And if you are an "ABA provider" that does not do ABA therapy but are advertising it as such -
Then stop advertising as ABA if that's what you're doing.
I wish I could believe that's what these centers are doing but I have a feeling they really are doing ABA.
Their website is in fact, very sneaky.
One page about haircuts they talk about giving kids earbuds with sound for loud noises, and weighted blankets. Sounds good, right?
And then under ABA say this (Image):
Their website says this:
"We also target sensory issues such as loud noises, bright lights, and different textures, and work on building tolerances through daily exposure so when these situations arise, they won’t be an issue in regular life."
"Would you ever reward a child for putting their hand on a hot stove?
After you answer 'no' to that question, would you consider that situation abusive?"
Their website talks about "work on building tolerances through daily exposure."
They constantly use the word "science" on their website.
Well, that's NOT the science of sensory sensitivities in autistic people. Not one bit.
Stop hurting autistic people by rewarding pain.
Quote from researchers (also in my article) -
"A lifetime of being punished for certain movements, and being forced to engage in eye contact despite the physiological pain and discomfort of doing so, is psychological and physical abuse.“ - Sandoval-Norton and Shkedy 2019
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I think I just realized why autistic burnout is so bad.
It's because when neurotypical people reach their limits, they can't go on.
When autistic people reach their limits, they continue because they know they have to continue to be considered valuable.
1/
I was told that if I get burnt out, I won't be able to do anything, so I should rest.
What I didn't say because I was still thinking it through,
is that when I get burnt out, I go on for weeks or months more because that is expected of me and I Cannot Let People Down.
2/
And so often autistic people are constantly pushed to their limits even at 4, 5, 8 years old. Constantly.
We are so often already at a level of stress from NT expectations and our environment that neurotypical people don't even comprehend it.
3/
Asking an ABA therapist or RBT to consider consent and ethics, and asking them to read the research showing ABA is ineffective,
Often after entering the conversation of their own volition,
Should not result in a block. 🙃
In fact if they really wanted to help, they would consider working WITH autistic people instead of treating those with opposing opinions as "misunderstanding" what ABA is or not having "proper ABA."
I'm worried that I'm going to burn myself out to finish my PhD and if I get to that point of stress,
I'm not sure whether I'll decide to do it anyway, or hope it's good enough/get a masters.
I honestly don't know what I'll do. But it's really not been great lately.
I see-saw between "I'm never going to get this done I must work constantly" and "maybe I should sleep 15 hours today" and I don't know how to do anything between those two things.
The other thing I have to remember though, is if I decided to stay in the spring (which I really really don't plan on doing whatsoever),
I'd just continue to be in this state of stress until it was done anyway. It's not like the pressure would get better.
Here's a short thread on ambiguous instructions, and the energy autistic people have to spend to figure out what someone or something is really saying.
Step one says "Heat large non-stick skillet over medium-high heat until hot, about 2 minutes. Add meal to skillet."
However, the picture is only of someone pouring a box of food into the skillet itself.
I spent an actual 1 minute staring at that picture being confused.
2/6
You see, if I were to write those instructions, heating up the skillet until hot "about 2 minutes" would have been its own step. Because there's no picture of it here. All that is shown is pouring food into the box.
3/6