I have so much love and support for academics who are leaving higher ed for better jobs But as a disabled person, no career is kind. Capitalism hates me. Eugenics plays out in every field. So when I look at the job market I have to ask "who will murder me first?" 1/3
It's hard to try to think about where I might get accommodations, or where I can plan my schedule, or where I can tweak the job to meet my access needs when accommodations are inevitably denied. I am all for people striking out for better pay, benefits, and work life balance. 2/3
But it also calls up some undertones of grief, and to be honest, jealously. I often feel like I literally cannot afford to consider any other life path. 3/3 #AcademicChatter

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More from @Nicole_Lee_Sch

24 Dec
People are going to the ER to get official medical documentation because they know that the medical system, and the govt, will fuck them over should they ever need to claim disability. 1/3
Including statements like:
1. You didn't have COVID
2. You didn't seek proper care and developed chronic symptoms
3. You don't meet the clinical criteria for long COVID 2/3
If the medical system took patients at their word people wouldn't feel pressured to go get documentation. And if disability claims weren't dependent on doctors deciding that you are/are not disabled based on a vague and arbitrary set of criteria people would stay home. 3/3
Read 4 tweets
23 Dec
I'm concerned with all the talk we have about hospital overcrowding. Yes overcrowding for acute care management for COVID patients depletes the system. But for disabled patients, the system was ALREADY broken and overcrowded. 1/6
Lists to get in to see specialists in chronic illnesses and comorbidities are already endless for us. It's common to wait at least a year per specialist, and with an influx of millions of disabled individuals with long COVID, those wait times will get even higher. 2/6
Treatment options and research is currently being halted, delayed, or terminated in order for the system to focus on acute COVID-related demands. And so we have very few treatment options on the horizon. I was closely following so many clinical trials that just stopped. 3/6
Read 6 tweets
20 Dec
Got the classic "rare disease" line of questioning at my gyno today. Please for the love of God stop asking chronically ill patients who coordinates our care. No one does. No one. They just splice up our bodies piecemeal and send us to the next specialist. 1/4
When I had my "best" care I had a: geneticist, pain mgmt dr, cardiologist, neurologist, neurosurgeon, a GI, a GP, one orthopedist for each joint (which back then were hips, shoulders, hands), a bracing specialist, a PT team, and a gyno. 2/4
That's 13 drs. None of whom spoke to one another, coordinated care, or ensured their recommendations didn't clash with those of my other specialists. My GP just wrote numerous referrals but couldn't coordinate care bc they *were not trained to do so.* 3/4
Read 5 tweets
14 Dec
To everyone writing "sadly we couldnt convene" for whatever conference/program/lecture - please stop. Why are we not celebrating what we have achieved together? Why is there this overlay of remorse and regret? 1/4
I want to see "thank you everyone for attending our programming virtually this year. We:
- reduced our carbon costs by x
- made programming more accessible for caregivers, disabled individuals, parents, academics outside the academy, and the public
- decreased costs by x 2/4
- limited food waste
- increased our use of access tools like real time captioning
- recorded our work to increase accessibility and impact
- Created an archive that can sustain conversations
- saved our attendees x costs" 3/4
Read 5 tweets
28 Nov
To everyone jumping to "omicron doesn't seem to be that bad." At least a quarter of the worlds population is disabled. For us, the original variant was bad, Delta was bad, and now yes Omicron is going to be bad too. 1/4
I'm so tired of non-disabled people being like "don't be scared keep doing things as normal." Before omicron I needed the govt to have a mask mandate. I needed better quarantine rules. I needed better contact tracing. Now I definitely need all that but likely won't get it. 2/4
This is just another example of non-disabled people going "I can't handle taking the measures other people need me to take, but fuck it because even if I get sick it shouldn't be that bad, so I can go about as normal." 3/4
Read 4 tweets
11 Nov
When people critique self-diagnosis as a valid practice they misunderstand the relationship between medicine, diagnostics, and medical training. As a historian of medicine this is endlessly frustrating to me. So here's a thread on the history of diagnostics. 1/22
Until the early 19th century turn to empirical training, which took off in France, diagnostics didn't actually matter all that much. Doctors generally claimed that their patients were sick from imbalanced humors (black bike, yellow bile, blood, and phlegm). 2/22
Some claimed that patients were sick bc of an imbalance between the body's liquid and solid parts (known as solidism), others claimed imbalances from nervous excitement, but on the whole the idea was that an imbalance was happening and needed to be remedied. 3/22
Read 22 tweets

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