Day 367 of living with #LongCovid & 44 days since 1st dose of covid vaccine
Despite <3 hours sleep, energy was high today (but still not as high as how I felt just before the 1st dose)
Fasted for 15.5 hours overnight - was very manageable 1/n
Had my pure tone audiogram & tympanometry this morning. Now waiting for ENT to review. No dizziness today but ENT said it would come and go. Tinnitus persists though, although it doesn't stress me out 2/n
I also decided to pay for private blood tests today. I want to get an idea of my levels now that I've started intermittent fasting, and will repeat the blood tests in 3 months time to see what difference the regime makes to my body 3/n
Wasn't planning to walk much today after my medical appointment, but my energy remained high and I strolled around London (not in one go, but with rest breaks), feeling like a tourist and it was therapeutic to have enough energy to walk 2.6 miles! 4/n
I did need a 2 hour nap in the late afternoon though and the good thing is that it refreshed me. So many days have passed where sleeping/napping would not leave me feeling refreshed 5/n
Incredible to look at my stats for the day and take in my total activity today including all my activity up and down the stairs at home (I have a lot of stairs) - planning to take it easy tomorrow 6/n
The resting heart rate and HRV measured by my Oura ring from last night's sleep continue to be way better than my average stats during Long Covid, so it motivates me to keep doing the intermittent fasting as it seems to be having an impact 7/n
Just because I didn't have brain fog or extreme fatigue today doesn't mean my Long Covid has disappeared.
Personally, I'm going to consider myself "recovered" once I've had 90 days of feeling completely normal without any symptoms ππ½
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I think part of the reason why so many people (including some clinicians) think #LongCovid is either being exaggerated or not a real illness, is because the βwordsβ used to describe the symptoms donβt actually reflect the experience of the illness β Allow me to explain 1/n
Many are hearing reported symptoms like βfatigueβ or βheadacheβ or βbrain fogβ and thinking, well everyone feels a bit tired during lockdown or everyone gets headaches/has problems concentrating from time to time, so how can this be an illness? 2/n
I mean the pandemic has been tough for everyone, right? So maybe the "reported generic sounding symptoms" of Long Covid are merely pandemic related distress that everyone is suffering from? I can see why some might think that medscape.com/viewarticle/94β¦ 3/n
Day 221 of #LongCovid and I haven't been able to post updates on here for a few days as my relapse was really debilitating
Here's a thread on relapses, resilience, and dreams #covid19 1/n
On Thursday, I was incapacitated the entire day, body and brain in total and complete shutdown. Was unable to leave the bed. Brain was unable to do anything. This has happened before 2/n
The symptoms kick in around 30 mins after waking up and start to ease after 10pm at night, but essentially during the day, they are there and are constant 3/n
I really find some of the reactions from strangers, aquaintances and even good friends to be quite incredible, when I tell them that I've had #LongCovid for over 6 months - here's a thread with what people have said to me #covid19 1/n
None of these people who commented on my Long Covid experience have any medical or scientific training 2/n
Are you sure you don't have any underlying health conditions? (I don't but they seem to think that only people with underlying health conditions are at risk) 3/n
#LongCovid can impair your ability to conduct the seemingly simplest of tasks such as "thinking" about what to make for lunch/dinner etc. - Let me explain on this short thread 1/n
My various types of brain-aches this week were so bad, that when hungry and faced with "thinking" about what to eat at home, just "thinking" about what type of bread to use with a sandwich or ingredients for a salad, my brain would say "STOP thinking, you're hurting me!" 2/n
So to minimise the exertion of "thinking" at meal-times, I would either just order something from a restaurant using a food delivery app, reach for something quick and easy, like a ready made quiche or ask a family member to make something for me 3/n
Day 172 of #longcovid and after many days of awful brain-ache and fatigue, this morning feels very different (in terms of mental clarity and complete absence of fatigue) β so hereβs a thread about resilience during my near 6 month journey so far 1/n
Iβm an optimist by nature with a positive outlook on life by default, but this unpredictable rollercoaster of an illness has been very challenging, especially given itβs a new virus and everyone is unsure of how to deal with it, even the doctors that I have consulted 2/n
I felt so alone at symptom onset, I thought I was the only patient living with these odd symptoms, until I found a few Twitter friends also on their #LongCovid journey & then I discovered online patient groups, which proved so useful early on, to find others to relate to 3/n
Just got my latest super advanced health wearable, the #FitbitSENSE - it's unique in having an Electro Dermal Activity (EDA) sensor - I noticed the packaging mentions "stress management", "stress less" and "stress tracking" and "heart health" and an ECG app #DigitalHealth 1/n
Oh ECG capability on another smartwatch. Oh wait, I just read the small print on the side of the box. Let me see if it's going to be available in the UK 2/n
Oh, according to Fitbit's website, the ECG app will become available in the UK and a bunch of other countries from next month, October 2020 fitbit.com/global/us/tech⦠3/n