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Diana Zicklin Berrent Profile picture
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9 Oct, 3 tweets, 2 min read
In case you weren’t waking up in Europe this morning here is a clip of me on @cnni with @vausecnn on #Long Covid.

In 3 parts…

1/3
2/3
/end

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More from @dianaberrent

Diana Zicklin Berrent Profile picture
4 Oct
The @NewYorker chose not to publish my Letter to the Editor regarding @DhruvKhullar's piece on #LongCovid.
newyorker.com/magazine/2021/…
A 🧵...
1/
The @NewYorker’s first article on #LongTermCovid, published in the September 27, 2021 issue, was a profound affront to everyone suffering the very real long-term sequalae of even mild and asymptomatic cases of #Covid_19.
2/
It is riddled with errors and was reported under false pretenses. @DhruvKhullar pitched this story to me as a personal profile – documenting how I started the world’s largest Covid movement, @Survivor_Corps.
3/
Read 21 tweets
Diana Zicklin Berrent Profile picture
14 Sep
Thought it was hard to find monoclonal antibodies before? Well, it's about to get harder.

@HHSGov just announced that rather than take orders from hospitals they will allocate to states based on hospitalization rates and have the states distribute them.
1/
This system will reward the states with the lowest vaccination rates and harm those with the highest.

Ex: NY has high vax rate and low hospitalization rate. NY will receive 4000 doses weekly. How will they be given out?
2/
If they are distributed to each participating hospital no one will provide the therapeutic. It is too costly to set up an infusion center if you only have 10 doses to give out weekly.

Who is harmed?
3/
Read 5 tweets
Diana Zicklin Berrent Profile picture
13 Sep
PSA: if you weren’t able to get tested for Covid and / or didn’t have a detectable antibody response you are STILL eligible to be treated at a Post-Covid Care Center.

Find one near(ish) you:
survivorcorps.com/pccc
According to the @CDCgov:
cdc.gov/coronavirus/20…
From @CDCgov:

“At this time, no laboratory test can definitively distinguish post-COVID conditions from other etiologies, in part due to the heterogeneity of post-COVID conditions.”
Read 8 tweets
Diana Zicklin Berrent Profile picture
5 Sep
I've tweeted you all through my mother's death. We buried her this morning and I want to share my eulogy with you all so you can know her in life, not just in the indignities of death... Please indulge me.

A eulogy for my Mother in a 🧵...
1/
My mother was elegant, discriminating, funny and complex. The ultimate critic, she could pick apart a novel, an art exhibit or your outfit with equal ease and strength of conviction.
2/
Her attention to detail was, at once, her superhuman strength - her ability to recall and recount the trim on a dress she bought in 1958, the tuna salad from the luncheonette in Far Rockaway, an exchange with a sixth grade teacher, a dish served by a friend fifty years ago.
3/
Read 24 tweets
Diana Zicklin Berrent Profile picture
2 Sep
A 🧵 on death (not Covid related)...
I’m sitting in a hospice room on death watch waiting for my mother to take her last breath. That said, I have a few thoughts about death that I want to share. And, trigger warning, it won’t be easy to hear… but we can do hard things.
2/
My mother is almost 82 and is over 2 years into a stage 4 cancer diagnosis with a 6-9 month life expectancy.
3/
Read 21 tweets
Diana Zicklin Berrent Profile picture
3 Aug
“Our members are getting denied disability every day and this is a recognition of the wrap-around services that we are going to need to provide to all survivors of COVID.”
1/ ⁦
#LongCovid abcactionnews.com/news/coronavir…
“And it’s not the end of the line either. It is a good first step. I worry that it’s a bit toothless because we still don’t have a diagnostic code for long-term COVID, said Diana Berrent, the founder of the organization @Survivor_Corps.
She’s preparing to lobby at the Capitol.
2/
“We need long-term COVID care centers throughout the country. I could go on and on. We need a billing code. We need a name,” Berrent said.”

3/
Read 4 tweets

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