Discover and read the best of Twitter Threads about #dementia

Most recents (24)

1/ How will our patients with #cognitiveimpairment keep #masks on and/or abide by #socialdistancing rules as stay at home orders are relaxed in the coming year.

#COVID has had me concerned for #socialisolation of my #geriatric patients, but I hadn't had time to think about
2/ the #consequences of the #pandemic on them in regards to the further #isolation that will occur

Today I had a visit w/ an incredible #dementia caregiver, truly a #superwoman. She was tearful sharing her concern about
3/how #socialisolation will continue for her and her husband much longer given he is unable to tolerate a mask on and/or abide by #socialdistancing rules.

I felt ashamed that I hadn't thought about this until now. I didn't have a solution for her and felt horrible.
Read 5 tweets
LONG THREAD For my @projectlincoln friends & other interested parties my #coronavirus story continues-a story that has become both hysterically funny&incredibly hard. Don’t tell me not to “politicize” things – this is real life. For many reasons we have to get Mom & Dad home.../1
85 & 83 yrs old, #parkinsonsdisease #dementia & other conditions. Mom too weak 2 walk. No clear guidelines on how 2 keep them safe. Rented an #RV for a 1200 mi drive hoping to control their exposure. Tried 2 prepare the #RV for all potential needs. 2/
Have you ever put a sheet on a heavy foam mattress that's shoved between the bathroom wall & the kitchen? It’s like trying to put stockings on an elephant.Upside down.Stocked the fridge, have masks&gloves, praying for clear roads.Biggest issue is Mom’s confusion&increased fear /3
Read 15 tweets
When I started working on #scabies outbreaks in #carehomes some of my colleagues thought it was a weird, marginal interest. Now with #COVID19 it's changing. Everyone's realising that infection is a big deal in these #EndOfLife settings. Image
#Carehomes for older people are hard to study. Residents often have #dementia, staff are run off their feet, #consent to research is difficult - brilliant colleagues including @MedVetAcarology sorted this academic.oup.com/phe/article-ab…
Life expectancy on entry to a #carehome for older people is typically 8 months - these settings are largely #LastHomes. Everyone needs a plan for what will and won't happen for the common things likely to make them ill or deteriorate. #CPR probably not part of it
Read 13 tweets
Thinking of taking your loved one out of #longtermcare during the #covid19 ? There is *no easy answer*. But here are few things to think about:
1) Do they need to be transferred (bed / toilet / shower) and how would you do that?
2) Do they need a Hoyer lift? (thread continues)
3) Do you have the medications and expertise to provide the medical care?
4) Are you in danger of infecting other vulnerable members of your household?
5) How will you support them if they have dementia?
6) Do you have knowledge on how to support #incontinence & the products?
7) Who will you call if they get sicker either with #Covid19 or their underlying #health issues?
8) are they going to lose their #placement in the #nursinghome (in Ontario - the answer would be yes)
9) who else in your home needs care?
10) how will you support #socialengagement?
Read 9 tweets
Let's talk about what we can learn from family #caregivers during the #COVID19 pandemic. Can the friends and families who care for someone else teach us something about #resilience and #wellbeing? 1/11
@NA4Caregiving #health #aging
#Caregiving can have a positive impact on our lives - helping us to feel valued as part of a care team, closer to those in our care. When we #care, we can have an improved sense of #purpose & even extend our life expectancy 2/11
@NA4Caregiving #COVID19 #health #aging #advocacy
While we're buying ALL the toilet paper, have we noticed that the #hiddenheroes in our midst -- the #caregivers might have something to offer having been through these same worries before? 3/11
#COVID19 #health #pandemic #caregiving #aging #advocacy @NA4Caregiving
Read 12 tweets
THIS picture of an elderly man in an Epsom supermarket this week mol.im/a/8126263 via @MailOnline....

