@vincentdonofrio Awesome idea is to send current photos via smartphones to your sib(s) or whoever is hands-on caregiver & around Mom most so they can look at them together & enjoy them. Something your gifted photographer wife can do to help & will ease visits in person or at...
...a distance via 'technology'. The technology may be making it harder on you Mom's vision to recognize you as you are so your voice may also become important. Consider sending her voice notes to listen to (talking, singing old favorite songs, reading her favorite poems, jokes...
...it's another way to reinforce her familiarity with you & using what her brain is less likely to lose, hearing is a lot less impacted by all the brain changes of the various illnesses that cause dementia than sight is. Sight requires a lot more of brain to work than hearing...
...as an actor @vincentdonofrio use all those senses to reach her (you have invaluable training & experience, sense memories, storytelling, improvisation, being in the moment, going with your gut feelings, reading your partner who in this case is your Mom. You have much to try)🤗
The technology might blunt your impact for distance visits but you have great good fortune to know how to work with it, to work around its limitations, to move people. What you can do on a bigger screen you can do on a smaller 1. So adapt & create. Experiment. Much love to you!
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Doing this is (as a very wise hospice doctor advised me not quite 6 years ago) like piloting the Memphis Belle. The plane gets shot up, your crew takes on unpredictable injuries, resources are consumed, difficulties mount. But you've got to pilot it to the best landing you can.
When I learn of someone who is giving care to a person living with #dementia (#Alzheimers is but 1 of a 100+ causes) I tell them it's 1/3 caregiving skills, 1/3 the unique progression of the person living with dementia's illness & 1/3 luck. 2/3rds are not in a caregiver's control
What gets you through years or even decades of this? Curiosity, a willingness to learn, formulating theories or hypotheses, trial & error, flexibility, patience, resilience, some comfort with not being in control, a good sense of humor & sheer tenacity. And adjusting on the fly.
@real_bobcostas You have 280 character limit per tweet but you can thread them. That means that you start typing about whatever you want like eliminating the DL in the AL (& not adding it in the NL) and if you seem to be running out of characters sooner than you expected to you can do this...
@real_bobcostas ...and keep typing your thoughts in another tweet. There are threader or thread unroller applications on here that will create a thread of all your tweets if you just keep replying to each of your tweets.