Discover and read the best of Twitter Threads about #palliativecare

Most recents (4)

On a serious note:
Tuesday is my father's 2nd yahrzeit
Sunday 4/21 was the 2y anniversary of his death.

In reflecting back, I have some thoughts for #medtwitter, #Jews and the general public...
1/

#death #dying #grief #PalliativeCare #medicine
1. Condolence notes just need to say, "I am thinking of you" or "I was sorry to hear your news" or "I am sorry for your loss."

Don't overthink it, and don't offer false platitudes. Send your note or make your call, and the person who is #mourning knows you care.
2/
2. Show up.
For #shiva, for #kaddish. The first week, there's a lot of people around in a #Jewish house of mourning. Then everyone goes home, and we are left alone.
Offer to go to lunch. Bring dinner. Take a walk.
Join us in shul. Kaddish that first time in services was hard.
3/
Read 14 tweets
I keep track of things and I like old books. The other day this old ledger caught my eye online so I bought it. I thought I could keep track of case notes. I like a little bit of history in my books.
It was interesting because it was the ledger from the Canada Southern Railway Line and had been used in 1877. It was mostly blank so I bought it. The ad mentioned that some pages had been used.
When it arrived, it had old book smell but it was in great condition. I pulled it open and noticed the perfectly written script and math scrawled on the inside cover.
Read 19 tweets
The other night at the hospital, I witnessed some shocking behavior & sub par care by a night shift #hospice #nurse-Hospice nurses ensure a dying patient receives dignified #EOL while being kept as comfortable as possible. For 12 hours -2/28-3/1, Melissa didn't get either. THREAD
I was sitting with Melissa, trying to calm her, she was agitated. RN Deb came in. She looked at me & asked who I was. Due to her tone, I told her I was family. She wanted to know who was staying over. We were curtly told only 2 were allowed, not 4. SHE was mistaken. #Hospice
Michele, patients mother very upset. RN Deb yelled at Melissa's Nieces. Told the little girls they were very bad & didn't belong up here. The girls weren't misbehaving. They weren't doing anything wrong, nor unattended in the common area of the #PalliativeCare #Hospice wing
Read 15 tweets
1/ There’s no debate- #palliativecare doesn’t hasten death, in fact for cancer pts it prolongs life. Even #palliative sedation doesn’t hasten death! The myth that a palliative approach shortens life (e.g. via opioid use) and is “giving up” is something we combat everyday.
2/ These “palliphobias” can lead to delayed symptom management, prognostication and advance care planning- this problem is very dangerous and pervasive, whether the patient wishes to die via #MAID or not. Not at all against #MAID at all but it does differ in intent.
3/ Anecdotally- have had several cases where well-meaning specialists didn’t recognize #palliative needs early. By the time we saw it was too late to request MAID, pt had lost capacity and had suffered greatly. No one had talked about EOL planning before me! #hpm
Read 3 tweets

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