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Hannah 🦈

4 Jan, 4 tweets, 2 min read

@jameshamblin

Everyone and especially #LongCOVID folks - this is an exceptional article by @jameshamblin about the link between COVID & sleep. I didn't start getting better at all until I was able to sleep again, ~4 months in. I strongly suggest prioritizing it. 1/

theatlantic.com/health/archive…

It's not mentioned in here, but the glymphatic system of the brain is what clears waste and toxins from the central nervous system, and happens primarily during sleep. A faulty drainage system seems to be one theory behind post-viral illnesses. 2/
ncbi.nlm.nih.gov/pmc/articles/P…

Impaired glymphatic function has also been linked to Alzheimer's. Here's a paper that gives more detail on "cleaning the sleeping brain" 3/

sciencedirect.com/science/articl…

If you're a #LongCovid patient or #longhaulers, I really recommend prioritizing sleep as best you can, especially if you're having insomnia - use rotating supplements that are doctor-approved (melatonin seems to be a good one). 4/

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Hannah 🦈

@ahandvanish

27 Dec 20

Yay our #LongCovid paper is online!!!

medrxiv.org/content/10.110…

While we had a few thousand more fill in the survey, this paper focuses on 3,762 #longhaulers (sick >28 days) who got sick between Dec-May (to look at an average of ~6 months of data).

Some key findings:

1/

We looked at 205 symptoms over 10 organs systems (Neuropsychiatric, Pulmonary, Head Ears Eyes Nose Throat (HEENT), Gastrointestinal, Cardiovascular, Musculoskeletal, Immunologic, Dermatologic, Reproductive/Genitourinary/Endocrine).

On average, 9 in 10 of these were affected!
2/

Of the 205 symptoms, we looked at 74 over time, looking at Weeks 1-4 and Months 2-7.

These graphs show the % of respondents who have reached each month who have these symptoms. Some of them go down (fever*, dry cough) while others don't. (*tho some have fever for months!) 3/

Read 30 tweets

Hannah 🦈

@ahandvanish

7 Oct 20

I don't usually do these kinds of posts, and I hope that everyone understands my intentions are good here.

But.

In a data deficient landscape like that of #longcovid, one bad data study can create narratives that persist long after new, good data is created. I want to talk 1/

about one of these.

The Kings College symptom tracker is an app. Because they track symptoms over time, it gets a lot of citations on Long Covid prevalence, and also symptom prevalence.

But there are 2 *huge* issues with it:

2/

1) Because it's an app, it gets exhausting to use, and people stop using it. This is a known and public problem, understood by Tim himself:

3/

Read 19 tweets

Hannah 🦈

@ahandvanish

26 Jul 20

I just crossed the 4 month mark of being sick w' #COVID19. I am young, & I was healthy. Dying is not the only thing to worry about. I still have a near-daily fever, loss of cognitive function, essential tremors, GI issues, severe headaches, heartrate of 150+, viral arthritis, 1/

heart palpitations, muscle aches, a feeling like my body has forgotten to breathe. Over the past 124 days I've lost all feeling in my arms & hands, had extreme back/kidney/rib pain, phantom smells (like someone BBQing bad meat), tinnitus, difficulty understanding text/reading, 2/

difficulty following conversations, sensitivity to noise & light, nonstop bruising. *Thinking* can cause headaches now. I'm not alone in the cognitive issues; it's as common a symptom as cough.

No one knows when #longcovid patients aren't contagious; many are alone for months.

Read 22 tweets

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