A friend of a friend was recently diagnosed with #LongCovid. She is receiving good clinical care but asked for recommendations for where she could find #PeerHealthAdvice. Here's what I wrote back (and yes, I'm looking for feedback & more suggestions!):
The @itsbodypolitic COVID-19 support group is a useful #LongCovid resource: wearebodypolitic.com/covid19
One advantage of @itsbodypolitic is their affiliation with @patientled research for #LongCovid which is tracking disease progression and publishing studies that get attention from the World Health Organization and NIH patientresearchcovid19.com
There are many, many other #LongCovid groups representing different countries, perspectives, expertise, and agendas. Here's my not-comprehensive Twitter list: twitter.com/i/lists/124718…
Twitter list of #LongCovid resources and people living with the condition, curated by @theactualclaire twitter.com/i/lists/131703…
Gentle reminder to reach out to your friends, neighbors, family members and ask if they need help looking online for resources.
Good, up-to-date information is like chicken soup <- said me & my @pewinternet colleagues in 2013 (!) susannahfox.com/2013/09/13/chi…
Good, up-to-date information is like chicken soup <- said me & my @pewinternet colleagues in 2013 (!) susannahfox.com/2013/09/13/chi…
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