Why has @UofUNeurology assumed patients with #POTS may not also be providers or otherwise involved in healthcare?
Or seemingly taken into account that we often have to help others get diagnoses and, therefore, should be getting this same info?
Why don't I get access to sessions like "Headache, Chronic Pain, and Joint Hypermobility in Dysautonomia" but instead get "Non-Pharmacological and Lifestyle Treatment Approaches for Dysautonomia" when patients are already gaslit with that enough?
The @MCDiseasesUnite Conference is open to everyone and includes incredibly important and relevant info, like
- Uses and Limitations of Serum Tryptase Levels
- Perioperative Management of Mast Cell Disease, including Drug Allergies
- Relationship between MCAS and Dysautonomia
The patient-focused sessions for @MCDiseasesUnite are way better, too:
- Q&A: Managing Stress, Mental and Emotional Health and Nutrition
- Applying for Social Security & Disability
- Managing Nutrition with Mast Cell Disease
I experience a lot of Little-ness when my POTS or other conditions are acting up. If I'm honest, a part of me is always Little - it just adjusts due to all the factors.
I shouldn't have to avoid certain spaces because of this.
Now, with all these cameras focused on my face
You'd think they could see it through my skin
They're looking for evil, thinking they can trace it, but
Evil don't look like anything
Evil don't look like anything
PS: this was the first song that I learned on my ukulele that wasn't in a random uke song book.
1) The song itself is *chef's kiss* 2) The lyrics? 🔥 3) Okkervil River songs like this are so perfect for harmonizing
“I think it should not be allowed for a sporting event to host in a country that criminalizes against basic human rights,” Daley said. “So, that is going to be my mission now to change that.”
2. But he also said this:
“I think it’s really important to try and create change, rather than just highlighting or shining a light on those things... make it so that the countries [where it's] punishable by death for LGBT people are not allowed to compete at the Olympic Games.”