Professionally and personally I find it harrowing.
You find yourself creating a narrative ...
<thread> #coronavirus #stockpiling #panicbuyinguk 1/10
I don't know this man. I don't know his situation. But I recognise the posture. It's defeated.
As if staring at the list will generate some semblance of order as to what item to look for next. Which is likely to be a futile search in 🇬🇧 #supermarkets at the moment 2/
The #Supermarkets #panicbuying may have you feeling clever as you hoover up newly refilled stock to brag about later🙄
But next time, spare a thought for that elderly person. Perhaps someone with early #dementia whose routine of a little shop is now a nightmare + NO DINNER 3/
Read 10 tweets
1/So there was lots of talk at @AACNursing #AACNdoc20 re: #Nursing #PhD pipeline, getting folx esp prelicensure students ‘excited’ about #nursingscience & the #BStoPhD

I totally revamped our #nursingresearch & #innovation course @UMassAmherst last fall to do just that

Thread ⬇️
2/ I told the Asst Dean when I took it on that regardless of the learning objectives for the course I had only 1 GOAL:

That by the end of the semester, these students would be EXCITED!-or at very least, just a little bit CURIOUS-about a career in #nursingscience & #innovation
3/ A note about context: This was a course of ~85 Accel BS students, taught in an urban campus that is geographically ~40mins drive from main @UMassAmherst campus, in the . The classroom assigned had no windows. Class ran 8am-1030am Weds, before more courses. I say this b/c....
Read 61 tweets
I have a grievance regarding my mom's care during her bout w/#sepsis. #dementia

At the end of October 2019, my husband & I awoke to find mom's breathing labored, & her mumbling to let her sleep. We let her rest. A fever spiked within the hour, & suddenly she became deathly ill.
She was twitching, sweating profusely, in full rigors, & unable to sit up/speak well. She looked TERRIFIED. I thought she had a stroke. Turns out, it was a high fever from an infected gallbladder. She landed in the #ICU. ALL her vitals were jumping around. It was horrible.
She landed in the ER & eventually the ICU. Turns out she had #sepsis from the infected gall bladder. The ICU's 1st step? Changing her meds around INSTANTLY. Specifically they rescinded ALL #opioids abruptly. After over a decade on them, she was thrown into acute withdrawal in ICU
Read 16 tweets
Thread on reasons to increase #testosterone production.

Some of the physical benefits to higher T are as follows:

- Higher energy levels
- Greater muscle mass
- Lower body fat
- Stronger Bones
- Healthier skin
- Faster response times

#MensHealth #fatloss #biohacking
"Internal health" benefits to naturally increasing #testosterone production:

- Reduced risk of stroke
- Increased basal metabolic rate
- Improved blood circulation
- Reduced risk of type 2 diabetes
- Reduced risk of heart problems
- Higher Immune system

#MensHealth #biohacking
The mental health benefits to increasing #testosterone:

- Reduced risk of depression
- Reduced risk of dementia
- Improved memory
- Reduced "brain fog"

#mentalhealth #MensHealth #depression #dementia #biohacking
Read 5 tweets
Despite serious challenges, there’s been plenty of good global health news in 2019 bit.ly/2Q3dKdk
@WHO_Europe @WHOEMRO @WHOAFRO @WHOSEARO @WHOWPRO @pahowho World leaders from 193 countries adopted the broadest-ever set of health commitments.
The political declaration on #HealthForAll aims to ensure that everyone, everywhere can access quality healthcare, and that no one is pushed into poverty by health costs
@WHO_Europe @WHOEMRO @WHOAFRO @WHOSEARO @WHOWPRO @pahowho With WHO support
#Greece🇬🇷
#India🇮🇳
#Kenya🇰🇪
#Philippines🇵🇭
took decisive steps towards expanding health coverage in 2019 bit.ly/2Q3dKdk #HealthForAll #WHOImpact
Read 17 tweets
.@nytimes Ginia Bellafante wrote an essay to say she didn't need post-surgery #opioids, so she didn't take them. That's not news. #Pain patients are being forced off effective, FDA-approved meds, causing #suicide & unnecessary #disability, & OD rates still climb. That's the news.
CDC, FDA, HHS say no one should be forced off #opioids, yet rising # of doctors have practice-wide bans & @nytimes has 1st pg piece by someone who wasn't affected in the LEAST by any of this? People are DYING from untreated #pain & ODs because restricting Rx meds helps no one.
.@nytimes: Bellafante had a CHOICE. She didn't need #opioids, so she didn't take them. I know people who are DEAD & DISABLED because their doctors dumped them off meds they were taking safely for years on the grounds that the same med might harm someone else. That's unacceptable.
Read 8 tweets
This week, I taught the @UCSF IM residents about tools for cognitive assessment in hospitalized patients. For my very first #tweetorial – I’m sharing my pearls with #medtwitter! #FOAM #geriatrics #MedEd 1/
@UCSF Throughout my training, I was taught to use the MoCA (Montreal Cognitive Assessment). But after a few months seeing patients at @VABostonHC, I noticed that most of my patients were getting a score of 21-23. Everyone especially seemed to think this was a hippo. 2/
@UCSF @VABostonHC I wanted to know why! So I looked into the development and validation of the MoCA a bit. Turns out, a cognitive test developed in a mostly white, highly educated, bilingual population (aka the people of Montreal) hasn’t really panned out for use among other groups. 3/
Read 16 tweets
In a new study out in @nature, our researchers make a big step forward in our quest to map the brain. Study findings lay the groundwork to better understand brain disorders & diseases such as #Alzheimers and #schizophrenia.

