The second theme in the Best Practice checklist is Anonymity. There are three items in this theme.
Read the full checklist at: mhdss.ac.uk/best-practice-… (1/7) #MHDSScot
Anonymity 1
Today: using de-identified #data, except where identifiable information is essential to beneficial outcomes. In all cases, the health & benefit of people with lived experience should be prioritised. mhdss.ac.uk/best-practice-… (2/7)
Anonymity 1
Future: building plans for de-identified #data collected by researchers, scientists and clinical services to be made available for analysis on an open-access basis. mhdss.ac.uk/best-practice-… (3/7)
Anonymity 2
Today: researchers, scientists & clinical services making de-identified #data & findings open-access where possible. It also involves awareness of the risk that qualitative data (such as free text) could contain identifiable information. mhdss.ac.uk/best-practice-… (4/7)
Anonymity 2
Future: developing effective measures, including secure linking systems, to protect against inappropriate identification and misuse. mhdss.ac.uk/best-practice-… (5/7)
Anonymity 3
Today: incorporating statistical disclosure control by following rules designed to prevent identification of individuals. mhdss.ac.uk/best-practice-… (6/7)
Anonymity 3
Future: incorporating statistical disclosure control based on principles, such as the principle that no individual may be identified, with training and external oversight. mhdss.ac.uk/best-practice-… (7/7)
Community 1
Today: ensuring that participants have as much control over consent as possible. mhdss.ac.uk/best-practice-…
Community 1
Future: exploring alternative models of consent, which may involve moving away from individualised models of consent mhdss.ac.uk/best-practice-…
Transparency 1
Today: ensuring that researchers have a process in place for responding to withdrawal requests and that they provide transparency on whether, how and when participants can withdraw their #data. mhdss.ac.uk/best-practice-… (2/10)
Transparency 1
Future: appointing a qualified, independent arbiter to arbitrate on complex questions relating to consent and #data withdrawal. mhdss.ac.uk/best-practice-… (3/10)
Security 1:
Today: #Data should be accessible to a range of people who conduct research, including authorised academics and clinicians. mhdss.ac.uk/best-practice-… (2/10)
Security 1
Future: providing appropriate training and supervision for #data users, and carrying out criminal record checks where relevant. mhdss.ac.uk/best-practice-… (3/10)
Today we officially launch our “Best Practice for Mental Health Data Science” checklist, which was co-created by community experts with a research team. Its purpose is to guide the practice of #data science in #MentalHealth research. View it at: mhdss.ac.uk/best-practice-… (1/3)
Researchers conducting new studies should consider each item on the today checklist. Together as a research community, we should also aim to develop and disseminate new protocols to meet the criteria for best practice in the future. Read checklist at mhdss.ac.uk/best-practice-… (2/3)
To accompany the checklist, we have compiled a list of case studies, which illustrate how different #MentalHealth#data science teams around the UK are delivering excellence in their research practice. mhdss.ac.uk/case-studies 2 (3/3)