Thread by @GraysonGoal

Here's the only thing I don't get here...

Why are we separating HCPs and patients? Why aren't patients getting access to the Friday sessions with their registration?

What's up with that?

https://twitter.com/Dysautonomia/status/1446456456610525188?t=tamR3ZSmo_0hfIIOKWYFaw&s=19

Why has @UofUNeurology assumed patients with #POTS may not also be providers or otherwise involved in healthcare?

Or seemingly taken into account that we often have to help others get diagnoses and, therefore, should be getting this same info?

Why don't I get access to sessions like "Headache, Chronic Pain, and Joint Hypermobility in Dysautonomia" but instead get "Non-Pharmacological and Lifestyle Treatment Approaches for Dysautonomia" when patients are already gaslit with that enough?

The @MCDiseasesUnite Conference is open to everyone and includes incredibly important and relevant info, like
- Uses and Limitations of Serum Tryptase Levels
- Perioperative Management of Mast Cell Disease, including Drug Allergies
- Relationship between MCAS and Dysautonomia

The patient-focused sessions for @MCDiseasesUnite are way better, too:
- Q&A: Managing Stress, Mental and Emotional Health and Nutrition
- Applying for Social Security & Disability
- Managing Nutrition with Mast Cell Disease

Why not your sessions, @UofUNeurology?

Anyway, come register for the @MCDiseasesUnite Conference. It happens over the course of a week.

tmsforacure.org/2021-conferenc…