Thread by @Richard_Autism

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten The AET is potentially problematic as it has involvement from two charities who support ABA/ PBS. AET's legal responsibilities are run by NAS, whose agenda is NOT that of autistic persons.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten Lets not forget NAS has been important in pushing & contributing towards "PDA Profile of ASD" being a "culture-bound concept" in the UK. It's stance on PDA contradicts reputable independent parties like @NICEComms & @BPSOfficial

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial

https://twitter.com/Richard_Autism/status/1434426365613314053

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial

https://twitter.com/Richard_Autism/status/1434426663262167042

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial You should note that organisations which do not have vested in viewing PDA as an ASD, are taking an unethical position, which is different to reputable bodies like @NICEComms

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Example of NAS's conflicts of interest on PDA
tandfonline.com/doi/full/10.10…

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial AET also has Phil Christie on its board's & one can argue he has used AET to assist with pushing "PDA Profile of ASD" agenda.

https://twitter.com/Richard_Autism/status/1449054785466949636

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial First point AET republished Christie's 2007 PDA article in 2012.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Link to AET's 2012 republished Christie's PDA article
pdasociety.org.uk/wp-content/upl…

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Screenshot of mention AET's PDA guidelines in a 2013 article co-authored by Christie

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Link to said article, Christie is its second author.
acamh.onlinelibrary.wiley.com/doi/abs/10.111…

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Screen shot of a second article co-authored article of Christie, again referring to AET's guidelines & note lack of stating his involvement in AET, or it being his article.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Above image is from page 408 of this article, Christie is third author on this article.
link.springer.com/article/10.100…

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial One should also note the reference in both articles to the overscribed PDA conferences held by NAS. Which Christie would often speak at, & help choose the agenda for (obviously these points are also not mentioned in the articles).

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Screenshot from page 418. In which said annual NAS conferences are causing there to be biased opinions on PDA, & leading perons being on the lookout for PDA. Note that the article assumed that its authors are unbiased.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Presumably Christie has not reflected upon, if he himself is biased on the topic, and potentially on the lookout for PDA?

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Link to the committee's terms of reference which sets out that it set the agenda for NAS's online information sources, & their annual conferences.
…emandavoidancecom.files.wordpress.com/2020/08/pda-de…

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Screenshot from page 12 which shows Christie chaired that committee.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Link to said document confirming Christie's presence on said committee.
pdaresource.com/files/pda-awar…

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial So we have Christie apparently heavily involved in the processes which contributed to surge in interest in PDA in the UK. This is also compounded by his statements trying to avoid debate on PDA.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial "In this context, prolonged debate about whether PDA is a syndrome within the family of pervasive developmental disorders or a subgroup of what has become another umbrella term of ASD becomes rather distracting." (Christie 2007, p7).

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial "To build on developments, insights and increasing recognition of PDA but maintain the integrity of how the condition is understood and the nature of the support that is needed by individuals" (Christie 2016; 2018; 2019).

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Christie was also involved in creating the PDA Society's 2018 Being Misunderstood Report, which has been used to lobby government, & local bodies to accept "PDA Profile of ASD".

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Link to said Being Misunderstood report.
pdasociety.org.uk/wp-content/upl…

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Screenshot from PDA Society's most recent newsletter stating it is working with government as part England Autism strategy.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Bear in mind the charity is doing this while there little to no good quality evidence to warrant this, PDA's clinical nature & clinical need are highly contested. With PDA itself being a severely controversial.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial So charity achieved, in part due to campaigning efforts which using the Being Misunderstood Report.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Yes, the report is being used for campaigning efforts.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Link to page with where the screenshot is from.
pdasociety.org.uk/being-misunder…

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial So yes, as I said it does appear that Christie being on the AET board is probably problematic, especially if AET have produced resources which state it is "Profile of ASD". Hence, why I state I need to check its resources.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Must also be said, such conflicts of interest of Christie, are generally not stated, or considered much in PDA discourse. Despite declaring COIs is something Practicing Psychologists regulator requires.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial Screenshot of @The_HCPC standards which are there to protect the public.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC Link to said standards.
hcpc-uk.org/standards/stan…

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC Also for research purposes such COIs should be disclosed. Considering Christie started working independently, specialising in PDA.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC Link to where previous screenshot is from:
autismassociates.co.uk

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC To add icing to the cake, much of the academic debate with PDA being viewed as an ASD can be traced back to him, as Newson consistently said PDA should not be viewed as an autism spectrum disorder.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC I detail this out here:
researchgate.net/publication/35…

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC That is everything off the top of my head why I have concerns over Christie being a reputable information source on PDA, his involvement with AET's & about the accuracy of information on PDA in AET's various resources.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC Yes, some of these points are likely to come up in my PARC talk on Tuesday.
…icipatoryautismresearch.wordpress.com/category/event…

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC @threadreaderapp Please could you unroll?

Thank you in advance.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC To clarify this one. One should see that those vested in "PDA Profile of ASD", are taking an unethical position when compared to those who are not vested in "PDA Profile of ASD", like NICE & BPS etc.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC "Phil has been involved in conferences, training sessions and presentations on a range of topics related to the autism spectrum across the UK and internationally...

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC ... He has been extensively involved in leading training events around PDA for schools and other organisations providing for children with complex presentations on the autism spectrum."

From AET's website on its board members.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC So as an independent consultant, Christie seems to be having lots of work related to his views on a controversial topic, which medical nature & clinical need are both substantially contested.

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC So it is reasonable to view that Christie potentially stands to gain from AET's public view on PDA, if it states PDA is a form of autism. Fair to say he has a COI for being involved with AET. Question is, will Christie recognise this himself?

@TwittingTheo @kimturner70 @LUC_autism @autcareandshare @AutismKeynes @Autism @SENDinfoBucks @scarlet70020920 @JodieSmitten @NICEComms @BPSOfficial @The_HCPC @threadreaderapp please can you unroll again?

Thank you in advance.