If case you're wondering

"Why should I submit a public comment to IACC?"

Let me show you just part of what was written by the NCSA (national council on severe autism) in July 2021 as a public comment.

TW ableism

1/5
"Honest language to communicate realities. It is crucial that discussions at the federal level retain the
language the reflects our clinical and daily realities, such as the following examples we commonly hear
from our families and practitioners: abnormal, maladaptive,"

2/5
"catastrophic, chaos, low-functioning,
suffering, devastating, panicked, hopeless, desperate, exhaustion, overwhelming, anguish, traumatic,
bankrupting, financially crushing, suicidal, epidemic, tsunami. We stress this not to detract from the
many positives"

3/5
"found in every person disabled by autism, of course those also exist, but to ensure that
the challenges of autism are never semantically erased."

If you can get outraged and QT the above, then please submit a comment to IACC through here: iacc.hhs.gov/meetings/publi…

4/5
And if you are not sure what to write, this is what I wrote - some topics to think about writing about could be the JRC, ABA, research focusing on cures, lack of autistic input, etc.

"reflects our realities" they say. What about our own realities?

docs.google.com/document/d/1TU…

5/5
[source of the quote. CW ableism - iacc.hhs.gov/meetings/iacc-… ]
And to be clear, under the guidelines it says "Duplicate submissions are discouraged; if received, only one example will be provided to the Committee."

So making the submissions different means more statements will be shown rather than just the one.

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More from @AutSciPerson

Jan 21
So after .@MorenikeGO 's very important thread

about how autistic people should send public comments to IACC (the Interagency Autism Coordinating Committee),

we have come up with this hashtag - #IACCForAutistics

Because a committee about autism Should be for us.
If you believe IACC should have autistic people's best interests at heart,

consider submitting a comment with your thoughts about what autism research should look like, and what supports autistic people should have in place -
iacc.hhs.gov/meetings/publi…

#IACCForAutistics
Read 5 tweets
Jan 20
A day in the life of a disabled person seeing a doctor.

Act 1.
I need to wear socks with my shoes because it's cold out and I might have to take my shoes off. This means my foot band isn't going to be as helpful and my venous malformation could hurt more. I'm worried.

1/12
I cut off part of a sock so that my feet don't feel smashed into my toe shoes (which are the only shoes I can walk in without substantial pain). Seems to fix things. I worry about finding parking close enough to the health center.

2/12
Act 2.

I drive there worried my foot will hurt from driving with the sock + shoe combo. I look for disability parking. I see a close-ish spot & go around the block, only to find it taken by another car. I park far away but a manageable distance (might suck on the way back).
3/12
Read 22 tweets
Nov 24, 2021
How can you be an Allistic Ally? (1/10)

1. When you find something that impacted you and helped you understand autistic people - whether it was a blog, podcast, or twitter thread written by an autistic person, Share it!

Not all of us are out as autistic, so sharing is vital!
2. Assume that autistic people exist in the spaces that you access. Don't make the assumption you will only interact with neurotypical people in certain spaces. Whatever job you work in, there's probably an autistic person working there (or many!).
3. Correct others if they make jokes about how certain people are being "awkward" or "weird." Remind them that people may interact differently and to possibly be more direct to the person they're interacting with if they want to be left alone or wanted to leave the interaction.
Read 10 tweets
Nov 23, 2021
It's kind of amazing to me that autistic people have been gaslit into assuming they must have bad people skills & don't understand anything

only because the measurement of understanding

is having a non-autistic brain and assuming every other person works like you do.

1/7
But when autistic people do that exact same thing, with their autistic brain (maybe I should talk about interesting topics to comfort X/Y/Z person) it's immediately "not empathetic" or "showing lack of theory of mind" or "black and white thinking."

2/7
This needs to be understood here -

Most human beings use their own experiences and understanding of reality to interact with other people. Most human beings draw on their own experiences. That will always happen, regardless of someone's neurotype.

3/7
Read 8 tweets
Nov 22, 2021
Current example of #inaccessibility at my university that I'm dealing with right now:

There's a conference basketball game on the one weekday that I teach classes.

They have an entire section for where to park as an attendee if you're disabled.

For non-attendees? Nothing.

1/8
Parking is restricted and "students must relocate their vehicles."

I'm a disabled student. I park in faculty lots with my placard (I have to because there are no student lots next to my building, actually none).

Faculty can show ID to get into the lot.

So what do I do?!

2/8
There is nothing at all listed for parking for disabled students. I do believe I've emailed DOTS about this exact thing and I don't remember receiving a direct answer or solution.

Remember, I'm autistic.

Everytime I need to park on a game day, this is what I have to do -

3/8
Read 8 tweets
Nov 22, 2021
I have just now finally heard that my university hired an ADA coordinator.

There were 2 candidates for the position in the Spring and I saw both of them..

and the person who was hired wasn't the one I thought did a really good job in the presentation and Q&A.
That's not to say the other person was terrible, but the candidate I recommended alluded to possibly being a disabled person themself. And the other person was using sort of abled people language and didn't know what the term "plain language" even meant.
I'm glad they are hiring someone but they always go for more experience with the law/lawyer language than for people who actually have lived experience -and- experience relevant to that position.

When will disabled people be allowed to be at the table?
Read 22 tweets

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