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Richard Woods Profile picture
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8 Oct, 5 tweets, 2 min read
Question: How many researchers consider as part of their ethical considerations:

If autistic persons count as Individuals who have experienced psychological and physical harm and/ or cumulative adversity?
Guess another reflective point to paper:
frontiersin.org/articles/10.33…
Spoiler warning:

If you look into how autistic persons are generally fairing, due to how we are being treated by society, there is only one answer to the question.
@DrMBotha May I just say thank you for this paper, it has led me to do much reflecting on the topics you discuss. It also very timely with where I am in relation to my PhD. The paper has been a good thing in my life.
tandfonline.com/doi/full/10.10…

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More from @Richard_Autism

Richard Woods Profile picture
9 Oct
@YIMAN38111877 @PDASociety PDA cannot be a form of autism when there are non-autistic persons with PDA in the literature. Tweets like the one above are important examples, why balanced & accurate information should be presented to vulnerable stakeholders.
@YIMAN38111877 @PDASociety Screenshot as evidence the tweet happened. Image
@YIMAN38111877 @PDASociety It also shows why it is problematic for those advocating for PDA's acceptance to use neutral language, to prevent vulnerable persons being mislead on the topic.
Read 35 tweets
Richard Woods Profile picture
7 Oct
@earlybirdword @Sarahmarieob It depends on what you are after, first point is there no consensus over what PDA is, what features are associated with it, or how to approach it. For instance there are different diagnostic thresholds in print:
rationaldemandavoidance.com/2021/04/25/pda…
@earlybirdword @Sarahmarieob Some view PDA to be a form of autism, like:
link.springer.com/article/10.100…
@earlybirdword @Sarahmarieob Some view PDA to be a common mental disorder.
Read 14 tweets
Richard Woods Profile picture
4 Oct
I am still playing around with this (mainly working out how to shade individual sides of the cube), I think I have a new 3D image for PDA. Although, it might be best doing a "radar" type chart.
I have split the frequency & intensity of demand-avoidance axes from these charts in two.
Frequency of demand-avoidance features displayed continuum represents how often demand-avoidance features tend to expressed over a given time period, such as a week. It really is arbitrary which time period a person uses.
Read 16 tweets
Richard Woods Profile picture
4 Oct
Question to the floor:
Should we be in this situation in with PDA in UK (i.e. a bubble on the notion PDA is an ASD), some descriptions from 2 articles:
at present a culture-bound concept UK.
Interest substantially outpacing PDA research.
Genuinely interested?
My own views on this is a definitive no, fact such descriptions of the present situation is present indicates something has gone wrong. There are few reasons for this.
First point is one should ethically be presenting balanced & accurate information on PDA, also not making claims beyond its evidence base. One should not be conducting research to favour a particular viewpoint, such as favouring notion "PDA as an ASD".
Read 23 tweets
Richard Woods Profile picture
3 Oct
Crikey, does anyone else get moments of inspiration when they are doing nothing serious, i.e., "trivial" activities (e.g., for me, making cups of tea, going to the shops, in the bathroom etc)?
Subtext to this, I just had a potentially important one. Yesterday's one about @PDASociety acting like a disreputable information source on PDA by claiming research has not disclosed conflicts of interest as "more authoritative".
For the record, I do not view the PDA Society, or the clinic which did that research as particularly reputable information sources on PDA. Presently viewing them akin to reputability of "pro" ABA/ PBS supporters on ABA/ PBS.
Read 39 tweets
Richard Woods Profile picture
2 Oct
Thought experiment to the floor.
Suppose I designed & conducted a PDA research.
I created PDA definitions based on my experience.
Ignore how PDA can be diagnosed at lower diagnosed thresholds.
Ignore how PDA can be diagnosed in non-autistic persons.
...
...
Ignore DSM-5 threshold for when something becomes "pathological", i.e., threshold for PDA.
Ignore accepted understandings anxiety is not a feature autism.
Used ADOS which is not design to assess for PDA features.
...
...
Only diagnosed PDA in persons I thought were autistic.
Only diagnosed PDA in a dual ASD + PDA traits diagnosis.
...
Read 7 tweets

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