CV/CEV families are being exposed to a deadly virus:

via public transport
via workplaces
via supermarkets (no priority slots)
via unsafe schools

1/
At Home

They should only meet with double vax outside or should be responsible for ventilation if they meet inside. All of their visitors should test with a Lateral Flow first.

They can't meet their own kids any more, of course, who will be unvax.

2/
In the Workplace

There will be no social distancing but they don't need to work from home.
Employers are now responsible for their safety.
Their colleagues / clients won't take Lateral Flows.
They can to take their employer to court.(They may need an Eng / Epidemiology PhD)

3/
Public transport

Whilst nobody else should have to wear a mask (on the hottest days of the Summer) you will feel more relaxed wearing yours.

It might help to protect you - but put it on properly!

4/
Shops and Pharmacies

No priority slots.
You need to be aware of the current occupancy of the building before attending and go when it it 'quiet'.

5/
Ask your GP about it if you like. They won't be able to change anything but they probably aren't too busy right now.

NB/ The aerosolised virus can hang in the air for 16 hours, so all of the above makes sense.

6/
Above advice is for Clinically Extremely Vulnerable - some w no immune response despite 💉💉.

If you are *only* Clinically Vulnerable (a diverse group with different and often unknown responses to the vaccine) you can now throw caution to the wind and celebrate #FreedomDay!
/END

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More from @cv_cev

21 Jul
There is evidence LEA's are planning to withdraw school places from Vulnerable families (again).

Some schools had been supportive.

Others had allowed people to remain On-Roll but not given resources.

Whilst many families were threatened with fines/prosecution/child services. Image
Education is a HUMAN right.

Life is a HUMAN right.

These are continuing to remain in conflict *for ALL vulnerable CV/CEV families* as we are generating further vaccine escape.

That is *why* CV & CEV will be offered boosters in the Autumn.

2/
Children in exam years will lose their rights to vital qualifications.

This is what will happen if your child stays at home to learn next year:

3/ Image
Read 14 tweets
19 Jul
Nadhim Zahawi announced:

"The JCVI recommends vaccines for children 12-15 who have severe neurodisabilities, Down's Syndrome immunosuppression and profound or multiple learning disabilities."

1/
"The JCVI advice also recommends offering the vaccine to children and young people aged 12-17 who live with someone who is immunosuppressed."

2/
Whilst this is a start and we welcome the offering of vaccines to these children to protect incredibly vulnerable families, we feel this does not go far enough.

CV/CEV households all need #vax4kids urgently. We don't understand the risks posed by all of these vulnerabilities.
3/
Read 4 tweets
15 Jul
Shocking news...

Bubbles and school contact tracing gone on Monday.

"..they will no longer be responsible for identifying Covid contacts with this responsibility being passed to the NHS Test and Trace."

tes.com/news/covid-con…
It is the schools discretion to inform
parents of a +ve & adds that they should take account factors such as "known vulnerability".

Unclear if a vulnerability is only for children in their care. Schools have limited understanding of medical issues & even less so for 3rd parties.
Plus, there is the issue of vaccination and immunity.

Just because someone has had 💉💉 it doesn't mean they are protected. In some cases Vulnerable people themselves might not even know that.

All of the above puts lives at significantly increased risk...
Read 6 tweets
20 Jun
Lateral flow tests can be have a very faint line.

* This test is positive *
(Confirmed by PCR)
This is a common phenomenon with all lateral flow testing. There is no amplification of the sample and so you are only testing what you have - if there isn't much there the line will be faint. You see the same with pregnancy tests (also lateral flow).
They use immobilised antibodies and markers that bind to the antigens on the reservoir pad and then migrate along the test. As they move across binding reagents will bind the target to the test line. The larger the sample of whatever you are testing for the stronger the line.
Read 7 tweets
21 Apr
🚨 #MedTwitter 🚨 we need your help!

Vulnerable families with children at Primary School are being told they must *not* wear masks.

🏫 😷 🚫

In some cases Doctor's notes 📝 are being demanded so as not to "open the flood gates.".

1/3
CV/CEV Families UK want to wedge the gates wide open for *all* children. Risks to lives & @LongCovidKids🚪🌊🚪

Today, a parent was sent the attached email and told:

"If * comes to school wearing * mask you will be phoned & asked to collect them." 😷📲

*Pls read the email*

2/3
An example of an incorrect assertion made by this Head:

"Masks need to be changed every 20-30mins" 🕡
*taken out of context, actually relates to sports use.

We need your help to gather as many Doctor's notes (tweets) supporting #MasksInSchool.
📝😷🏫

Thank you! Pls RT

3/3
Read 4 tweets
1 Apr
Q:When are mitigations not mitigations?

A:When they are optional in schools.

1/ When schools returned in 09/2020 the focus was on 'Hands' and surfaces.

There was no desire by @GOVUK to implement 'Face'masks.

And no extra 'Space' available,
Nightingale schools dismissed.
2/ "All children must be in school." we were told "There is little evidence of Covid transmission in school.".

* They were right because in the Summer term very few children had returned for face to face teaching and children spent lots of time outside and in tiny bubbles.
3/ Cases started to rise rapidly in children.

A fire break at halfterm dismissed. Schools went back and cases continued to accelerate upwards.

So in early November we partially added 'Face'masks to the equation.

But, ONLY
in communal areas,
in Secondary
AND
optionally.
Read 27 tweets

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