Honestly and with all due respect, if you think my work is amazing, then i've failed to teach you anything. This is one of the most dehumanising, loaded and negative questionnaires i've read in ages.
When one of the first questions you ask is on 'severity' (which is not a clinical label nor has ANY clinical value), you've already set the tone because what follows is just disgusting
Here we are establishing the negativity in our relationships with our children, because they aren't who we wanted them to be. How dare they.
We then establish how much the child must hate the parent, it does things purposefully just to make you feel bad, its goal in life is to ruin yours
And then we further that with what hard work they are. How demanding they are of our time. "More of a problem than i expected."
I didn't even bother screenshotting the rest, because it asked about how depressed i am, how much i drink, what self medicating i do just to survive life with this monster.
This is an excellent example of weaving a narrative based on bias.
Increased "Severity" = increase in shit life.
How this passed an ethics board i don't know (@UniofGreenwich you might want to look at this)
'Research' like this rolls the clock back 20 years or more and has no place in the modern Autism narrative.
And what scares me most is the number if parents who blithely respond to and share stuff like this because they feel like they are *helping*
As a parent, believe me, i know, life can be fucking hard and fucking lonely, but crap like this is making your life harder and lonelier. Its making your child's life harder and lonelier.
This is why stigma and marginalisation occurs and this is mostly what kills us.
And also, if you want to use someone's platform and lie about what you know and think of them.
At least follow them first:
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1. Oh was yesterday #AutismAwarenessDay? Dang. I missed it. Instead I stayed off of social Media and spent a lovely day with my #ActuallyAutistic family not waving jigsaw pieces around, turning blue or spreading misinformation around that makes money for charities.
2. Later on I did a 3hr workshop on #AutisticMasking to 400 lovely Danish people with @DrAmyPearson. I missed #AutismAwarenessDay yet still somehow managed to pass on a shitload of useful & practical #Autism knowledge to a shitload of people
3. Its strangely like there's no need to have #AutismAwarenessDay, #AutismAwarenessWeek, or #AutismAwarenessMonth because for many Autistic people every day is, week and month of the year where we put out immensities of useful & productive #Autism information in various forms.
Dehumanising Autistics is nothing new, it's embedded in societal consciousness going back decades to those like Lovaas who felt Autistic people were empty shells waiting to be filled with 'normalcy'. That's perpetuated with the burden narrative and neuronormative standards.