We have to be really careful of #Covid19 support groups that claim to be inclusive but don’t want to talk about the racial disparities in healthcare or statistics that clearly state who this virus affects most. #longcovid
If I can’t have a discussion about being a black woman struggling with this virus and the racism that while seeking treatment in a #Covid19 support group, I don’t want it.
Having this virus isn’t a public relations job for me. This is real. It affects me every single day. #longcovid #covid19 #blackpeople #chronicillness
It would be silly of me to act as if I’m not maneuvering thru some form of double consciousness as a black woman wading through the channels of what the media is seemingly painting as a “white woman’s disease.” #longcovid #covid19 #blackpeople #chronicillness
I’m not interested in being in spaces where I can’t talk about race; where I have to pretend I’m colorless in order to get media connections or opportunities to spread awareness. #longcovid19 #covid19 #chronicillness
So I get why I make some support groups uncomfortable. It’s because I don’t belong there. I would muddy up their “image.” But I am black. And I have #covid19. And I’ve had white men call me “aggressive” while treating me. I can’t lie about that.
& for real for real, @itsbodypolitic is one of the ONLY groups that has ever made me feel good being me while having this stupid ass virus. & no, they don’t pay me. #longcovid #covid19 #chronicillness
I just never had to shuck & jive to be there. And they actually address the many -isms we face while we wait & see where #covid19 will take us. I’m empowered by this group. Oh, I like Long Hauler Fighters too. #longcovid #covid19 #chronicillness #blackpeople

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More from @chiluvs1

23 Aug
Is anyone else afraid of the lack of black women voices in #longcovid conversations? If anyone knows how challenging it is to be heard by doctors, it’s us. From fibroids to infertility to cancers to endometriosis, we already have lived being disbelieved.
Prior to having #longcovid, I had been privileged in a sense. I had never had a health condition that wasn’t believed by medical professionals. But babyyy, since contracting #covid19, I’ve learned and lived this nightmare for five months.
You can’t be a smart, black woman while describing symptoms and challenges of #longcovid. It is NOT allowed. During a recent hospital stay, I argued with a doctor who told me that #covid19 didn’t cause neurological problems. He didn’t want to hear me.
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