Share this page!

Nicole Lee Schroeder, PhD Profile picture
Twitter logo
Jan 25 • 4 tweets • 3 min read
Glad that some Drs are recognizing that #longCOVID is tied to #MCAS. But most #MCAS patients lack proper care. It's not just antihistamines and stomach acid meds in treatment. It's not a quick fix issue. 1/4

fox2now.com/news/local-doc…
I developed #MCAS progressively from teen years on. And now I have a food list of about 20 foods, I'm allergic to sunlight, I have developed asthma, I cannot handle exercise, and I can't deal with temperature changes. #MCAS also exacerbated other existing medical issues. 2/4
It's disingenuous to claim that this is a breakthrough. There's still no targeted treatment for #MCAS. I hate when new patients read content like this and think that there's a cure. I'm on four antihistamines, two meds for stomach acid, and monthly injections for asthma. 3/4
And I'm not remotely healthy. Not able to go outside or exercise. I have gone into anaphylaxis multiple times and have to plan my life around how close I am to an ER. And no, not everyone is this severe, but very few patients get meaningful treatment. 4/4

• • •

Missing some Tweet in this thread? You can try to force a refresh
　

Keep Current with Nicole Lee Schroeder, PhD

Nicole Lee Schroeder, PhD Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @Nicole_Lee_Sch

Nicole Lee Schroeder, PhD Profile picture
Jan 26
Healthy people do not understand the sheer panic when you try to refill a script of lifesaving medication and your refill doesn't go through. Because that that moment you know you are in for some shit. And that no this is not going to be a quick fix. 1/11
It means you're going to have to take hours out of your day to sit on or by the phone to try to coordinate insurance, copay assistance, and your doctor's office. And God forbid you miss a call then everyone pins it on you being inaccessible. 2/11
And each of those offices will inevitably drop your call. Or they'll say "I'm transferring you now" and you'll get a dial tone and have to redial and start the whole process, all over again, with a new agent. 3/11
Read 11 tweets
Nicole Lee Schroeder, PhD Profile picture
Jan 25
Hi everyone - as a fellow at Kean University I need to give a fellows talk on my research. For COVID safety (and because I want you all to be able to be there) I've asked that the event be hosted virtually. So I'm very happy to invite you to my research talk! (1/4)
On Monday, February 7th from 3:30 - 4:30 PM EST I will be talking about my dissertation work and my manuscript research. I'll be talking about #DisHist, #HistMed, and #VastEarlyAmerica in early nationalist Philadelphia. (2/4)
If you want to learn about things about disability in early America, or welfare infrastructure in early American cities, or medico-welfare reform across the early 1800s, please save this Zoom meeting link (3/4): kean-edu.zoom.us/j/99822294403
Read 4 tweets
Nicole Lee Schroeder, PhD Profile picture
Jan 24
Opening all my classes with COVID-19 counts, trends, and important news. I'm not even a professor in the sciences. At the same time for many students I am the ONLY person offering basic knowledge and open discussions in their day-to-day life. 1/4
Last week I walked them through ordering at home tests off of USPS site - many did not know that was possible. We also talked about aerosol transmission, proper mask fits, and how to tell a knock off mask from a real one. 2/4
We talked about project n95 and hopefully this week I'll be able to direct them on how to secure proper masks (the US govt is supposed to be distributing 400 million this week). They don't seem to be getting this info anywhere else. 3/4
Read 4 tweets
Nicole Lee Schroeder, PhD Profile picture
Jan 22
This thread is for educators bc I am worried by how my students talk about their accommodations. Many are apologetic, many feel the need to convince me that they CAN do well and that they ARE smart. And all I can think is: what the fuck did you do to make them feel this way? 1/17
First of all I'm a disabled academic who has had accommodations since the sophomore year of undergrad. I had accommodations forms each term for the rest of undergrad and grad school - were they helpful? No. Accommodations treat disabilities like cookie cutter issues.2/17
Disability Services has a list of accommodations, and a set number of each they can give. It's a quota system of interventions like "time and a half" or "quiet test spaces" that's designed to save the school as much money as possible while pretending at access. 3/17
Read 17 tweets
Nicole Lee Schroeder, PhD Profile picture
Jan 20
Four months in to doing Xolair home injections. Told by my specialty pharmacy I don't have the paperwork on file to do injections at home from my dr. And they can't access the funds in my Xolair acct even tho it's active. Can anyone do their job? 1/3
Anyone? My Drs office? Xolair copay system? Blue Cross Blue Shield? Optum Pharmacy? Why am I constantly being threatened with losing care, and blamed when people fail to perform their tasks in these medico-insurance spaces? I'm so tired of begging for access to meds. 2/3
It's like for a few months things seem okay and I fall into this lull that maybe my care won't be disrupted. That maybe I won't spend hrs doing work to sort it all out. That maybe precedence means stability. But then days like this I watch that stability fall to pieces. 3/3
Read 4 tweets
Nicole Lee Schroeder, PhD Profile picture
Jan 8
Cw eugenics

If anything this pandemic has solidified my disabled identity and community. Hearing and reading eugenics-driven language every single day has made it impossible to belong or feel safe in non-disabled spaces. 1/5
Former friends and family members and colleagues have continuously rolled their eyes and scoffed and told me I'm overreacting. How can I be overreacting when I'm faced with statements like this every single day? 2/5
Let's pretend that someone looked at you and said "what do you really do for the world? Let's face it your life is expendable. Instead of protecting your life I'd rather go out to eat/go to a concert/travel, even if I might kill you after." 3/5
Read 5 tweets

Did Thread Reader help you today?

Support us! We are indie developers!

This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us on Twitter!

Like this author's thread?

Get emails when @Nicole_Lee_Sch has new unrolls!

Check out other threads from @Nicole_Lee_Sch!

Read all threads by @Nicole_Lee_Sch

:(