For those who care about autism research, it’s important to note that the @AutismINSAR Board continues to include only ONE person of color and ONE autistic person.
That’s unacceptable. Period.
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Nominations for the INSAR President have been announced.
Whomever is elected, it is imperative that they and the @AutismINSAR Board take additional steps to center autistic people and POC in its leadership, press their member institutions to do the same, and take more steps to make INSAR equitable for autistic/POC researchers.
It is also time for @AutismINSAR to begin evaluating the leadership composition of board nominees who represent institutes with all-white leadership (many) or who fail to include #ActuallyAutistic people in their leadership (almost all).
What joyous work that would be!
As it so happens, I’ll be speaking soon alongside researchers from the research institutes of the two @AutismINSAR Nominees for President (@SeaverAutism & @UCLASemel). I look forward to sharing with them necessity of centering people of color and autistic people within INSAR.
Y’all, this is simple stuff. It’s 2020. The start of the Millennium was 20 years ago. Yet, autistic people and people of color are still #WaitingForTonight* when it comes to @AutismINSAR representation. Let’s not do that.
*Dad joke about THE song used for all #Y2K celebrations.
And please don’t read this as an angry tweet thread. This is joyous work!
What a privilege it is for @AutismINSAR to be addressing its barriers. It’s recently taken some positive steps for inclusion. Now, take more! Imagine the impact on science and autistic people.
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I hope this topic is front-and-center as @AutismINSAR gathers in Seattle this May. There are AMAZING researchers in INSAR who believe this too. As they gather in Seattle, they have my support.
Someone wrote that Judge Amy Coney Barrett would bring “heart” to ‘special needs’ if confirmed to the #SupremeCourt. After showing my respect for the person who wrote that, and understanding of where they were coming from, this was my response:
“Disabled people don’t need lawmakers or jurors to bring “heart” to ‘special needs’. That’s what has led to patronizing policy which has f%¥ked over the exercise of our equality and marginalized our full participation in society over-and-over-and-over again...
It’s one of the greatest things we organize and fight against and we will continue to fight against it until the law and policy makers recognize that we are just like everyone else...
The whole #BobWoodward thing reminds me that our better politicians understand the press will try to ‘get’ them, and that’s a good, healthy thing for our democracy. They respect and welcome that.
—> It’s a BS check.
Bad politicians think the press is there to serve them.
*I should say it’s not as much that the press tries to “get” politicians, but that they don’t regard a politician’s messaging priorities when they are reporting stories. That’s an amazing thing, and when I was a press officer it drove me up the wall.
I hated it, but I loved it.
And the #BobWoodward tapes remind me of #LouChibarro of the @WashBlade. When I was a press officer, he was so masterful in asking a question, letting you answer, then NOT SAYING ANYTHING.
The subject felt compelled to fill the silence with more information.
👨🍳💋
So, while I very much *feel* #SpoonTheory in my being, it all falls apart when trying to use it as a metaphor with others (or as an accommodation strategy for myself). I constantly miscount and lose them.
When speaking, or in meetings, I’m often asked by folks to explain spoon theory. I usually just turn to someone I trust and ask “Could you explain it?”
For myself, I’ve learned to just make myself stop, slow down, or turn down requests when needed — and to be ok with that.
I mean, I’m a huge supporter of spoon theory as a metaphor to explain things to others and as an accomodation peoole can use themselves. It just all gets tangled and anxiety-inducing for me.
I love to laugh at that, though. You kind of gotta.
I often think on how research, medicine, and psychiatry approach and ‘treat’ autistic people today in the exact same manner they approached and ‘treated’ homosexuality until 1972.
Then, thanks to #LGBTQ advocates, homosexuality was suddenly ‘cured’ by @APAPsychiatric overnight.
Where are the endless research papers about the genetics and epigenetics of gay people?
Where are the warnings of “risk factors” for lesbians?
Where’s the pleading for “early intervention” for bisexuals?
What about environmental factors?!?!
We probably know less about gay people now than autistic people. But, we know enough not to funnel everything about LGBTQ people through a pathological frame.
All the questions we ask about autism are still there (and largely unanswered) for LGBTQ people.