I am creating links to information I have not collated together elsewhere for a video I will be publishing later. I am doing a test of my material for my Studio3 seminar. Somethings I cannot explain due to lack of time, so creating links to information.
For people to research in their own time.
I should update the Coding issues comments to include a quote of from Newson et al (2003), which supports Donna William's comments on how those with PDA are meant to choose to do obsessive demand avoidance.
"...demand avoidance: as a result, most children show very low level achievement in school because motivation to avoid demands is so sustained, and because the child knows no boundaries to avoidance." (Newson et al 2003, p597).
Reason for the video is that I am testing the timings of the seminar. I get the impression there will be substantial material edited out. So doing a recording of the test version makes sense for people to refer to, if they wish to.
The literature tells us autism cannot be divided. Others, including @HappeLab have written about it (admittedly outside PDA literature for Happe).
@HiggsMandy@HappeLab I have written about it, inside and outside PDA literature, citing @HappeLab. I am unsure why she does not writen about it in PDA literature. Best guess, is that it undermines the case for PDA being autism?
@Neurodiversit19 I think you comment about, who would like to employ someone with a "pathological" resistance to "ordinary" demands is probably valid. While we do not have data from work (off the top of my head, we do have some data from schools).
@Neurodiversit19 Some research indicates a PDA dx does not decrease exclusion rates and seems to raise number of informal exclusions.
@Neurodiversit19 "However, children with a diagnosis of Pathological Demand Avoidance did experience more informal exclusions (sometimes called “illegal exclusions”) than those autistic children who did not display extreme demand avoidance." Truman, 2019, p9)
Sigh, I do not know where to begin with this. In my view Christie should be a controversial figure worldwide, especially in the autism community for undermining integrity of autism, disregarding autistic wishes for not dividing autism. autismlearns.co.uk/understanding-…
For spreading fallacious logic, ignoring Newson's wishes that PDA not be an ASD. Arguing to maintain the integrity of his own version of PDA. Generally, not engaging with critique. Also calling for research to support their outlook PDA is an ASD.
Ignoring how autism history tells us PDA does not have to be ASD, and that it can easily change clinical understandings and broaden.
Studies showing PDA is seen outside of autism:
Absoud 2019.
Eaton 2018.
Egan et al 2019.
Flackhill et al 2017.
Newson et al 2003.
O’Nions et al 2014a.
O’Nions et al 2014b.
O’Nions et al 2015.
O’Nions et al 2016.
Reilly et al 2014.
EDA-Q was used as part of assessment process.
Three groups: Autism, Autism + PDA, & Other (Trauma related issues).
EDA-Q detected PDA in all three groups.
@SusieBass Being honest, I do not where to begin. The issues with much of PDA narrative is systemic.
As I twitted earlier today are many good reasons for not even viewing PDA as a form of autism. Much/ most of critique of PDA seems valid.
@SusieBass I mean if literature does not justify viewing PDA as an ASD in 2011. The scientific and ethical response, is not to pursue an agenda that tries to create evidence base to view PDA as an ASD. Just so much of it is bonkers.
@SusieBass Another example. So PDA is an ASD supporters often compare growth in PDA, vs historic growth of autism, commenting on comparable milestones. To me comparing Autism's history to PDA is a silly thing to do if you want PDA to be an ASD.