1/5 Please support our petition. #pwME are calling for a yellow card scheme where treatments offered by NHS services can be monitored and reported if harms are caused.
Such schemes exist in place for drug therapies but not for exercise prescription. change.org/p/department-o…
2/5 This means alot to me, obviously I prescribed exercise as part of my clinical practice. I was a competitive athlete most my life and whilst accessing diagnostics, being prescribed graded exercise made me severly disabled. Something I advocated for, is detrimental to #pwME
3/5 We debunked Graded Exercise Therapy and CBT from the treatment guidelines last week. But the doctors who have been prescribing these therapies and ignoring patients complaints of harms for decades, are insistent on continuing regardless of NICE updating their guidelines.
4/5 This type of arrogance only persists when accountability is lacking. We need a system that holds these doctors, institutions&royal colleges accountable for their refusal to update their knowledge on the science that's emerged since the previous guideline was set back in 2007
5/5 The world has moved on and proven how far behind these GET supporters are. As doctors it is their duty to remain up to date with emerging science. It is their duty of care to "First Do No Harm".
We need a system that enforces this.
Please sign the petition.
Thank you !
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Deconditioning theory officially expelled !! Scientists prove what's causing exertion intolerance in #LongCovid- Link it to ME findings and likelihood of developing #MECFS. Have we just solved the pathology of acute to chronic post viral sequel?? jornaldepneumologia.com.br/details/3604/e…
"through invasive CPET, that O2 delivery was normal and associated with reduced peripheral O2 extraction and elevated mixed venous O2 saturation compared to controls, resulting in reduced peak VO2, indicating lower diffusive O2 delivery to the mitochondria.(3)"
I was a clinical sports therapist. My degrees in Sports Coaching and Exercise Science. The Royal Colleges insistent claims that exercise is effective for ME are based on a "deconditioning theory" - Not the actual science that proves #pwME are exertion intolerant.
If graded exercise rehab worked for people with #MECFS then why is the recovery rate only 5%? If I could successfully rehabilitate clients post surgery, after years of immobility, chemo damage and serious injury, then why did the principles of GET leave me severly disabled?
I specialised in reversing chronic injuries and musculoskeletal pathologies not just for elite athletes but for children too. GET took away all available hrs I had on my feet to still do my job. And they claim we are just accessing the wrong services ...