#MedicalTwitter, this is not OK.
Please look at this story, & the responses, to see the uphill struggle we have to talk with compassion about CPR to people who are sick, frightened & not accompanied by their loved ones during this time of covid.
Some comments:
1/
Firstly, I have been the doctor whose words were relayed by a v sick patient to a relative, & what the relative heard was not what I said. But it WAS what the patient/family understood from what I said, so I was responsible for that miscommunication.
Communication matters.
2/
CPR isn't really 'treatment.' It's a bridge to treatment in an emergency. Sometimes it works. But it's not like on TV.
Most people don't know that, so how we explain it really matters.

3/
When we are communicating about CPR, there are different possible scenarios. The public isn't always clear about them, so we need to be very clear indeed.
CPR is only ever going to work when the heart stops first, & when the patient's other organs are relatively healthy.
4/
It isn't ageist to talk about lower survival in older people, it's just the truth.
Just like it's the truth that people of any age with severe & already life-limiting illness are unlikely to benefit.
So every patient always requires individual, personalised assessment.
5/
After assessment, we have a duty to protect patients from harm. For some, we escalate medical interventions to protect (if we can) from dying.
For those who cannot survive, our duty is to protect from harmful, unhelpful treatments.
This needs clear, compassionate communication.
6
So how do we communicate with clarity & kindness?
By being clear in our own mind first, & walking patient/family through the assessment.
CPR decisions fall into three scenarios.
Here's a summary slide - we'll consider each in turn.
7/
Scenario 1: person in full health (includes people living with stable physical disability, learning disability, mental health problems) whose heart stops unexpectedly.
Survival chance 10-20% if CPR by trained bystander starts immediately.
8/
Scenario 1: CPR might succeed. The consent question is 'Would you accept CPR if it was medically necessary?' They have a right to refuse: then a DNACPR statement is needed to respect their decision. They may already have an ADRT refusing CPR.
It's their right to say no.
9/
Scenario 2: The person's organs are already struggling, so if the heart stops that would be the final blow: CPR would not be medically possible.
Futile CPR should not be started, & this needs to be communicated with gentle clarity: the patient has a right to know.
10/
Scenario 3: the person is dying. Instead of their heart stopping first, it stops last at the end of the gradual process of dying. CPR will not reverse this. It is as inappropriate as surgery.
This is not a 'consent' conversation. Instead...
11/
A DNACPR decision made on the grounds of medical futility requires a tender conversation to explain that death is approaching (months, days, hours) & that we will not mistake death for a cardiac arrest. We will protect from CPR via DNACPR statement.
12/
The doctor in the original tweet did not communicate well. It's not clear whether she was too tired, too inexperienced, too busy, not sufficiently trained: it's unlikely she was simply unkind. Whatever happened, that is a system failure. She should not shoulder all the blame.
13/
In the end, it's all about communication.
Being clear in your mind about the place of CPR.
Being clear about consent to treat: it's never consent NOT to treat.
Being clear by acquiring, practising, reviewing communication skills.
Being clear about what we have communicated...
14/
At the end of the conversation, asking the person to tell us how they will explain to their loved ones is a good way to help them prepare for that task and to check there are no misunderstandings.
Patients' misunderstanding of medical info is not their fault, but ours.

15/
Better public understanding of what CPR is, its limitations, & people's rights to say no but not to demand futile treatments would make these conversations less distressing for our patients.
This could be taught whenever people are taught CPR, including in schools.
16/
It's time for a national information campaign using TV dramas, media articles, social media campaigns, etc. This should be government led as sought by @katemasters67 & @ShaunLintern.
The public has a right to better information to support such difficult medical discussions.
17/17

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More from @drkathrynmannix

22 Apr
How should we help teenagers to understand and accompany a dying relative?
Here are some ideas and suggestions: I know the experts on Twitter will come in to support @healinghappily in her quest to be as ready as she can be.

A thread.
First: there's no 'right answer.' Your teens are individuals, and what suits one may not sit well for another.
Good support is a mixture of access to good information, lots of listening, & giving them choices.
Support includes helping them establish their own support network & self-care choices. Your own Mum is dying: you may not always feel able to be their sole support.

1. What can they do to keep themselves well? Hobbies, exercise, confidantes, good food: discuss & plan with them.
Read 20 tweets
26 Aug 20
Deathbeds. Some thoughts. A thread.

Most of us haven't seen somebody die in real life. We get our inner pictures from TV dramas, cinema screens, media stories. We've had more of those media stories than usual during Covid19. But we haven't been there for real.

1/n
Worse: for some of us, our beloved person died and we weren't allowed to be there. We have pictures in our minds of how it might have been, but no way of knowing for sure.

2/
Some of us work in health or social care. We're more likely to have been alongside dying people. But unless we recognise the process, then we may not understand what we are witnessing.

Some experienced workers aren't aware that there are similarities between most deaths.

3/
Read 25 tweets
15 May 20
Thread:
Looking at the future, as you grow older or your health deteriorates:
🌈 What's your best hope?
😱 What's your worst dread?
👣 What steps can you take now that will help to ensure the future is closer to 🌈 than to 😱?
1/
Who will you need to talk to as you think about what steps to take? e.g.
Family &friends: people who have your wellbeing in mind.
Medical advisers: people you trust to give you truthful information.
Rights advisers: people to ensure your concerns receive a fair consideration.
2/
What do you need to find out?
🧭 The likely direction of your future health. How will it affect your independence, mobility, thinking, ability to do the things you love?
🧭 Any predictable health emergencies? Options for how these can be dealt with.
3/
Read 17 tweets
9 May 20
Before #COVID19 I tended to think bereavement support was not integral to palliative care, fearing we might 'medicalise' grief.
During a period when family life is disrupted & beloveds are separated at death, prioritising bereavement care is essential - it starts before death.
1/
Making sense of a death in our bereavement requires us to be able to understand the story of the dying.
This is why people bereaved by disasters need enquiries & information. They need to construct the narrative of their dying loved one's final days, hours, minutes.
2/
Making sense of our beloved's final part of living helps us to complete their story.
Those 9/11 messages from the Twin Towers & UA flight 93 gave us insights into the experience of those people as they faced death.
Their calls mention fear & sorrow, yet also love & thanks.
3/
Read 7 tweets
15 Mar 20
This is the time to have those tender conversations.
Not out of panic.
Out of love.
If you want to understand each other's wishes, here are a few questions to ponder together.
There are no right answers.
The only wrong answer is silence.
Here's @doctor_oxford's calming but important discussion of why we need to talk about dying:
theguardian.com/world/2020/mar…
We're all trying to minimise the risk of our most vulnerable citizens contracting the virus.
Let's all minimise the risk that any of us who get very sick end up with intrusive treatments that we didn't really want.
Some of us already know we don't want to go to hospital.
Read 13 tweets
27 Feb 20
What do we need to know now, to protect the wishes of our loved ones at the end of their lives?
Great question @tdeweymarn @DrMariMcV
I feel a thread coming on...
Before you start, remember this conversation is theirs as much as yours:
- invite, don't compel.
- give them options about when to have this conversation, where to have it, how long to give it
-have a plan for after the chat: cuppa, favourite TV show, walk, hobby etc
There are some things that seem huge, but can be surprisingly simple.
There are some apparently trivial things that can assume huge proportions later on.
These can vary from family to family.
If it feels delicate, ask if it's ok to continue.
Read 21 tweets

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