Share this page!

AutisticSciencePerson, MSc Profile picture
Twitter logo
Jan 21 • 5 tweets • 4 min read
So after .@MorenikeGO 's very important thread

about how autistic people should send public comments to IACC (the Interagency Autism Coordinating Committee),

we have come up with this hashtag - #IACCForAutistics

Because a committee about autism Should be for us.
If you believe IACC should have autistic people's best interests at heart,

consider submitting a comment with your thoughts about what autism research should look like, and what supports autistic people should have in place -
iacc.hhs.gov/meetings/publi…

#IACCForAutistics
For context -
#IACCForAutistics
#ActuallyAutistic

Once you submit a comment, consider writing what you wrote in the comment, putting it in a twitter thread, and using the #IACCForAutistics hashtag -

because a committee about autism should be about autistic people's voices, priorities, and needs first.
#ActuallyAutistic
@NeuroRebel @thinkingautism @mykola @commaficionado

Sorry for the mass tag, trying to get traction on IACC.

• • •

Missing some Tweet in this thread? You can try to force a refresh
　

Keep Current with AutisticSciencePerson, MSc

AutisticSciencePerson, MSc Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @AutSciPerson

AutisticSciencePerson, MSc Profile picture
Jan 21
If case you're wondering

"Why should I submit a public comment to IACC?"

Let me show you just part of what was written by the NCSA (national council on severe autism) in July 2021 as a public comment.

TW ableism

1/5
"Honest language to communicate realities. It is crucial that discussions at the federal level retain the
language the reflects our clinical and daily realities, such as the following examples we commonly hear
from our families and practitioners: abnormal, maladaptive,"

2/5
"catastrophic, chaos, low-functioning,
suffering, devastating, panicked, hopeless, desperate, exhaustion, overwhelming, anguish, traumatic,
bankrupting, financially crushing, suicidal, epidemic, tsunami. We stress this not to detract from the
many positives"

3/5
Read 8 tweets
AutisticSciencePerson, MSc Profile picture
Jan 20
A day in the life of a disabled person seeing a doctor.

Act 1.
I need to wear socks with my shoes because it's cold out and I might have to take my shoes off. This means my foot band isn't going to be as helpful and my venous malformation could hurt more. I'm worried.

1/12
I cut off part of a sock so that my feet don't feel smashed into my toe shoes (which are the only shoes I can walk in without substantial pain). Seems to fix things. I worry about finding parking close enough to the health center.

2/12
Act 2.

I drive there worried my foot will hurt from driving with the sock + shoe combo. I look for disability parking. I see a close-ish spot & go around the block, only to find it taken by another car. I park far away but a manageable distance (might suck on the way back).
3/12
Read 22 tweets
AutisticSciencePerson, MSc Profile picture
Nov 24, 2021
How can you be an Allistic Ally? (1/10)

1. When you find something that impacted you and helped you understand autistic people - whether it was a blog, podcast, or twitter thread written by an autistic person, Share it!

Not all of us are out as autistic, so sharing is vital!
2. Assume that autistic people exist in the spaces that you access. Don't make the assumption you will only interact with neurotypical people in certain spaces. Whatever job you work in, there's probably an autistic person working there (or many!).
3. Correct others if they make jokes about how certain people are being "awkward" or "weird." Remind them that people may interact differently and to possibly be more direct to the person they're interacting with if they want to be left alone or wanted to leave the interaction.
Read 10 tweets
AutisticSciencePerson, MSc Profile picture
Nov 23, 2021
It's kind of amazing to me that autistic people have been gaslit into assuming they must have bad people skills & don't understand anything

only because the measurement of understanding

is having a non-autistic brain and assuming every other person works like you do.

1/7
But when autistic people do that exact same thing, with their autistic brain (maybe I should talk about interesting topics to comfort X/Y/Z person) it's immediately "not empathetic" or "showing lack of theory of mind" or "black and white thinking."

2/7
This needs to be understood here -

Most human beings use their own experiences and understanding of reality to interact with other people. Most human beings draw on their own experiences. That will always happen, regardless of someone's neurotype.

3/7
Read 8 tweets
AutisticSciencePerson, MSc Profile picture
Nov 22, 2021
Current example of #inaccessibility at my university that I'm dealing with right now:

There's a conference basketball game on the one weekday that I teach classes.

They have an entire section for where to park as an attendee if you're disabled.

For non-attendees? Nothing.

1/8
Parking is restricted and "students must relocate their vehicles."

I'm a disabled student. I park in faculty lots with my placard (I have to because there are no student lots next to my building, actually none).

Faculty can show ID to get into the lot.

So what do I do?!

2/8
There is nothing at all listed for parking for disabled students. I do believe I've emailed DOTS about this exact thing and I don't remember receiving a direct answer or solution.

Remember, I'm autistic.

Everytime I need to park on a game day, this is what I have to do -

3/8
Read 8 tweets
AutisticSciencePerson, MSc Profile picture
Nov 22, 2021
I have just now finally heard that my university hired an ADA coordinator.

There were 2 candidates for the position in the Spring and I saw both of them..

and the person who was hired wasn't the one I thought did a really good job in the presentation and Q&A.
That's not to say the other person was terrible, but the candidate I recommended alluded to possibly being a disabled person themself. And the other person was using sort of abled people language and didn't know what the term "plain language" even meant.
I'm glad they are hiring someone but they always go for more experience with the law/lawyer language than for people who actually have lived experience -and- experience relevant to that position.

When will disabled people be allowed to be at the table?
Read 22 tweets

Did Thread Reader help you today?

Support us! We are indie developers!

This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us on Twitter!

Like this author's thread?

Get emails when @AutSciPerson has new unrolls!

Check out other threads from @AutSciPerson!

Read all threads by @AutSciPerson

:(