Oh boy, especially by those who do either cannot/ will not understand my perspective & validity of it. Or even appreciate they are guilty of doing what they accuse me of.
By those who will acknowledge my expertise & quality of my work:
“having done an absolutely first class job of summarising all the past literature and perspectives on PDA. No one else has done anywhere near as good, or as thorough, a job as you have.”
Pretend that their experience means more than the academic literature, or other's perspectives on PDA.
Argue that their autism diagnoses are NICE complaint, despite viewing anxiety based RRBIs as social communication issues.
"While such excuses did, at times feel comical, it was always important to remember these were children whose anxiety appeared to be driving their need to be avoidant." (Eaton & Weaver 2020 p35).
While ignoring it is widely accepted that anxiety is not a feature of autism, either in the DSM-5 or in NICE guidelines.
"Anxiety and depressive disorders commonly coexist in autistic people and are associated with poorer health outcomes and quality of life." Adults NICE guidelines. p 39.
"Adolescents and adults with autism spectrum disorder are prone to anxiety and depression." (APA 2013, p55).
Eg pro "PDA Profile of ASD" literature.
"Adults and adolescents seen at... Some of the co- morbid diagnoses are obsessive compulsive disorder, eating disorders, personality disorders, selective mutism, anxiety and depression." (Gould & Ashton-Smith 2011, p37)
Basically anyone who is remotely competent, clinician or not, should be able to realise diagnosing "PDA as a form of autism" is unlikely to be NICE or DSM-5 compliant
Especially when PDA features are meant to be developed & maintained through a negative reinforcement process, as argued by "PDA Profile of ASD" "experts".
Image from O'Nions & Eaton 2021, p414.
"Consider whether the child or young person may have any of the following as a coexisting condition, and if suspected carry out appropriate assessments and referrals:
Mental and behaviour problems and disorders:
ADHD
anxiety disorders and phobias" CG129 p19.
Above quote is from diagnosing autistic persons in CYP, the NICE guidelines.
Yet, I am the one who is meant to be mistaken on PDA, and not knowing they are talking about on the topic.
“having done an absolutely first class job of summarising all the past literature and perspectives on PDA. No one else has done anywhere near as good, or as thorough, a job as you have.”
This blog, notes PDA is seen outside of autism. rationaldemandavoidance.com/2021/04/25/pda…
In case you have selective memory over your defamatory petition against Damian Milton.
@sallycatPDA@twillierod@KatyBenson20@MummyAutistic@milton_damian@NICEComms Now, just because I am not emotionally attached to the "PDA Profile of ASD", does not mean I do not identify with it. It just means I am wise & prescient enough not to expose my emotions to being harmed by others when PDA is inevitably critiqued etc.
So one of my recent "eureka" tweets, which I did not go into detail on was about random reflections on associating PDA with a giant panda. I google it, this comes up.
Which actually covers some of the reflective points. What also does not mention is other points, that Giant Panda's are a rare endangered species, which needs protecting, advocating for.
Which also reflects idea "PDA Profile of ASD" is, and needs to being protected from various threats it faces. Also being advocated for so it is recognised & protected...
"In my title, I ask “academic, activist, or advocate?”—and my answer is that I am all three. You cannot belong to a community that suffers from violence, marginalization, and suicide and not be." (Botha 2021, p9). #WorldMentalHealthDay
You want to know why I am so passionate about autistic-rights, so passionate about good quality inclusive scientific method-based research & practice (which are typical standards) in autism; the above quote.
We know from various statistics that autistic persons are generally treated atrociously by broader non-autistic society & it is seems to be the cause much of our mental health issues & high rates of suicide attepts & suicide. tandfonline.com/doi/full/10.10…
@YIMAN38111877@PDASociety PDA cannot be a form of autism when there are non-autistic persons with PDA in the literature. Tweets like the one above are important examples, why balanced & accurate information should be presented to vulnerable stakeholders.
@YIMAN38111877@PDASociety It also shows why it is problematic for those advocating for PDA's acceptance to use neutral language, to prevent vulnerable persons being mislead on the topic.