On the top picture, you see me.
Back then I enjoyed life and did not worry about the future. I had just finished school and couldn't wait to see what life had in store for me. I was a very sociable person and loved having people around me. I lived a very active life and there
was hardly any party I missed. Photography and travelling were my great passions.
On the picture below, you see M.E.
A severe and utterly frightening disease that hardly any research has been done on. This disease is to blame for the fact that I have lost everything about my
old life. Here I am getting another infusion because I am in such a bad general condition again.
So, what happened between the two pictures?
I developed Myalgic Encephalomyelitis / ”Chronic Fatigue Syndrome” after a mild virus infection. (hard to pronounce, even harder to
live with)
Why I tweeting this?
People with ME/CFS are often called "missing people" because as their symptoms get progressively worse, they disappear from public life, mostly unnoticed by others. They are so ill that they can no longer leave the house or bed.
People you knew only briefly usually don't know what happened to you at all. Their life goes on while yours is constantly on pause.
I usually don't want to deal with the disease, nor do I want to think or write about it, but in a way, I feel compelled to do at least something.
The reason for creating this account is that we need awareness. If we are not seen, we cannot be perceived and nothing will change. We have no other choice than to draw intention to ourselves and to fight for awareness.
This is my way of contributing to it.
On this account I will share how a normally harmless virus led me to develop ME/CFS, which changed my life in 2017 and destroyed it in 2019.
This account is my way to fight for awareness.
#mecfs #mecfsawareness #pwme #myalgicencephalomyelitis #chronicillness
#chronicfatigue #inlfammation #mecfs #mecfsrecovery #cirs #mecfsfighter #mecfsgermany #millionsmissing #infusion #disability #chronicfatiguesyndromewarrior #pots #postexertionalmalaise #pem #biomarker #treatments
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