I'm here now tweeting from the concurrent session on The Future of Palliative Care in the Home. Chaired by @phillips_janey with our wonderful @Pall_Care_Aus Board Member @calvert_shannon #21OPCC
Here's @calvert_shannon, speaking on her lived experience of palliative care, caring for her mother, whilst also living with her own health issues. Also sporting a lovely new haircut :) #21OPCC Image
Liz Callaghan speaking on the many challenges for carers. @CarersAustralia #21OPCC Image
We know how to manage chronic conditions, we just need to apply the evidence. We know how to provide really good palliative care. What we haven't done so well is agreed, implemented and embedded a good model of community-based palliative care. Mark Cockayne @wapha_phns #21OPCC Image
Mike Baird of @HammondCare stating that palliative care, whilst not an afterthought, is not getting the attention it needs and deserves. We need to reclaim the humanity of dying. #21OPCC Image
@phillips_janey asking a great question on why #palliativecare isn't getting the investment it needs from government, even after important reports such as this commissioned by @Pall_Care_Aus Investing to Save @KPMG palliativecare.org.au/kpmg-palliativ… #21OPCC
Mike Baird @HammondCare stresses we need to tell real and compelling stories to achieve greater investment. #21OPCC
Future solutions? @CarersAustralia difficult if you don't have systems that talk to each other. Systems to support carers have not focused on #palliativecare or #endoflifecare. Technology helps #COVID19 but not without barriers. Circles of care, communities, are vital #21OPCC
@calvert_shannon we are going in the right direction. Consistent model of care is a work in progress but will make a huge difference. #21OPCC
@SilverChainAUS Anna Barker. One size doesn't fit all. Core ingredients, but tremendous value in working flexibly, relevant for the local ecosystem. Need to adapt, recognise vast differences, diversity. Like a present - core is the same, wrapping paper changes! #21OPCC
@wapha_phns Mark Cockayne. GPs are essential - need to nurture their practice. We have paid cursory response to them at times. We need meaningful engagement, relationships with GPs at the local level. #21OPCC
@wapha_phns Find ways to increase access to the vulnerable in our communities - partnerships across other providers. Think deeply about cultural safety, reach into the community, and support people in a different way. Co-design with communities #21OPCC
@phillips_janey Let's think about technology. Mike Baird @HammondCare need scaleable, digital solutions for remote and underserved communities. Open up greater experiences, we are limited by our thinking. #21OPCC
@SilverChainAUS Anna Barker says the best ideas come from the frontline. Yes! True all over the world - including in communities facing resource scarcity or crisis. Families & communities are the ones on the frontlines, have answers, have ingenuity, are bold. @rachelcogs #21OPCC
@SilverChainAUS trialling "virtual buddy". TEST AND LEARN, INNOVATE, BE BOLD says Anna Barker! #21OPCC
@calvert_shannon Recognise digital health is a complement, not a panacea. Digital health needs to be co-designed with communities, carers, older people, culturally diverse - minimise the daunting process of tech. Can't discriminate by age, culture, single households #21OPCC
@Pall_Care_Aus and the Australian COVID-19 Palliative Care Working Group has done important work during COVID-19 on expanding access to telehealth for palliative care. Recognises this is not a panacea, but needs investment. palliativecare.org.au/pca-calls-for-… @meera_agar @PCACEO #21OPCC
@CarersAustralia implores us all in #palliativecare to not leave anyone behind in advancements in digital technology. #21OPCC
Sustainability of digital tech is important. Don't drop this all when the crisis is over. @wapha_phns Mark Cockayne. #21OPCC
Think carefully about digital inclusion, about structural reform across Australia regardless of postcode, about a rights-based approach to palliative care, engage hearts and minds of the community to drive this agenda. Nice summary of an excellent panel @phillips_janey #21OPCC
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More from @WePublicHealth

8 Sep
Robert Yates of @ChathamHouse and @LSHTM comes to us from a sunny London! We are so lucky to have him chat to us about how palliative care can get a "decent crack of the whip" on universal health reforms. #21OPCC
@ChathamHouse @LSHTM "This is an opportunity for radical change. We should be prepared and get organised." But what is Universal Health Coverage? Important to nail down the definition. #21OPCC Simple definition here 👇 Image
@ChathamHouse @LSHTM But the longer definition makes it clear that palliative care is part of the continuum. Wherever you see UHC, we must insist on palliative care not being crowded out by curative services. #21OPCC Image
Read 18 tweets
8 Sep
Changing gears from death law to death literacy. Tweeting now from @KezNoo workshop on using the death literacy index. #21OPCC
@KezNoo From care & social networks in 2008, to Death Literacy Index today, translated into multiple languages. A fantastic journey @KezNoo & team have been on linking networks with death literacy with public health with social determinants. #21OPCC @PHPalCare
@KezNoo @PHPalCare @DeathLiteracy definition. Talks about the "death system" which is important to think about in #compassionatecommunities. The death system is where all the partners converge - funeral directors, florists, churches, schools - all those existing outside the health system #21OPCC Image
Read 13 tweets
8 Sep
I'm tweeting now from the workshop on End of Life Law for Clinicians led by Prof Lindy Willmott
@QUT Lots of relevant resources here: end-of-life.qut.edu.au #21OPCC
@QUT Exploring complex legal decision-making in #palliativecare. Are clinicians legally covered if they decide not to offer ongoing treatment deemed futile or worse, potentially harmful to the patient? #21OPCC
Read 17 tweets
8 Sep
I'm tweeting now from this workshop on Project Hamrahi. Come along and hear about the project, everything it has learnt, @ meet some of the team. #21OPCC oceanicpallcare.com/events/session… @AusPallLinkInt @OdetteSpruyt @rachelcogs
@AusPallLinkInt @OdetteSpruyt @rachelcogs Here is some more information and history about Project Hamrahi. Hamrahi is Hindi for "fellow traveller". A project of mutual learning and development between Australian/NZ and Indian palliative care providers, run by @AusPallLinkInt apli.net.au/project-hamrah… #21OPCC
@AusPallLinkInt @OdetteSpruyt @rachelcogs @OdetteSpruyt The project makes you think about the essence of palliative care, when resources are scarce. Compassion, holistic care. #21OPCC Image
Read 22 tweets
18 Jul
From 19 July, most COVID restrictions will be lifted in the UK, with the Govt's formal announcement noting that "Hospitalisations and deaths will continue to rise over the coming weeks and months" (this statement dated 12 July): gov.uk/government/new… #UKfocus
The move is "dangerous and premature", warns a letter by more than 100 scientists & doctors published in @TheLancet :thelancet.com/journals/lance… #UKfocus
See the list of signatories here: thelancet.com/cms/10.1016/S0… (including at least 2 from Australia: @stephenduckett & @DrZoeHyde #UKfocus
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2 Jul 20
3rd #HealthReimagined panel session is now live: looking at: Streets for people - Lessons from a return to local living. Am livetweeting for CroakeyNews Conference Service, working on the lands of the Wurundjeri people of the Kulin nations vichealth.vic.gov.au/media-and-reso…
A welcome first from @VicHealth's Mel Fineberg, from Maribyrnong, on the Traditional Lands of the Wurundjeri Woi Wurrung and Bunurong peoples of the Kulin Nation #HealthReImagined
Read 38 tweets

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