alleninstitute.org/what-we-do/bra…
This new study describes a high-resolution expansion of our #openscience Allen Mouse Brain Connectivity Atlas-- the most detailed map of connections in a mammalian brain to date. Access via: connectivity.brain-map.org
Using a computational approach, our researchers found that different sections of the cortex and thalamus can be mapped into a hierarchy, much like a company’s org chart – although not all connections followed this hierarchical structure. #brainmapping
Read 5 tweets
98/ #Alzheimers Review #3 of The End of Alzheimers
#VitaminE for AZ?
Not much evidence for it despite what Dale Bredesen writes. meandgin.blogspot.com/2019/10/review…
I would not advise getting the lab test or taking the vitamin.
99/ #Alzheimers Review #4 of The End of Alzheimers
I listed most of the cases sited in Bredesen book.
They are interesting.
meandgin.blogspot.com/2019/10/review…
100/ #Alzheimers Review #5 of the End of Alzheimers
In this critical review from WebMD
the supplement advice seems to be the weakest link of the book
meandgin.blogspot.com/2019/10/review…
Read 30 tweets
I believe that your blood group (an “unstudied” science) can also identify your race. (Not absolute. All that body in-breeding over generations.)

Oh, that “Annunaki” conspiracy theory, Ja; to throw the still clearer thinkers off this trail❓ (Ditto DNA)
So that no one even much notices, that even the Bible identifies Ab-RA-ham as being from Ur: a SUMERIAN❗️ (Doesn’t much fit that ENKI / ENLIL, story, there, does it❓🤔)
I also, don’t really believe in anyone called “Hathor.” So what does that say about the interpretation of all those “hieroglyphics” and finds like the “Rosetta stone❓”
#OccamsRazor: if they stole so much of the other history ...❓🤔
Read 34 tweets
THREAD

Labour’s #NationalCareService
will end the national scandal of our Social Care sector.

Nearly £8bn has been taken from council budgets since 2010.

“It is right to end the care lottery and provide security and dignity in older age.”
1/6
independent.co.uk/news/uk/politi…
“As the first building block in our #NationalCareService, the next Labour government will include personal care free at point of use in England.

Funded not through the Conservatives’ gimmicky insurance schemes, ...
2/6
... but like the NHS and our other essentials, through general taxation.” - @johnmcdonnellMP

Widening free provision would ease the burden on NHS hospitals by preventing delayed discharges, where vulnerable patients cannot leave hospital due to lack of care at home.
3/6
Read 6 tweets
It's time to do another one of my dumb threads, so here goes:

I'm SO GLAD life is so simplistic for you. Guess where I was this morning? At the #PainClinic with my elderly mother who suffers from #dementia. She had an early AM appointment, which is unusual for her. Mom is
more confused earlier in the day. She often has trouble getting to sleep because of pain & the dementia. We had to plan carefully, bathing her, & laying out clothing yesterday. Despite this, mom changed back into her nightgown 3 times, then finally put the gown on OVER her
street clothes. ANYWAY, we arrive ON TIME & the shenanigans begin. The kind receptionist greets us warmly, & I explain that mom is especially confused this AM. The mean receptionist (on a massive power trip) attempts to prevent me from accompanying mom to the appointment. She
Read 15 tweets
The Dude is probably going to die very soon.

