Very Interesting!
Don’t beat Yourself up, Doc.
So many factors here.
Playing on MS Patients Fears-fear of needles,hassle of clinic,IV therapy, SubQ shots(me).
Marketing: Always a pretty young happy person with Insurance.
Doctors with a full waiting room,
No time 4 Research.
Society says:Funding topic off limits!
You & I don’t want me to get worse!
You want your Patients Happy, Healthy, Getting Best Cutting edge Treatment
Insurance companies torn between costs and proving benefit and liability.Hoping their subscribers need Medicare/Medicaid soon.😫
Drug Manufacturers try to stay ahead of the curve, Research, development, studies, university system,American Arrogance, World is Envious,Socialists want Medicare for all (rationing will commence-formulary simplified.)Thought provoking as always. @threadreaderapp #unroll please

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More from @marygerdt

23 Jul
I am Bewildered by both cumulative sleep deprivation and the Resistance of DME Providers to Even Try to make the claim for a Replacement of this Terribly Designed CPAP Nightmare Scenario. Millions of Sleep Deprived Sufferers of #OSA stop breathing at night.
It’s Bad. Way bad 😱 ImageImageImageImage
My Dentist 🦷 assessed my TMJ clicking. I woke up in the night,ripped out my bite guard and started chewing my thumb. He asked if I was on CPAP. Why, yes, I said, but Phillips recalled and I can’t get a new one. He said I deoxygenated and wake up biting. Dental reflects Mental 😫
Coincidentally, I’m using @ouraring to monitor sleep and activity, HRV,HR, and more. Off CPAP sleeping way below needs. But of course, Patient information is anecdotal, Or Not?? Using @Apollo_Neuro device is designed by Neuroscientists. Have Yours yet @dagenmcdowell ? ImageImageImageImage
Read 13 tweets
22 Jul
@Brandon_Beaber I’m also using @Apollo_Neuro combined with @ouraring to monitor and rebalance my nervous system Increase Heart Rate Variability (in 1 word-resilience). Monitor sleep, activity and more. About the cost of 1 or 2 magic pills 💊 😎
Since September 2020 when I got @ouraring and added to my @Apollo_Neuro wrist Neuromodulator 🤔
Continue to now, a steady increase in HRV (I call it the Fifth vital sign) @shiftms @Gemsallen @GavinGiovannoni Dip in May corresponded to Big Seizure ER visit, UTI, Subtherapeutic sz meds.
Read 4 tweets
21 Jul
This week gained enough energy to tackle my #CPAP Issue.
I never got this… my DME provider says not their responsibility. I threw my machine away @MedicareGov After 2 months I called DME provider for replacement. She said “it’s Phillips’ responsibility.
I talked to my Doctor initially and thought I could live without.Then had big seizure and terrible sleep-lack of. DME person scolded me for throwing away a defective machine when offered No Guidance. I never want to see another Phillips machine!! No filter for me! I want Resmed!
I told DME lady I almost bought one retail but I have great insurance. She said they sell res med retail. I want one of those. You can’t was all she said. Millions of people are going without CPAP because Phillips is dragging their feet. There is no fix. There are consequences.
Read 4 tweets
17 Jul
People think “Hospice” when they hear #Palliative Care. Neither term understood. Nobody feels comfortable with Death, Dying or Moaning in Pain. No Doctor is Comfortable saying, There’s nothing more we can do. My latest battle #MedicalCannabis is Sort of legal in Virginia.
For me, Cannabis offers a state of less pain and feeling better. Legislators and Doctor Governor @RalphNortham allowed bizarre restrictions like no dispensary near me, 4 plants per Household, no matter size of household, can’t buy it. Can’t have more than 1 ounce.
Now Electronic Vaping products might be outlawed? I recently discovered Delta Effex Delta 8 and Delta 10 with Terpenes. The day Cannabis went legal in VA, July 1st 2021, I put down my pipe and picked up my Delta Vapor. Excellent effects! ⬆️ energy ⬇️Pain.
Read 5 tweets
11 Jul
Thank God @amazon @JeffBezos are way bigger than little old #MS riddled me, sometimes in a heap of hurt, no, that’s HURT 😢
I’ve written letters that never are answered…
Now found and prefer Delta 8, 10 to Cannabis for Symptoms.
So imagine my surprise as Virginia USA Quasi-Legalized a measured amount of Cannabis, There are New Laws and Regulations (feel the price of a nickel sack go astronomical) in pipe-line.
Banning Post office from delivering vaping products, and Other carriers will be banned too 🤔
Ahhh, I get it, the Legislators formulate their law building by the forces of Money Flow. Delta Effex developed and makes a Superior Hemp Product (legalized under Farm Bill). THC<0.3%. With #Terpenes that promotes, for me, less pain, more active, feel Better ❤️‍🩹
Read 4 tweets
10 Jul
Yesterday I didn’t want to know.I have a few more risk factors. Have an excellent medical team and am losing weight, Rx HTN, Type 2 DM,⬆️ Chol well treated. Ozempic helped me lose 40 pounds and A1C now Normal. Costs $2,000 a month. Medicare and retirement coinsurance covers most.
Part of me wants to tell proponents of #SinglePayer Health insurance in the USA 🇺🇸 difference between @NHSuk website and American Capitalism and Benefits of Employment(really a component of salary package). Part of me knows “they” will persist until they need $80,000 a year Meds.
Was searching to see if #BoJo has better healthcare cost coverage than 🇬🇧 citizens do. Here 🇺🇸 Lawmakers who want #MedicareForAll for us little people will still have Cadillac plan, for your country Rolls Royce? What I found was worse.… @guardian get ready.
Read 5 tweets

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