1. The stress that ‘co-production’ takes when power is unequal is highly distressing for the party with lesser power in the partnership, particularly over long periods of time where the power imbalance is sustained and there is no action to remedy this. When power is abused by >
2. ensuring that decisions about LX practice or services can never be made by the Lived Experience Professional in the room, that you take those decisions outside of the room, this causes distress and harm. The harm caused by the abuse is used an example of why #LXPs are >
3. described as ‘vulnerable’, or prone to going off sick. Let’s just be very plain speaking about this - LXPs aren’t vulnerable. They are warriors who have been through wars. What they are is people who already have battle wounds, coming into workplaces that will particularly >
4. target them for their LXP label. After sustained bullying through exclusion, micro aggressions, blatant discrimination that nobody sees - it’s the gaslighting and denial that gets you - yes, of course your #LXP will fuck off sick. This will be your moment to co-produce the >
5. shit out of everything while they are away. Everything that moved at a snails pace before and that your #LXP broke their heart trying to get started will be rushed through like a steam train. Strangely, that will make your #LXP sad and add to their distress and their time off>
6. Everyone will notice how fragile and sickly and ill the person is. Nobody seems to link that everything that the #LXP was trying to do is being sabotaged and that maybe this is why they are sad. Or... maybe they do. Either way, it appears to serve the party with more power to>
7. retain this power and just keep the status quo. To do this, the #LXP needs to be ejected - either excluded within the workplace, or physically ejected. This is classic group theory, yo. Funny how the shrinks are happy to apply the theory to the mentals yet not so happy to >
8. apply it to their damn selves when espousing these theories. This may also sound very specific and like I’m having a total bitch. Yes I have totally experienced this. However, this is a universal experience that most LXPs will experience to varying extents. >
9. Because #LXPs are usually alone & isolated in their work, they will usually feel that the problem lies with them. That this is their fault. That they are shit at their job. They can’t cope. They are too ‘ill’. Nah. You’re too bullied, abused, excluded, gaslighted. Of course >
10. you’re fucking ill. The first stage of prevention comes with being honest about appropriation of the word co-production. You wanna use that word? Fucking earn it. Employ is to run that show. We’ll ensure it’s coproduction. As long as staff nurse Karen is in as a nice little >
11. project before she retires there will be no change. We need one of us leading the gig. Or at lead CO-LEADing it. Otherwise, call it what it is. Take a look at the ladder if participation. Choose the appropriate level, be it tokenism or manipulation. Just let us know what >
12. we’re really in for, so that there’s no confusion and we’ve been able to make an informed decision about whether we will accept working in a place where abusive practice, discrimination and exploitation is something we are willing to tolerate.
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More from @tamar_whyte

8 Apr
#EpilepsyTwitter, I have a question for you! Does anyone ever experience a feeling like an electrical pulse, or what can feel like an electrical jolt, but that isn’t accompanied by a jerk? Not a myoclonic jerk you would normally associate with #epilepsy, but a similar feeling >
> without the jerk itself, and no micro loss of consciousness. I usually feel it in my forearms or legs, but sometimes in my lower back. I described it to the nurse who runs the #epilepsy clinic, she hadn’t heard of it before. I think she is wondering if it it not epileptic, >
> but more anxiety based. As I’ve been writing this Tweet I’ve had a small one in the top of my arm and in the side of my back. Sometimes it can be accompanied by feeling sleepy. No loss of consciousness though. If I had to describe what I thought it was, it feels like >
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7 Apr
1. Has anyone else had problems with @IrregularChoice jewellery? I ❤️ the designs so much, but when my #Kittynaut necklace arrived the clasp came off as soon as I took it out the box! I was annoyed because it was so f* expensive for costume jewellery but thought sod it I’ll just> Image
2. put it back on myself. Then I wore it once and it came apart, but I loved it & there were no more and so I botched it together, wore it once more & it totally fell apart 🤬 Then I fell for the #IrregularChoice Smile necklace in the sale, second time I wore it, it fell apart > Image
3. Again, #IrregularChoice jewellery is damn expensive even in the sale so I thought I’d better complain this time but having had such bad health recently with low mood just couldn’t face it... crazily to cheer myself up I very stupidly ordered their Pink Poodle earrings. Yes, > Image
Read 11 tweets
16 Feb
Since I’ve been doing these, I get messages from ppl ‘off the record’ who either need to reach out for support or who reach out to provide support. I’ve found the hardest thing is being treated with such different levels of respect in different contexts. Does anyone else >
> experience this? What I’ve found is that as I’ve had expertise recognised and respected in some contexts, the contexts in which it is disrespected somehow go from being upsetting to unbearable. As you raise the fact that what you are experiencing is discriminatory & >
> disrespectful, and you have it ignored time and time again, you go from being able to give the benefit of the doubt, of being able to put what is happening down to ignorance, to starting to realise that it can no longer be ignorance. So what is it? Is it maliciousness? >
Read 16 tweets
14 Feb
This reminds me of the time I was part of an art exhibition in Schloss Hartheim in Austria. The palace had been used as a gas chamber in by Nazis to murder disabled people & ppl with learning difficulties, so it was now an institute to take care of ppl with learning difficulties>
> The palace was beautiful but such an ugly, evil thing had been done there. The downstairs was a museum that remembered what had been done. Upstairs was the art gallery, where work of disabled artists was shown. There was a custom built, beautiful building next door, where >
> residents lived, and appeared to have a much happier life in comfortable surroundings where they were free to create. The ugliness of the past was remembered though, alongside the progress of the future, a memorial to prevent the same thing happening again. >
Read 5 tweets
3 Jan
Discrimination is everywhere - sexism, homophobia, racism. I tweet a lot about the discrimination faced by #LivedExperiencePractitioners #LXPs who openly use their lived experience of mental health in their work. Do we need new legislation to protect us all from #discrimination?>
> Ppl who follow me/know me in real life know my health has been decimated over my experience of trying to address mental health discrimination. Did you know there is no legislation against systemic discrimination? Well, that’s what my union told me. It’s also almost impossible >
> to win a personal discrimination case, so they don’t give you access to a lawyer. Even stress claims are hard to win, so you rarely get union help either, including legal representation. I’ve lost my driving license, had seizures, take medicine that has left me with blurred >
Read 24 tweets
31 Dec 20
Yikes. I’ve had a bit of a shitty night. Woke up from a dream where I was sobbing - proper distressed, inconsolable body sobs - about work. I was living in a tiny cramped flat with my deceased family members, with no room. People from work were coming in and out & I felt >
> ashamed and I was trying to say that I used to live on my own in a bigger flat and not share a bedroom with my siblings & live with my Mum but I couldn’t. There was a new manager who came to see me and somehow bizarrely ended up in my bedroom waiting for me and it felt >
> intrusive & shaming because she saw my poor living conditions and I knew she would have been told by management that I was unstable/troublemaker/no good/rubbish. So then I cried and cried and cried and cried (to show how stable I was 🤣) and then I woke up 😳😳😳 >
Read 35 tweets

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