1. Has anyone else had problems with @IrregularChoice jewellery? I ❤️ the designs so much, but when my #Kittynaut necklace arrived the clasp came off as soon as I took it out the box! I was annoyed because it was so f* expensive for costume jewellery but thought sod it I’ll just>
2. put it back on myself. Then I wore it once and it came apart, but I loved it & there were no more and so I botched it together, wore it once more & it totally fell apart 🤬 Then I fell for the #IrregularChoice Smile necklace in the sale, second time I wore it, it fell apart >
3. Again, #IrregularChoice jewellery is damn expensive even in the sale so I thought I’d better complain this time but having had such bad health recently with low mood just couldn’t face it... crazily to cheer myself up I very stupidly ordered their Pink Poodle earrings. Yes, >
4. it was a totally stupid thing to do considering my previous experience but #bipolar decisions are not always the best and I indeed regretted my life choices when my #IrregularChoice Pink Poodle earrings arrived, I actually got out of bed at 2.30pm to get them (yay!) opened >
5. the packaged, felt a sense of overwhelming joy as I first got a glimpse of my #IrregularChoice Pink Poodle 🐩 earrings which will go perfectly with my IC Pink Poodle shoes, went to get them out of the package and what the absolute f*ckety f*ck, you have guessed it, the lush >
6. #IrregularChoice Pink Poodle earring in my hand was broken. She was not attached to the actual fixing that you put in the ear. I am so damn pissed off. Yes I am the hugest idiot for not just calling up, returning the first faulty necklace, getting my money back & avoiding >
7. #IrregularChoice jewellery. But I was seduced by #Kittynaut necklace & thought it was an easy fix, esp as they were now sold out. Same with #HappySmile necklace. But I have to draw the line with the heartbreakingly beautiful #PoodleOodle earrings. I can only take so much >
8. So #IrregularChoice as much as I love your shoes (you graced my wedding feet) and I love your jewellery what gives with the terrible, awful craftsmanship & quality? For £20 costume plastic earrings you do not expect them coming out of the packet broken. I could have bought a>
9. pair of shoes with the cost of those three beautiful but now useless pieces of #IrregularChoice plastic. At some point maybe I’ll get my pliers out and fix everything myself but I’ve been struggling to do basics recently like getting out of bed & getting dressed thanks to the>
10.bipolary low that led to the purchase decisions in the first place. So as I just don’t feel up to picking up the phone, finding my email invoices to make a complaint, please accept this as my formal complaint for my terrible quality albeit gorgeous #IrregularChoice jewellery😞
#EpilepsyTwitter, I have a question for you! Does anyone ever experience a feeling like an electrical pulse, or what can feel like an electrical jolt, but that isn’t accompanied by a jerk? Not a myoclonic jerk you would normally associate with #epilepsy, but a similar feeling >
> without the jerk itself, and no micro loss of consciousness. I usually feel it in my forearms or legs, but sometimes in my lower back. I described it to the nurse who runs the #epilepsy clinic, she hadn’t heard of it before. I think she is wondering if it it not epileptic, >
> but more anxiety based. As I’ve been writing this Tweet I’ve had a small one in the top of my arm and in the side of my back. Sometimes it can be accompanied by feeling sleepy. No loss of consciousness though. If I had to describe what I thought it was, it feels like >
Since I’ve been doing these, I get messages from ppl ‘off the record’ who either need to reach out for support or who reach out to provide support. I’ve found the hardest thing is being treated with such different levels of respect in different contexts. Does anyone else >
> experience this? What I’ve found is that as I’ve had expertise recognised and respected in some contexts, the contexts in which it is disrespected somehow go from being upsetting to unbearable. As you raise the fact that what you are experiencing is discriminatory & >
> disrespectful, and you have it ignored time and time again, you go from being able to give the benefit of the doubt, of being able to put what is happening down to ignorance, to starting to realise that it can no longer be ignorance. So what is it? Is it maliciousness? >
This reminds me of the time I was part of an art exhibition in Schloss Hartheim in Austria. The palace had been used as a gas chamber in by Nazis to murder disabled people & ppl with learning difficulties, so it was now an institute to take care of ppl with learning difficulties>
> The palace was beautiful but such an ugly, evil thing had been done there. The downstairs was a museum that remembered what had been done. Upstairs was the art gallery, where work of disabled artists was shown. There was a custom built, beautiful building next door, where >
> residents lived, and appeared to have a much happier life in comfortable surroundings where they were free to create. The ugliness of the past was remembered though, alongside the progress of the future, a memorial to prevent the same thing happening again. >
Discrimination is everywhere - sexism, homophobia, racism. I tweet a lot about the discrimination faced by #LivedExperiencePractitioners#LXPs who openly use their lived experience of mental health in their work. Do we need new legislation to protect us all from #discrimination?>
> Ppl who follow me/know me in real life know my health has been decimated over my experience of trying to address mental health discrimination. Did you know there is no legislation against systemic discrimination? Well, that’s what my union told me. It’s also almost impossible >
> to win a personal discrimination case, so they don’t give you access to a lawyer. Even stress claims are hard to win, so you rarely get union help either, including legal representation. I’ve lost my driving license, had seizures, take medicine that has left me with blurred >
Yikes. I’ve had a bit of a shitty night. Woke up from a dream where I was sobbing - proper distressed, inconsolable body sobs - about work. I was living in a tiny cramped flat with my deceased family members, with no room. People from work were coming in and out & I felt >
> ashamed and I was trying to say that I used to live on my own in a bigger flat and not share a bedroom with my siblings & live with my Mum but I couldn’t. There was a new manager who came to see me and somehow bizarrely ended up in my bedroom waiting for me and it felt >
> intrusive & shaming because she saw my poor living conditions and I knew she would have been told by management that I was unstable/troublemaker/no good/rubbish. So then I cried and cried and cried and cried (to show how stable I was 🤣) and then I woke up 😳😳😳 >
Is it bad that I feel my blood boil when I see equality drives that completely ignore the inequality that people in the #LivedExperienceProfessions face in the mental health organisations they work in. Imagine being in the intersection of being a Black, non-binary LXP? Your >
> experience of discrimination won’t even be registered. It won’t make the equality drive photos. Mad people, esp those who deign to be open about ourselves & champion Mad knowledge in Mental Health settings are actively held back, treated differently. Even LXPs with White Male >
> privilege are treated worse than their colleagues, paid less, exploited with no career opportunities. So heaven help our openly #Mad#LXP colleagues of colour, who are LGBTQ, with coexisting health conditions. Is it any coincidence that myself and my colleague - both with >