Because data matters... This will be my nerdiest thread ever... but important!

Keeping you all posted on our @Survivor_Corps polling on breakthough cases and how many are leading to Long Covid but are not being tracked because they weren’t hospitalized….
1364 Participants

According to @Survivor_Corps polling:

In total, 35 breakthrough infections, 1 Asymptomatic.
20 Cases resulted in Long Covid.
2 Hospitalizations, only one that resulted in Long Covid.
@Survivor_Corps Breakdown by vaccine:

14 Total Breakthrough Infections
4 Resulting in Long Covid
1 Hospitalization (not resulting in Long Covid)
9 Total Breakthrough Infections
8 Resulting in Long Covid
2 Hospitalized (1 resulting in Long Covid)

13 Total Breakthrough Infections
8 Resulted in Long Covid
No hospitalizations
CONCLUSION: Of this cohort of 1364 participants of fully vaccinated individuals, the @CDCgov, based on their reporting standards of only reporting breakthrough cases that end in hospitalization only 3 breakthrough cases would have been recorded, with 1 leading to Long Covid...
By our polling, of this same cohort, there were in fact 35 breakthrough infections, 34 of which were symptomatic, 20 cases that led to Long Covid but only 3 cases that led to hospitalization (two of which didn’t end up with Long Covid).
1364 Cohort
3 Breakthrough Cases
1 Case leading to Long Covid

Our Polling:
1364 Cohort
35 Breakthrough Cases
34 Symptomatic
20 Cases leading to Long Covid
3 Hospitalizations

Why we need a COVID registry NOW.

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More from @dianaberrent

10 Jun
The @CDC isn't tracking non-hospitalized breakthrough Covid infections after vaccination so @Survivor_Corps is...

Out of 1070 people polled 30 had breakthrough infections and 16 developed #LongCovid
2 of 30 were hospitalized (neither got LC).

It's time for a Covid Registry!
13 breakthrough infections were after Pfizer. 8 developed Long-term Covid.
10 breakthrough infections were after Moderna. One was hospitalized. 3 developed Long-Term Covid.
7 breakthrough infections were after J&J. One was hospitalized. 5 developed Long-Term Covid.
Read 4 tweets
23 Nov 20
A thought on isolation... Something we should all be doing more of right now.

While in isolation with Covid I took inspiration from the father of one of my best friends...

After surviving the concentration camps of WWII he faced a year of isolation w/ tuberculosis. It was his year of isolation that he credited for saving his life a second time and opening his mind to the world of poetry and literature.

Samuel Pisar wrote in his memoir, “Thanks to tuberculosis, thanks to literature, I would be reborn once more.”

Read 5 tweets
10 Nov 20
My 12yo just lost an adult front tooth and his other teeth are loose... it turns out from vasculature damage 9 months after Covid.

Omg. PLEASE... I beg of you, take this seriously. For you. For your kids. For everyone.
I have been dealing with Covid in one way or another since Day 1. Today might have broken me.

#LongTermCovid #LTC19 #LongCovid
#LongCovidKids @Survivor_Corps
For all those who asked... The bottom right front tooth is no longer there. The left front isn't looking great either. 😥

For the love of God, #MaskUp America.

This, and all the other damage from Covid... It's not worth it. Skip Holidays 2020 so we can all live to see 2021!!! Image
Read 4 tweets

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