@Dmdav1 @KristenBott @Allison66746425 Good question. Depends on which interpretation of PDA, what time in the literature & who you ask...
@Dmdav1 @KristenBott @Allison66746425 The PDA literature acknowledges in 4 different places manipulative behaviour in PDA makes it problematic viewing PDA as an ASD. Some who view PDA to be a form of autism argue PDA behaviour is "social strategic"...
@Dmdav1 @KristenBott @Allison66746425 While adopting an extremely narrow view of what PDA is, they are arguing that the "manipulative behaviours" are scripted and from a limited range of behaviours that are responding to anxiety. These behaviours lack the sophistication seen with callous traits.
@Dmdav1 @KristenBott @Allison66746425 Although, I disagree for many reasons. For one, PDA is blatantly not autism (I can go into great detail why). PDA is seen in non-autistic persons. Most PDA tools, including important ones view PDA social demand avoidance as being manipulative in nature.
@Dmdav1 @KristenBott @Allison66746425 Also one key author arguing that such behaviours are "socially strategic" was arguing they were manipulative for several years, before changing it to "socially strategic" based on poor quality circular research.
@Dmdav1 @KristenBott @Allison66746425 There is essentially no good quality research to say PDA social demand avoidance behaviours are "socially strategic".
@Dmdav1 @KristenBott @Allison66746425 Also, most PDA predicted populations are based on Newson's descriptions which view PDA to be manipulative in nature, so no point changing that view. Otherwise you are testing "PDA is an ASD" interpretation, and not the actual prediction been made by persons.
@Dmdav1 @KristenBott @Allison66746425 Also, PDA was not theorised to have Theory of Mind of issues & this is supported by at least one study.
@Dmdav1 @KristenBott @Allison66746425 It is argued the social demand avoidance is manipulative, due to the lengths, effort and how much time persons with PDA go to to avoid demands/ requests of them. It is arguably their defining feature (one many who know would say applies to me).
@Dmdav1 @KristenBott @Allison66746425 Most/ all PDA tools contain items that refer to a person doing actions because they want to do it. Most tools contain items that require a person to have intent to commit the behaviour, such as harrasment.
@Dmdav1 @KristenBott @Allison66746425 Also, some argue "socially strategic" is kinder & more empathetic than manipulative. Yet, said persons refuse to change PDA's name, while often expressing dislike with "Pathological Demand Avoidance" name!

Who has a need to control whom? @milton_damian
@Dmdav1 @KristenBott @Allison66746425 @milton_damian Oh also, examples of social demand avoidance behaviours in literature are actually sophisticated in nature, like manipulating games/ situations etc.
@Dmdav1 @KristenBott @Allison66746425 @milton_damian I think this is all the reasons for "socially strategic" vs "socially manipulative", off the top of my head.
@Dmdav1 @KristenBott @Allison66746425 @milton_damian For the record, this includes one author expressing "Pathological" descriptor as unhelpful/ derogatory. Another author not naming PDA in a questionnaire booklet to prevent PDA's name putting off potential participants.
@Dmdav1 @KristenBott @Allison66746425 @milton_damian @threadreaderapp I am wondering if the debate over "strategic"/ "manipulative" is an arbitrary line in the sand, that both descriptors can be applicable to PDA social demand avoidance.

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More from @Richard_Autism

22 May
You know it is dodgy viewing PDA to be an ASD, when even its supposedly "leading" experts acknowledge interest in PDA has outstripped its research...

Although, I am wondering how reputable they are as information sources. Sigh.
"In the UK, interest in PDA has increased rapidly over the last ten years, substantially outpacing research on the topic."
Considering: researchers & clinicians ethically should not predispose one outlook over another; conflicting views on PDA & divergent research results on PDA, which undermine PDA is an ASD. "Dodgy" viewing PDA as an ASD is bit of an understatement.
Read 84 tweets
16 May
@KatyBenson20 It is hard to take much from significant swathes of PDA literature. I have learnt to not trust the accuracy or validity of much of what is said by certain "leading" experts on PDA.
@KatyBenson20 My reservations about the quality of much of what is said about PDA, means that the axiology behind my PDA research is different to much of that in currently in PDA literature. Basically, I am skepitcal of anything that assumes "PDA is an ASD".
@KatyBenson20 I can give many examples to justify my skepticism of certain experts scholarship.
Read 28 tweets
16 May
I guess this is a bunch of people for me to check COIs on over PDA.
pdasociety.org.uk/wp-content/upl…
And yes, I do think this is the standard being applied to PDA. There is no consensus over what it is, how to diagnose it. There multiple schools of thought, divergent behaviour profiles & diagnostic thresholds.
rationaldemandavoidance.com/2021/04/30/a-d…
If we are striving to raise standards of poor quality autism research, such as reporting of COIs, then it is applicable to PDA, considering its contested, controversial status.
Read 4 tweets
14 May
Something that has been on my mind recently, is that by arguing for a clinical need for PDA based on protecting certain autistic persons from reinforcement based approaches, actually establishes a clinical need for PDA in non-autistic persons too.
The reasons for this is simple. The SEND system is needs based, not diagnostic labels. So by (in their view) establishing PDA is needed for certain strategies, to prevent harm to certain individuals from reinforcement-based approaches...
... under the SEND system that reason would also be applicable to non-autistic persons with PDA. Which are in the academic literature. Remember Newson's cohort has non-autistic persons in it & she argued they all needed same strategies...
Read 9 tweets
12 May
@realdoll03 There are many issues with it.

I think it never should have been included in autism to begin with. I think it is demonstrable nonsense, that is harmful and discriminatory to view PDA as an ASD. A huge issue, is a lack adequate engagement with Newson's work.
@realdoll03 I have seen many mental contortions to view PDA as an ASD. Like Pervasive Developmental Disorders are not practiced anymore only ASDs do. Issue there is that Newson's PDDs, are NOT the same as DSM-4 ones.
@realdoll03 PDA not conforming to DSM-4 PDDs understandings were not considered by the committee that set the DSM-5 autism criteria. How PDA has to be autism as it social communication issues and RRBIs.
Read 12 tweets
11 May
Reflecting how my journey on PDA, has gone from "rebranded autism" in 2017, next a pseudo syndrome resulting from interaction of autism & various comorbids. To it is a common Disorder.

Anyone want to take bets, I will view it as a rare autism subtype (joke)?
I should point, I can see why people think PDA is rebranded autism/ a pseudo syndrome resulting from interaction of autism and various comorbids.
I can see why people think PDA is a rare autism subtype. I think that outlook is not cogent, nor particularly scientific nor ethical. I can go into detail why I hold that view.
Read 64 tweets

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