Sigh, I do not know where to begin with this. In my view Christie should be a controversial figure worldwide, especially in the autism community for undermining integrity of autism, disregarding autistic wishes for not dividing autism. autismlearns.co.uk/understanding-…
For spreading fallacious logic, ignoring Newson's wishes that PDA not be an ASD. Arguing to maintain the integrity of his own version of PDA. Generally, not engaging with critique. Also calling for research to support their outlook PDA is an ASD.
Ignoring how autism history tells us PDA does not have to be ASD, and that it can easily change clinical understandings and broaden.
I have many valid reasons for not being Christie's biggest fan.
On the plus at least I have multiple forthcoming essays being published soon and should be widely circulated presenting, a more ethical and balanced perspective on PDA.
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I am creating links to information I have not collated together elsewhere for a video I will be publishing later. I am doing a test of my material for my Studio3 seminar. Somethings I cannot explain due to lack of time, so creating links to information.
@Neurodiversit19 I think you comment about, who would like to employ someone with a "pathological" resistance to "ordinary" demands is probably valid. While we do not have data from work (off the top of my head, we do have some data from schools).
@Neurodiversit19 Some research indicates a PDA dx does not decrease exclusion rates and seems to raise number of informal exclusions.
@Neurodiversit19 "However, children with a diagnosis of Pathological Demand Avoidance did experience more informal exclusions (sometimes called “illegal exclusions”) than those autistic children who did not display extreme demand avoidance." Truman, 2019, p9)
Studies showing PDA is seen outside of autism:
Absoud 2019.
Eaton 2018.
Egan et al 2019.
Flackhill et al 2017.
Newson et al 2003.
O’Nions et al 2014a.
O’Nions et al 2014b.
O’Nions et al 2015.
O’Nions et al 2016.
Reilly et al 2014.
EDA-Q was used as part of assessment process.
Three groups: Autism, Autism + PDA, & Other (Trauma related issues).
EDA-Q detected PDA in all three groups.
@SusieBass Being honest, I do not where to begin. The issues with much of PDA narrative is systemic.
As I twitted earlier today are many good reasons for not even viewing PDA as a form of autism. Much/ most of critique of PDA seems valid.
@SusieBass I mean if literature does not justify viewing PDA as an ASD in 2011. The scientific and ethical response, is not to pursue an agenda that tries to create evidence base to view PDA as an ASD. Just so much of it is bonkers.
@SusieBass Another example. So PDA is an ASD supporters often compare growth in PDA, vs historic growth of autism, commenting on comparable milestones. To me comparing Autism's history to PDA is a silly thing to do if you want PDA to be an ASD.
One that has struck me over the last couple of days is the of consideration over what demands cause PDA behaviour in Newson's original research. She just seems to assume that ALL demands trigger avoidance behaviour without collecting data to prove it.
There are just generic statements, like "obsessive" demand avoidance, & "ordinary" demands. Even looking at tools derived from Newson's research do not actually tell us what specific demands cause avoidance behaviours, just a few generic words.
There are plenty of descriptions of the avoidance behaviours, but very little on the actual demands. Even then items covering this in derived tools, indicate it is about non-compliance & other "problematic" behaviours person with PDA expresses.