Thread by @consent_patient

Not sure why charities are asking patients to support the publication of the NICE #MECFS guideline update when the final version hasn’t been made available to view to see if stakeholder comments were included and what changes if any were made . The draft guideline is diabolical!

https://twitter.com/consent_patient/status/1432447085178245122

Thread 👇 the NICE #MECFS guideline update/replacement is a sham - more of the same contraindicated behavioural rehabilitation

https://mobile.twitter.com/consent_patient/status/1431738791987974147

Thread 👇questioning independent guideline evaluation ,and IAPT expansion , part of the Five Year Forward View ,and the commissioning of “NICE” guideline development to Royal Collage Collaboration Centers
#MECFS update

https://mobile.twitter.com/consent_patient/status/1431500629923479554

There is much wrong with the #MECFS guideline update /replacement guide which is used in to be used in IAPT expansion to longterm conditions and medically unexplained symptoms. Please read these two thread above

@davidtuller1 @JoanMcParland @newhealthpsych

The guideline is not an improvement on the 2007 guideline . I have done a write up on the previous guideline which I have included in the thread . The replacement guideline is even worse . I have detailed why

They did the update to better coordinate for IAPT expansion , and retained and rebranded what already provided .Included regular reviews for children and yearly reviews rehab management plan and benign looking physical maintenance (sitting standing ect for #severeME ) ect

More deception & rebranding of interventions using same principles making same claims ,including adding in prevention of severe disability ,#severeME

behavioural specialists still considered 2 implement the same harm ,without harm, & considered “controversial” & more 2 come

Much of the NICE guide update #MECFS mentions experienced committee recommendations are without evidence ,as in the previous 2007 guide

Intervention composition and management, how long viral illness persists drawn from their own knowledge and experience and beliefs

The committee couldn’t give a list of tests 4 diagnosis tests or signs and symptoms for a later diagnosis of #MECFS ?

How about post exertional malaise being defined & a two day CPET test recognised ?

Mix & match criteria mentioned [IOM criteria 2 make suspected diagnosis]

From terminology used in the #MECFS guide update .

Therapy blueprint 4 independent self management need 2 be in patients own words guided by therapist.

A patient was asked to sign a document ,to be sent to GP, saying she was in “recovery ” meaning living a managed lifestyle

They increasing the number of patients being contracted with management plans /accountability 2 manage their symptoms /activity. Facilitated with more home visits 2 #severeME

2 reduce resources,claim prevention, & blame patient 4 severe disability.

Whilst providing harm

The Center for welfare reform report called In the Expectation of Recovery explains how the biopsychosoicial model was abused to put more accountability on the disabled . It also mentions the #PaceTrial centreforwelfarereform.org/library/in-the…

Two #PaceTrial authors directors of company One Health .Set up 4 promotion of a system of healthcare based on a biopsychosocial model,  being a model that incorporates thoughts, feelings and behaviour with a physiological approach to health and illness . margaretwilliams.me/2016/proof-pos…

This same model of CBT and activity management has been retained in the #MECFS guideline update and is predominate misleading evidence 4 IAPT expansion 2 long term conditions & medically unexplained symptoms where all symptoms are normalised as being mind body/ biopsychosoicial

It goes beyond use in welfare work capability assessment- covered by Mo Stuart book Cash Not Care.

Also reduces spending 4 private joint health and social care providers transforming the NHS . Called integrated care systems/ sustainability and Transformation Partnerships

Patient experience is what designed 2 achieve & why it continues

Acquired illness - deterioration via biopsychosocial behavioural rehab- taking children away-resources

One Health building on biopsychosocial model & Eco Health taking planetary approach @RandPaul @ChildrensHD

@RandPaul @ChildrensHD “ Healthcare systems have become quietly corrupted”
“ Global healthcare system wherein criminal activities have become normalised”
“ many countries most corrupt sector” “shared motives” “ doctors and patients attacked”
linkedin.com/pulse/corrupti…

@RandPaul @ChildrensHD The biospychsocial model of distress and behavioural rehabilitation academic state corporate nexus healthcarehubris.com/post/summary-s…