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@CzebotarJessie My Diagnosis is Dysautonomia. A dysfunction of the autonomic nervous system.
ndrf.org
Yes, I have Hypokalemia (chronic low Potassium). I have to take a Powdered Potassium (can't digest pill form) 20 mEq/day or I go into low potassium cardiac arrythmias = U waves...
@CzebotarJessie ...on very RARE occasions, I have SVT, Supra-Ventricular Tachycardia at 150+ bpm (beats per minute).
"POTS" is a common subtype of Dysautonomia. I don't have that.
I have too low BPs without meds to raise them, and in POTS, the heart rate soars when BP drops.
My body doesn't...
@CzebotarJessie ...compensate for low BP by raising my heart rate. Thus my pacemaker set at 70bpm for the low.
Before diagnosed correctly, my BPs were 90/70, 80/60 and my heart rate was bradycardic in the 40s and 50s. This wasn't conducive to standing up and walking - I became very well...
@CzebotarJessie acquainted with my floors. It took 3 years to get the correct mix of meds AND convince my good friend/cardiologist that I needed a pacemaker. They finally caught the severe cardiac arrythmias on the tele monitor while hospitalized after another bout of syncope. (passed out)...
@CzebotarJessie ... my heart rate usually fell, but I was going into fatal low arrythmias "junctional rhythm" at 30bpm and occ. ventricular rhythm at 25bpm. I got that pacemaker and I was up and walking again! Halleluia! (I was a floor RN prior to becoming critically ill). So, I'm translating...
@CzebotarJessie the medical. Yes, survivors' nervous systems are fried from neuroleptic drugs and electric shock. We usually have cardiac arrythmia issues. We have very strange reactions to medications from all the drug experimentation (I have half a typed page), only 3 are true allergic...
@CzebotarJessie anaphylactic reactions. Every survivor I know has vision and/or hearing problems as well. Brain and/or spinal cord injuries, G.I. and reproductive organ damages and diseases, autoimmune, endocrine, musculo-skeletal injuries and illnesses.
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C.A.Beck1961
@CABeck1961
@CzebotarJessie You're welcome. Yes, every survivor I know. Go to that ndrf.org page, and PRINT OUT the information on Dysautonomia for your doctors!
It is genetic ONLY with Ashkenazi Jews.
Two vaccines can cause this to go from relatively benign, dormant symptoms: Hep B and HPV..
@CzebotarJessie ...Hep B set mine off, because back when I was going into Nursing school, it was a New vaccine and required of health workers. HPV, a FRAUD vaccine, is of NO BENEFIT in preventing cancer. Those who receive it are developing POTS, dysautonomia at alarming rates. Those who die...
@CzebotarJessie right after the vaccines usually die in their sleep of their heart rate and BP dropping and stopping.
There was a national shortage of midodrine for 3 months last year, and it is my survival med. I had to search pharmacies who might have it in stock still on their shelves.
Awful.
Read 4 tweets
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C.A.Beck1961
@CABeck1961
@FoilTha @md_pershing I think California is a MAJOR FALSE FLAG.
I was a Pediatric RN for desperately ill children: oxygen, ventilators, feeding tubes, suction - yes, they all have battery back-ups, or 02 tanks, but, my God, not for days! I think of ALL medically fragile people in that nightmare. I ...
@FoilTha @md_pershing watched a mobile home park burn (and the news stated people were injured fleeing). They had no warning, they had no water pressure in hydrants to fight the fire, as it was on a Hilltop. 3 tanker trucks for appx. 50 homes.
Peoples' lives in California have become "collateral ...
@FoilTha @md_pershing ...damage in the purposeful power outages, and STILL fires rage. This is a HUMAN EXPERIMENT we are watching. When it is ALL said and done, how many lives will have been destroyed?! Watch California and WAKE UP! I pray for my friends in Calif. They MUST Wake Up and take their..
Read 4 tweets
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C.A.Beck1961
@CABeck1961
@groth1945 You're very welcome! Awh, HUGS & LOVE. Btw, I deleted my stupid reply about old news, I have perm. brain injuries from SRA/MKUltra, and my own black ice MVA epic fail, lol. So, I always appreciate correction! I was Army in my teens in MKULTRA. Alpha Unit. Sgt 1st Class. Helms and
@groth1945 GHWBush, evil bastards, destroyed all the records of "we the children". So, I don't get the Comraderie of actually being an Army vet, and my accomplishments in the Army. Since it was the 70s, I suffer the same illnesses of soldiers experimented on by our own gov.
Betrayals ran..
@groth1945 So deep in that war and in our gov. then. The #Deep State has been alive and well since the end of WWII. My step-grandfather was OSS-CIA. My bad luck. My heart is with you and Thank God for Mil. Intel et al..for The Plan and Pres. Trump! We MUST win! God Bless You!
Read 4 tweets

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Kelly joanne
@Kelll_belle
Today was world Cerebral palsy day. Fittingly, it is also dysautonomia awareness month. CP is one of three things that like to make my life more challenging it's hard to say how it alone affects my life. Mostly because of dysautonomia. tweet 1/n
The "angry phase of CP, as it was called by my physical therapist, probably lasted about 5 years beyond the 7-9 age it typically does according to her. From 11- 17, I was dealing with chronic illness symptoms that no one could explain almost constantly to some degree. tweet 2/n
It took the isolation of being "the girl in the wheelchair" in almost any group and put it on steroids. Those chronic illness symptoms were a form of dysautonomia called; postural orthostatic tachycardia syndrome. tweet 3/n
Read 14 tweets
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t1gRé_blanc_333
@T1gre9
🤗One of my favorite anonymous quotes: "Sometimes, memories leak out of our eyes and roll down our cheeks". This is a truth, and it's been happening frequently today, which is why I didn't work on my blog (sorry, folks). Have you ever just had crying jags for no reason?
🤗When women do it, medical science blames it on hormones or depression. "Female issues". A raging case of "The Vapors". Insert whatever dismissive term you prefer. The medical solution is typically in the form of a pill. To make you feel better, of course.
🤗Medical science largely ignores the fact that men experience this same mysterious affliction. It's a woman thing, you see. And if a man does this, it is stress or depression, and the remedy for it is typically in the form of a...yep, you guessed it. Big Pharma to the rescue.
Read 31 tweets
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Kimberly George
@kimberlyanngeo
.@Doug_Lind_Say shares being a late bloomer as a kid. He got sick a junior summer during college, he was told he had mono. His life got worse, not better. #WTFix
He realized he probably had the condition his mother had. He had long had a vision of being a man of destiny. He was in bed 22 hours a day. Walk about 50 ft. Exceeding that he would be worse. #WTFix
The medical community offered @Doug_Lind_Say no home. He looked ahead and knew he could not follow his mother’s health path. A mentor shared if you want to make whatever everyone else makes, then you can, if you want something different you have to do something different. #WTFix
Read 24 tweets

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