Thank you for 6 years of learning & laughter! #TechTonics
Thanks to @VentureValkyrie and @DShaywitz I got to learn from some of the superstars of health & technology - here are some of my favorite shows & guests...
I listened to this #TechTonics interview with @IyaKhalil TWICE, it was that packed with insights: venturevalkyrie.com/new-tech-tonic…
Guests on #TechTonics revealed the twists and turns of their career paths. Don't miss math camp alumna and former Disney dancer @dramyabernethy talking about her lessons learned venturevalkyrie.com/new-tech-tonic…
Deborah Kilpatrick, Co-CEO and Executive Chair of @evidation, leads a master class in navigating the digital health landscape in her #TechTonics interview venturevalkyrie.com/new-tech-tonic…

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More from @SusannahFox

23 Feb
A friend of a friend was recently diagnosed with #LongCovid. She is receiving good clinical care but asked for recommendations for where she could find #PeerHealthAdvice. Here's what I wrote back (and yes, I'm looking for feedback & more suggestions!):
The @itsbodypolitic COVID-19 support group is a useful #LongCovid resource: wearebodypolitic.com/covid19
One advantage of @itsbodypolitic is their affiliation with @patientled research for #LongCovid which is tracking disease progression and publishing studies that get attention from the World Health Organization and NIH patientresearchcovid19.com
Read 6 tweets
24 Aug 20
If it's @zeynep appreciation day, please let me join in! [THREAD]
In 2014, many of us were shocked and dismayed by a cruel and senseless attack on @AdamsLisa, who was living with metastatic breast cancer. @zeynep wrote one of the best take-downs in response: medium.com/technology-and…
It was vintage @zeynep - unsparing in her critique, generous in her explanation of the lessons that people could learn from the episode, loyal to the facts, and deeply humane. So much so that @Sulliview cited it in her column: publiceditor.blogs.nytimes.com/2014/01/13/rea…
Read 4 tweets
23 Aug 20
I’m reflecting on a challenging week as a caregiver for an elder who lives 3 hours away from me. Thanks to luck and preparation, he is OK. [THREAD]
I want to share resources for anyone who has family members living alone -- young, old, and in-between. If we had not done the work to prepare for a crisis, my loved one may not have survived this week.
First: Everyone should make an @atlasofcare Care Map. It will help you visualize the people, love, and services that surround a person. And it will expose holes that need to be filled. atlasofcaregiving.com/caremap/
Read 14 tweets
15 Oct 19
@S4PM Like a swimmer coming to the surface for oxygen I am finally out of my meetings and can say THANK YOU for the wonderful surprise of the award! #S4PM2019
@S4PM Thanks to @ePatientDave and @WheezyNurse for helping me send a message, which I want to share here, too:
#S4PM2019
@S4PM @ePatientDave @WheezyNurse I'm honored by this award and humbled to reflect on the principles that I try to share with the world in my work. Here's a story that I love to tell because it captures one of the key principles: To exist in possibility. #S4PM2019
Read 9 tweets
5 Mar 19
A conference organizer emailed to ask for advice about topics, speakers, and panelists for an event focused on patient-controlled data sharing. Here are some of the ideas I shared (thread)...
The @quantifiedself movement is full of people with ideas about capturing and controlling their own data, then using it to solve problems quantifiedself.com
The @Data4BlackLives community is a creative, critical group of engaged scientists, technologists, activists, and organizers around the use & misuse of data d4bl.org/conference.html
Read 9 tweets
4 Mar 19
Nine out of ten U.S. teens & young adults with moderate to severe depressive symptoms say they have gone online for information on mental health issues (compared to 48% of those without depressive symptoms) bit.ly/2DEqW4G Young people lounge on couches and chairs while looking at their phones and talking with each other.
75% of teens & young adults with moderate to severe depressive symptoms say they have watched, listened to, or read people sharing about their health experiences online (compared to 54% of those with no depressive symptoms) - @Hopelab @WellBeingTrust study
Half of teens & young adults with moderate to severe depressive symptoms have tried to find people online with similar health concerns (compared to 27% of those who report no depressive symptoms) - @Hopelab @WellBeingTrust #PeerHealthAdvice
Read 4 tweets

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