Phil Booth Profile picture
Mind 'for hire'; critical friend to just causes. Formerly and currently @NO2ID; still also @medConfidential

Jun 27, 2020, 5 tweets

Well, this is an astonishingly poor effort from @royalsociety; a #DataGovernance "explainer" that tips its hand by its examples (i.e. health data) but not once in 28 pages mentions significant bodies like @HRA_Latest, for #ResearchEthics approval, or #CAG!
royalsociety.org/-/media/policy…

While there are a whole bunch of players in what is an increasingly crowded/confused/confusing landscape, to miss out two of the key *statutory* #governance bodies seems more than a little remiss 🤦🏻‍♂️

If you are interested, and want to dig a bit deeper into the (#regulatory, not just #governance) #landscape around #health #data in particular, I recommend @EleHrwch & @claumartinezv's map:
reform.uk/research/data-…

I see others have noted 'omissions' too...

And a few more...

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