Discover and read the best of Twitter Threads about #CRPS

Most recents (11)

Morning peeps 😁 first day without a #wakeandbake time for a tolerance break 😱 wish me luck, gonna do at least 72 hours & then see if I can go any longer 🤞💚🌿🖖 Image
Update on my cannabis tolerance break, having slight issues with muscle spasms/dystonia in my foot 😭
Morning peeps 😁

Day two without a #wakeandbake 😁 Didn’t sleep as well as usual but at least I’ve stopped being sick, couldn’t even keep water down from about 5pm last night 🤢🤮 Still taking my CBD paste though, better safe than sorry #COVIDー19 #COVID19 #cytokinestorm 💚🌿🖖 Image
Read 15 tweets
The #HPVvaccine does not cause serious neurological harms (specifically #POTS and #CRPS ). My children will most certainly get the #vaccine , I encourage everyone with children to ensure they’re protected.
Peter Gøtzsche has made outrageous claims about the #HPV vaccine.
Gøtzsche claimed the data he relied upon was in a PhD he supervised.
The PhD made no such claim; even when the protocol was modified to include a “post hoc exploratory harms analysis”; with help from Louise Brinth.
Even then it didn’t show serious neurological harms.
This paper looked at the VAERS data (Dec 2014 -Dec 2017):
“We identified 1 report of a possible case of CRPS..”
~28 million doses given.:

pediatrics.aappublications.org/content/144/6/…
Read 6 tweets
Here's my latest* update to my vetted collection of Twitter Disability and Chronic Illness hashtags. Please share it!

Thank you :-) Graffiti background. Foreground in black letters on a  white background to the left reads “Twitter Disability and Chronic Illness Hashtags”<br />
This collection is current as of 01.30.20, previous Twitter update 09.11.19.

There's a PDF version coming up this weekend, to be posted to my Kofi profile. I'll add the link toward the end when it goes up, after the questions, where you can also sign up for email updates.
This version has added

- community suggestions,
- mental health hashtags,
- Medical crowdfunding hashtags,
- and a section for cancer-related hashtags.
Read 84 tweets
“Hip” is socket (acetabulum) where femur (upper leg bone) inserts into pelvis (ilium/ischium). If hip were to dislocate, person would have excruciating pain & be unable to stand/walk. Sacroiliac joint (SIJ) is 17 cm square in area; vs. ilium & sacrum/coccyx (tail bone)....
SIJ commonly subluxes in pwHSD, generating painful ligament stretch interpreted as low back/hip pain in 13-30% pwLow Back Pain. When SIJ subluxes, Ilium rotates CW or CCW around a virtual transverse axis from Right to Left & through both mid-SIJs ....
Rotation of Ilium relative to Sacrum creates an oblique relationship of contours of the two bones. In a lean person, & depending on whether there is a CW or CCW rotation, the tail bone can appear to become stationed closer to the hip region on that side....
Read 15 tweets
How to make cannabis coconut oil capsules, a thread.
Start off with some cannabis coconut oil 🙄 empty capsules & a capsule filler machine
#IAmCannabis #illegallyalive #420suffragettes #CRPS #Fibromyalgia 💚🌿🖖
Put the empty capsules into the capsule filler & put the cannabis coconut oil in some boiling water to melt it.
Using a syringe, draw up the cannabis coconut oil & dispense into the capsules.
Read 5 tweets
Here’s my latest update to the list of Twitter #Disability & #ChronicIllness Hashtags.

- previous update 02.24.19 -

Please share it! Thank you. :-)

@ImageAltText Graffiti background. Foreground in white letters on a  red background to the left reads “Twitter Disability and Chronic Illness Hashtags”
There will be a PDF version up for download on my Ko-fi, likely tomorrow morning. The link is at the end.
Hashtags For Personal Narratives.

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 58 tweets
First take a load of crappy auto weed you started on the windowsill & finished off while you were in prison, doesn’t look much but it’s not bad considering 🙄 also using this article on how to make cannabis coconut oil as they give different instructions leafly.com/news/lifestyle…
Grind up the plant material in a mini blender. Put the coconut oil in the slow cooker & add the cannabis. Mix well, turn on low & then find something useful to do for 4-6 hours, volcano time 🙄😁 remembering to set a timer, just in case 🙄😂
Well, it’s had 4 hrs 30 & it’s been smelling lovely for ages now so I’ve turned the slow cooker off & I’m gonna just let it sit in that heat till it’s had 5 hrs. As a general rule when decarbing weed, when it smells good, it’s done! The oil looks quite green too, good sign 🤞
Read 7 tweets
Today is my 5 year anniversary on becoming disabled.

A thread.

I don't know exactly where I'm going with this. It's just my thoughts pouring out.
Short backstory, I guess?

On July 27th, 2014 I went in to have surgery on my left foot and ankle that already had major reconstructive surgery back in 2007.

Towards the end of this seven year period I was gradually losing the ability to walk/stand and needed a cane.
I was working as a cashier at CVS at the time (I was laid off from my web admin job) and needless to say, they were not happy with me using a cane and taking sick days.

They actively tried to force me to take a leave of absence and when I refused they then tried to get me fired.
Read 29 tweets
Here's my latest update to my collection of active Twitter #Disability & #ChronicIllness Hashtags - previous update 12.13.18.

Please share it. Thank you! :-) Light blue sand background has the # drawn in the sand to the right. The left side is blank. <br />
<br />
At the bottom of the picture, text reads
Portable PDF version will appear on my Kofi in the next day or so.

Link: ko-fi.com/TinuWrites
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also helpful for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 45 tweets
Here's my lastest update Twitter #Disability & #ChronicIllness Hashtags - previous update 10.17.18

Please share it.
I'll have a PDF version of this for download on my Ko-fi by this time tomorrow. Link at the end.
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also good for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 29 tweets
Updating Twitter disability hashtag thread.

@AllisonR has educated me that I should use Sentence Case for #Accessibility. Graphic reads: # symbol followed by the word Hashtag in white lettering on a blue background.
I have #brainfog so I know I missed someone. Please add your favorite resources as a reply.
Do you want to share your disability experience with others? Try these hashtags.

Amplifying stories

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 16 tweets

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