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Samantha

@hope411adcock

Oct 9, 2021

1) #RealPainStories #MedicalTrauma

In addition to having several chronic pain conditions my daughter has a heart condition & a seizure disorder.

She had been established with a PM for 4 yrs until he sold his practice.

After the practice sold she was discharged

2)because she requested to have an appointment directly after they returned from lunch so that she wouldn't have to sit 3-4 hrs waiting for her appointment.

There were several times that we would apply lidocaine to her entire body in preparation for a procedure &

3)by the time they took her back it had worn off & her pain level was then too high to proceed.

They scheduled her for a procedure in 2 weeks. A week later she received a letter in the mail notifying her that she had been discharged with a 30 day RX.

Read 20 tweets

Samantha

@hope411adcock

Jul 8, 2021

@RepJohnCurtis

1)Thanks, but no thanks. @RepJohnCurtis @RepOHalleran @RepMcKinley
@RepLBR

Patients have ALWAYS had the option to decline taking Opioids.

This is NOT Empowering Patients.

If you want to Empower Patients focus on a Patients Bill of Rights.

https://twitter.com/purplemamabear/status/1412944608007446540

2)Where the focus is based on Individual Patient Needs, not Population Health.

Each Patient should be entitled to an Individualized Treatment plan with all effective treatment options available based on their health history.

3)The treatment plan should be a Joint Decision Making Process between the Patient & their Doctor.

No one else's health issues should a factor in the decision making process.

Policymakers & All of the alphabet soup agencies need to remove themselves from the Dr/Pt Relationship!

Read 7 tweets

Samantha

@hope411adcock

Jul 5, 2021

Unintended Harm from Opioid Prescribing Guidelines (Post 2007 WA State)

"How will this guideline impact legitimate care to pain patients throughout the country? It is possible its influence could spread if it comes to be seen as a precedent."

watermark.silverchair.com/10-2-285.pdf?t…

2)"If the dose limit were widely adopted, physicians could carry additional burdens. More physicians and other prescribing clinicians are likely to simply reduce their opioid prescribing rather than risk increased scrutiny under a system in which the rules are untested and the

3) potential penalties unclear.

Sadly, the widespread acceptance of such questionable policy could lead to more untreated pain, increased incentive for doctor shopping, and diversion.

All this highlights a disturbing trend in the development of regulatory policy concerning

Read 6 tweets

Samantha

@hope411adcock

Mar 28, 2021

#PainSpeaking Thread -Suicidal Pain

Living with #CRPS isn't easy. We all need to have a good support system to survive this wicked beast. I wrote this several years ago after reading a post on Facebook about Suicidal Pain.

I am normally a very private person. And, if anyone

2) had told me that I would have shared this narrative with anyone. Much less that I would have posted it on a public forum like Twitter before I wrote it, I would have told them they were Nuckin' Futz.

But, CRPS/RSD changes us all. And, when I read the post on Suicidal Pain.

3) I felt compelled to share this narrative.

We live with the "Suicide Disease" every day and the only way to survive it is to support one another & help each other keep it together & not slip off the slippery slope that CRPS/RSD, untreated & undertreated pain seems to like to

Read 20 tweets

Samantha

@hope411adcock

Mar 27, 2021

1) World With Complex Regional Pain Syndrome
(CRPS) As My Constant Companion

I live in a world with Complex Regional Pain Syndrome (CRPS) as my constant companion. Physicians don’t know why it develops, but #CRPS is a nerve disorder that

2)usually occurs after a traumatic injury, surgery, sprain, fracture, infection or a period of immobilization. CRPS/RSD is said to be the most painful chronic disease that’s known today. On the McGill #Pain Index it (Causalgia) scores 42 out of 50.

3)How does that compare to other types of pain and/or chronic pain conditions? #Arthritis pain is ranked about 18, Non-terminal Cancer pain at 24 and Chronic Back Pain is at 26. Natural labor and delivery of a 1st child is about 35. With a score of 40, the pain associated

Read 31 tweets

Samantha

@hope411adcock

Mar 25, 2021

https://twitter.com/hope411adcock/status/1375205335074533386

1)Too many Medical Professionals mistakenly assume that when patients use graphic or colorful descriptors to describe what our pain feels like that we are catastrophizing.

When in fact, we are attempting to help them understand what we are experiencing.

I have CRPS.

https://twitter.com/hope411adcock/status/1375205335074533386

2)Prior to surgery a nurse asked me if I could describe my pain.

I told her my arm felt as though it was soaking in a glacier fed river, while being set on fire & simultaneously being hit with electric shocks.

After swallowing hard, she say "I guess you can".

3)Unfortunately, it wasn't an exaggeration.

I'm well aware of what a glacier fed river feels like. I have experience with being burned. I have also been electrocuted.

To say that the experiences are unpleasant is a understatement.

Read 4 tweets

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