Community 1
Today: ensuring that participants have as much control over consent as possible. mhdss.ac.uk/best-practice-…
Community 1
Future: exploring alternative models of consent, which may involve moving away from individualised models of consent mhdss.ac.uk/best-practice-…
Community 2
Today: incorporating the views of people with lived experience throughout the course of each project, and providing nuanced and high quality public communication of findings. mhdss.ac.uk/best-practice-…
Community 2
Future: incorporating the views of people with lived experience throughout the course of each project. The principles of open access should be followed by publicly pre-registering studies & providing accessible online information. mhdss.ac.uk/best-practice-…
Community 3
Today: ensuring that #data users understand the underlying data collection tools as well as the socio-cultural context in which studies are designed and findings are disseminated. mhdss.ac.uk/best-practice-…
Community 3
Future: active commitment to reducing the stigma associated with #MentalIllness and its research, and to increasing public understanding of science. mhdss.ac.uk/best-practice-…
Transparency 1
Today: ensuring that researchers have a process in place for responding to withdrawal requests and that they provide transparency on whether, how and when participants can withdraw their #data. mhdss.ac.uk/best-practice-… (2/10)
Transparency 1
Future: appointing a qualified, independent arbiter to arbitrate on complex questions relating to consent and #data withdrawal. mhdss.ac.uk/best-practice-… (3/10)
The second theme in the Best Practice checklist is Anonymity. There are three items in this theme.
Read the full checklist at: mhdss.ac.uk/best-practice-… (1/7) #MHDSScot
Anonymity 1
Today: using de-identified #data, except where identifiable information is essential to beneficial outcomes. In all cases, the health & benefit of people with lived experience should be prioritised. mhdss.ac.uk/best-practice-… (2/7)
Anonymity 1
Future: building plans for de-identified #data collected by researchers, scientists and clinical services to be made available for analysis on an open-access basis. mhdss.ac.uk/best-practice-… (3/7)
Security 1:
Today: #Data should be accessible to a range of people who conduct research, including authorised academics and clinicians. mhdss.ac.uk/best-practice-… (2/10)
Security 1
Future: providing appropriate training and supervision for #data users, and carrying out criminal record checks where relevant. mhdss.ac.uk/best-practice-… (3/10)
Today we officially launch our “Best Practice for Mental Health Data Science” checklist, which was co-created by community experts with a research team. Its purpose is to guide the practice of #data science in #MentalHealth research. View it at: mhdss.ac.uk/best-practice-… (1/3)
Researchers conducting new studies should consider each item on the today checklist. Together as a research community, we should also aim to develop and disseminate new protocols to meet the criteria for best practice in the future. Read checklist at mhdss.ac.uk/best-practice-… (2/3)
To accompany the checklist, we have compiled a list of case studies, which illustrate how different #MentalHealth#data science teams around the UK are delivering excellence in their research practice. mhdss.ac.uk/case-studies 2 (3/3)