@SusieBass Being honest, I do not where to begin. The issues with much of PDA narrative is systemic.
As I twitted earlier today are many good reasons for not even viewing PDA as a form of autism. Much/ most of critique of PDA seems valid.
@SusieBass I mean if literature does not justify viewing PDA as an ASD in 2011. The scientific and ethical response, is not to pursue an agenda that tries to create evidence base to view PDA as an ASD. Just so much of it is bonkers.
@SusieBass Another example. So PDA is an ASD supporters often compare growth in PDA, vs historic growth of autism, commenting on comparable milestones. To me comparing Autism's history to PDA is a silly thing to do if you want PDA to be an ASD.
@SusieBass To it just reinforces the case for PDA to not be autism. Autism use to be a form schizophrenia, and is now it's distinct disorder. Likewise, autism use to rare and is fairly common.
@SusieBass PDA use to be a "Pervasive Developmental Coding Disorder" (Newson 1989; 1996), then some suggested it is an ASD/ rebranded autism/ female autism. Some view PDA to be a rare ASD subgroup. Some think PDA is a common new type of disorder.
@SusieBass Obviously, some people like @utafrith think autism should narrow, like how ASD was originally portrayed. Nowadays people just accept those with Asperger's are autistic as the core features of it are indistinguishable with "Autistic Disorder"/ "Kanner's autism
@SusieBass@utafrith We also accept that often clinician's bias, prevents those not conforming to autism stereotypes, from receiving an autism diagnosis. For instance, autism in females is just as valid as autism in males, despite the male bias in prevalence rates.
@SusieBass@utafrith PDA is still PDA at lower diagnostic threshold's despite what some "PDA is an ASD" supporters would contest. If the fundamental features are present, using the same core processes; it is still PDA.
@SusieBass@utafrith How autism took a "spectrum" nature, with broader clinical accounts, "lower" support needs & vastly higher prevalence rates; can easily happen to PDA. Comparing autism's history to PDA, is a good way to demonstrate this & undermines PDA is an ASD narrative
One that has struck me over the last couple of days is the of consideration over what demands cause PDA behaviour in Newson's original research. She just seems to assume that ALL demands trigger avoidance behaviour without collecting data to prove it.
There are just generic statements, like "obsessive" demand avoidance, & "ordinary" demands. Even looking at tools derived from Newson's research do not actually tell us what specific demands cause avoidance behaviours, just a few generic words.
There are plenty of descriptions of the avoidance behaviours, but very little on the actual demands. Even then items covering this in derived tools, indicate it is about non-compliance & other "problematic" behaviours person with PDA expresses.
@milton_damian Your next steps forward, here in this 2016 talk (hour, 14 minutes ish). About , respecting & valuing different forms of expertise, does it include psychologists respecting opinions from researchers & non-ASD clinicians?
Purely, asking to me, the answer should be yes.
I am watching the video again, as a prominent "PDA is an ASD" supporter told me PDA is scientifically proven to be autism. So reminded about your comment about ABA being scientifically proven...
I.e., that is not how scientific research works...
You know it is dodgy viewing PDA to be an ASD, when even its supposedly "leading" experts acknowledge interest in PDA has outstripped its research...
Although, I am wondering how reputable they are as information sources. Sigh.
"In the UK, interest in PDA has increased rapidly over the last ten years, substantially outpacing research on the topic."
Considering: researchers & clinicians ethically should not predispose one outlook over another; conflicting views on PDA & divergent research results on PDA, which undermine PDA is an ASD. "Dodgy" viewing PDA as an ASD is bit of an understatement.
@Dmdav1@KristenBott@Allison66746425 The PDA literature acknowledges in 4 different places manipulative behaviour in PDA makes it problematic viewing PDA as an ASD. Some who view PDA to be a form of autism argue PDA behaviour is "social strategic"...
@Dmdav1@KristenBott@Allison66746425 While adopting an extremely narrow view of what PDA is, they are arguing that the "manipulative behaviours" are scripted and from a limited range of behaviours that are responding to anxiety. These behaviours lack the sophistication seen with callous traits.