The #MemoryCare and our hospice service are managing his discomfort.

We told him that he doesn't have to worry about anything, that he can just rest as much as he needs to.

#Disability #SpoonieChat #Alz

<thread>
Waiting for someone to die is a strange thing, like a trip into a parallel universe, outside of time.

Without Penny our house is quiet.

And this moment is extra silent, like when you wake up to a thick blanket of snow in the middle of the night.
#Disability #SpoonieChat #Alz
I think it's the quiet that wakes me up on those snowy nights. Or is it the brightness of street lights and the moonlight bouncing up off the snow?

But that spell is always broken by shovels scraping, blowers growling, or car doors slamming.
#Disability #SpoonieChat #Alz
Read 66 tweets
Visual symptom documentation of FTD: youtube.com/playlist?list=… and videos showing specific manifestations: d.tube/#!/c/quantazel…
I made a few videos showing his gait abnormalities, facial & hand dystonia here: d.tube/#!/c/quantazel…
Here is a list of his symptoms with linked timestamps: lizmcleanknight.wixsite.com/tftd
Read 57 tweets
#Predictions for the rest of 2019:
1. Trump’s #dementia worsens.
2. Try as he may, Bolton fails to start war with #Iran.
3. Democratic candidates pick up seats in #NJLeg #KYLeg #VALeg #MSLeg & #LALeg.
4. Bots from Iran/Syria/Russia will wreck havoc on the Internet one day by retweeting like a DOS attack.
5. #Brexit will be extended yet again until 2020.
6. Interest rates will spike, but corporate stock buybacks will continue to prop up the stock market until late in the year.
6. Due to Trump’s tariffs on Chinese goods, other countries raise prices opportunistically. #Inflation heats up on durable goods and many other products. (H/t to Art Leonard)
7. School shootings return as usual.
8. No #InfrastructureWeek happens.
Read 18 tweets
My journey👉🏼of FDA interfering w/ my treatment 4 #MultipleSclerosis "WHEN NO OPTION IS NOT AN ACCEPTABLE OPTION!" #Ortho #cardiac #COPD #Autism #Parkinsons #Cancer

cellr4.org/article/390
Bloomberg @business interviews Celltex patients about experience w/ FDA shutting down adult #stemcell study we in. #MS #Arthritisw #Parkinsons #COPD #Ortho
bloomberg.com/news/articles/…
When left with no viable medical options, what do you do?👉🏼We reached out to other "No Option Patients" and formed PATIENTS FOR STEM STEMCELLS
#MS #PARKINSONS #Autism #COPD #arthritis #ortho #cancer #cardiac patientsforstemcells.org/home/
Read 13 tweets
More than 42% of the 9.5 million people diagnosed with cancer from 2000 to 2012 drained their life's assets within two years, according to a study published last year in the American Journal of Medicine. via @annagorman KHN/@NPR n.pr/2XhuqAu
Randall Marley, a computer systems engineer, says he frequently comes home from work to find his wife not feeling well and frustrated about having spent a precious day of her recovery making phone calls to understand and dispute #medicalbills.
Cancer patients are 2.5 times more likely to file for bankruptcy than those without #cancer, and bankruptcy puts them at a higher risk for early death, according to research.
Read 6 tweets
announcing this week's topic - #validity of dementia diagnosis, and how does it relate to use of administrative databases for #dementia research!
1/n bit of basic #epidemiology first: Gold standard measures are used to assess the validity of alternative measurement #epitwitter
2/n BUT in #dementia research there is no clear gold standard --> so the question remains - what do we typically ise as the "gold standard" and what does it say about the alternative =administrative dabatases measure? Stay tuned for more!
Read 14 tweets
1/ In case we needed more reasons for building better cities, the evidence is growing that #mentalhealth is significantly affected by #urbanplanning and #urbandesign ... whether for the better or the worse is up to us ...
2/ Exposure to natural light is linked to better sleep, reduced stress, and better work/school performance bit.ly/2ORgMiw. A well-designed city ensures access to natural light on sidewalks, in public spaces, and inside homes and offices.
3/ Boring streetscapes, with monotonous, feature-less facades and lack of sensory stimulation, can increase sadness, addiction and disease-related stress bit.ly/2OWX5WD
Read 9 tweets

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