The peer review accepts:
"The author is clearly passionate about his view"
"It is clear the author has very good knowledge of PDA and related issues"
""challenging whether PDA should just be seen as a subcategory of ASD as to a behavioural profile that can be seen in children who do not ASD". There are strong arguments for this"
"(perhaps 2 head-to-head articles in a special issue written by invitation may be better)."
"I am not saying one should not write an article to argue that PDA should be a diagnosis but that should come from several prominent people writing the article together"
To be clear I am crying because I am distraught at this. I will likely be pursuing a grievance against the reviewer when I have their name, because of what they have said.
They have accused me of things in the review which are not factually true.
They acknowledge in previous review:
"The author does have some valid and interesting point such as PDA is not equal to ASD and vice-versa,"
From first round review:
"The author may chose to write a much longer separate article to demonstrate that PDA should be accepted as new diagnostic entity"
The point here is that I did just that, I argued PDA should be viewed as a standalone entity. While explaining how four main viewpoints developed.
Apparently, I was too strong in my arguments. That it would be better coming from several authors, despite me meeting as much of the reviewer's suggestions as possible.
Some of the reviewer's comments were unrealistic. Like asking me to discuss PDA in other countries. This is despite me pointing out PDA is acknowledged to be a UK based diagnosis. Lack of non-UK literature existing.
I referenced what non-UK literature I could.
Yet apparently, "The author has addressed some of the comments but where he disagrees, he has simply made comments about reviewers such as "the reviewer is not familiar with O'nions work"."
Which is factually inaccurate. I gave robust responses, including to how O'Nions still views PDA as an ASD, providing links to relevant articles.
The only reason you would research PDA in only autistic population samples is if you thought PDA is a form of autism.
No-one should accuse of the things they have done, misconstrue my points, like the reviewer has done.
Essentially, reviewer accepted the strength of my position, my expertise and passion on PDA. Said that something should be published on the topic, but instead by multiple authors. That pro dual ASD supporters should get their own several thousand word article
All the while accusing of me things that are simply untrue.
And contradicting at least one of their points in previous peer review.
I told the editor they have two weeks to accept the submission or I will likely be pursuing a grievance with them & publish it in Autism Policy & Practice.
No-one should cause this much distress from their peer review.
Another thing is based on the what is said in the peer review, the reviewer almost certainly knows they are making unreasonable requests of me in it. The reviewer is meant to be a colleague of O'Nions.
Obvious COI there then, in the reviewer and them making suggestions to the article, if the reviewer is a colleague of O'Nions.
To be clear it is accepted PDA is a UK based entity:
"Since interest in the concept of PDA largely centres
on the UK, it is at present a culture-bound concept." link.springer.com/article/10.100…
And:
"construct has achieved increasingly wide attention,
particularly in the UK (but also in some parts of
continental Europe)" thelancet.com/journals/lanch…
I do not see how much of the reviewer's comments are valid or stand up to mild scrutiny. If the article is too strong and the reviewer thinks that dual ASD dx persons perspectives should be catered for, that is what journal's letter section is for.
Based on the feedback I had, there is essentially nothing wrong with the submission, it is just that I did not fully meet the reviewer's comments; which as I pointed out, some of them are unrealistic.
If I have to publish it in Autism Policy and Practice, I will publish the peer reviews (which are already anonymised), my rebuttals to the peer reviews and the original submission; I can show some of the reviewer's comments are demonstrably untrue.
The article should be key literature when published.
So the response and reception to it will be interesting.
The more I reflect on the decision email, the more bizarre it seems. The more valid my comments that the reviewer did not adequately engage with the submission.
• • •
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At least some of them anyway. Probably explain later.
"Once anxiety or aversion have been triggered by
demands, parents report that increasing pressure on
the child to comply can precipitate more severe forms of
problem behaviour (e.g. threats, meltdowns, destructive...
Oh crikey. Looking briefly at OCD again. Notice this in its DSM criteria:
"Young children may not be able to articulate the aims of these behaviors or mental acts."
Applying the same logic to PDA debate. If we do not expect non-autistic children to not always be able to understand/ rationalise their behaviours. Why are we expecting autistic CYP to be able to do the same to have a "Rational Demand Avoidance" group?
As I state elsewhere are good reasons to expect many autistic CYP being labelled with "Rational Demand Avoidance" who CAN NOT rationalise their behaviours, their demand avoidance. …emandavoidancecom.files.wordpress.com/2020/08/01-aug…
I am going to say this, I am confident that anyone saying that original PDA DISCO questions viewed PDA social manipulative behaviours as being "Strategic"/ not "manipulative" are either mistaken or lying.
The reasons for this, is that literature before O'Nions et al (2016), the LWC PDA DISCO paper viewed social demand avoidance to be manipulative. Also that two tools derived from original PDA DISCO questions view such behaviours as manipulative.
Definition of manipulation:
"to control or play upon by artful, unfair, or insidious means especially to one's own advantage"
&
"to change by artful or unfair means so as to serve one's purpose" merriam-webster.com/dictionary/man…
Is PDA relevant.
"The role of Facebook Groups in the management, and raising of awareness of, antidepressant withdrawal: Is social media filling the void left by health services?"
Free to access pre-print repository.uel.ac.uk/item/88w32
I should probably thank Chloe for indirectly leading this article to me, through setting up google scholar alerts for @peterkinderman
Why this is PDA relevant is it fits into these arguments:
Probably PDA relevant.
"Mental health of parents as a factor in dealing with Autism"
Not open access. tandfonline.com/doi/abs/10.108…
"The results show that not only did the psychological support given to the parents have a direct effect on the mental health of the parents, but that it also indirectly decreased the levels of autistic symptoms of the children."
Why it is relevant is because research suggests that PDA caregivers have high anxiety levels themselves. This is also predicted from being an erratic, unpredictable (extreme) behaviours a CYP with PDA often displays.
So I have been briefly looking into how OCD is assessed. I came across this image. Crikey, it just makes me think even more that PDA should be viewed as an OCD & related disorder.