18 min read
🚨IT’S TIME 🚨 for everybody’s* favourite topic, Chapter 5 of the @bengoldacre Review, “Information Governance, Ethics, & PPIE” gov.uk/government/pub…

Building from:

Chapter 1: NHS analytics
Chapter 2: Open Working
Chapter 3: Privacy & Security
Chapter 4: TREs

*Just mine @bengoldacre (IG) is often unfairly regarded as an obstructive or bland discipline. In reality it is a complex multidisciplinary project requiring skills in analytics, IT, ethics and IG. At its best there is a clarity of purpose and an energetic embrace of role and accountability.
Apr 14, 2022 • 35 tweets • 14 min read
⏰RIGHT!!⏰ You've had a week to get stuck into the @bengoldacre review & have 4 days ahead to dive deeper. So let's get into the BIG ONE - Chapter 4: "Trusted Research Environments"- A thread. @bengoldacre First, if you need a refresher:

(Chapter 1:

Chapter 2:

Chapter 3: )
Apr 13, 2022 • 41 tweets • 17 min read
READY? Day 3, Chapter 3, 🎶let’s get tech-ni-cal 🎶 and dive into the depths of the privacy & security findings & recommendations of the @bengoldacre review.
gov.uk/government/pub…

Chapter 1:

Chapter 2: Image @bengoldacre I shall preface this by first making clear that the protection of privacy for EHR data matters regardless of whether you care about people knowing what’s in your medical record or not.
Apr 12, 2022 • 34 tweets • 15 min read
ONWARD - not to infinity & beyond - but to Chapter two of the @bengoldacre review: “Open Working.” Or, TL;DR **Make things OPEN it makes things BETTER.**

(ICYMI Chapter 1: ) @bengoldacre The place to start here is that data preparation, curation, analysis, interpretation, etc. is HARD & TECHNICAL work. Medicine is complicated. The NHS is complicated. & Data Science/Analysis is complicated.
Apr 11, 2022 • 26 tweets • 11 min read
RIGHT. You’ve all had a weekend to digest the @bengoldacre review. There’s a lot to take in, so let’s do some deeper dives into content. Let’s start at the very beginning, since I’ve heard it’s a very good place to start: NHS service analytics. @bengoldacre There are 000s of analysts across the NHS. They are the hidden heroes of service improvement. They take data & use it to identify opportunities for improving the quality, safety,& cost effectiveness of services; to model waiting lists; to measure the impact of new interventions.
Oct 30, 2019 • 14 tweets • 16 min read
*ATTENTION PLEASE*#AI #digitalhealth #tweeps Today @IndraJoshi10 and I at @NHSX are launching our new "Artificial Intelligence: How to get it right report" with help from A LOT of people across the digital health ecosystem nhsx.nhs.uk/key-informatio… 1/ 14 The report goes into detail on our plans for the NHS AI lab but, more importantly, the research that sits beneath that - particularly the work on governance: ethics and regulation with invaluable input from @reformthinktank @oxfordethicslab @turinginst @FutureAdvocacy 2/14