Hi everyone - as a fellow at Kean University I need to give a fellows talk on my research. For COVID safety (and because I want you all to be able to be there) I've asked that the event be hosted virtually. So I'm very happy to invite you to my research talk! (1/4)
On Monday, February 7th from 3:30 - 4:30 PM EST I will be talking about my dissertation work and my manuscript research. I'll be talking about #DisHist, #HistMed, and #VastEarlyAmerica in early nationalist Philadelphia. (2/4)
If you want to learn about things about disability in early America, or welfare infrastructure in early American cities, or medico-welfare reform across the early 1800s, please save this Zoom meeting link (3/4): kean-edu.zoom.us/j/99822294403
I will of course Tweet about this closer to the date, and on the date itself just ahead of the talk. Looking forward to sharing my research with you all! Please feel welcome to join, regardless of academic affiliation. (4/4) #AcademicChatter #AcademicTwitter #DisabilityTwitter

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More from @Nicole_Lee_Sch

Jan 26
Healthy people do not understand the sheer panic when you try to refill a script of lifesaving medication and your refill doesn't go through. Because that that moment you know you are in for some shit. And that no this is not going to be a quick fix. 1/11
It means you're going to have to take hours out of your day to sit on or by the phone to try to coordinate insurance, copay assistance, and your doctor's office. And God forbid you miss a call then everyone pins it on you being inaccessible. 2/11
And each of those offices will inevitably drop your call. Or they'll say "I'm transferring you now" and you'll get a dial tone and have to redial and start the whole process, all over again, with a new agent. 3/11
Read 11 tweets
Jan 25
Glad that some Drs are recognizing that #longCOVID is tied to #MCAS. But most #MCAS patients lack proper care. It's not just antihistamines and stomach acid meds in treatment. It's not a quick fix issue. 1/4

fox2now.com/news/local-doc…
I developed #MCAS progressively from teen years on. And now I have a food list of about 20 foods, I'm allergic to sunlight, I have developed asthma, I cannot handle exercise, and I can't deal with temperature changes. #MCAS also exacerbated other existing medical issues. 2/4
It's disingenuous to claim that this is a breakthrough. There's still no targeted treatment for #MCAS. I hate when new patients read content like this and think that there's a cure. I'm on four antihistamines, two meds for stomach acid, and monthly injections for asthma. 3/4
Read 4 tweets
Jan 24
Opening all my classes with COVID-19 counts, trends, and important news. I'm not even a professor in the sciences. At the same time for many students I am the ONLY person offering basic knowledge and open discussions in their day-to-day life. 1/4
Last week I walked them through ordering at home tests off of USPS site - many did not know that was possible. We also talked about aerosol transmission, proper mask fits, and how to tell a knock off mask from a real one. 2/4
We talked about project n95 and hopefully this week I'll be able to direct them on how to secure proper masks (the US govt is supposed to be distributing 400 million this week). They don't seem to be getting this info anywhere else. 3/4
Read 4 tweets
Jan 22
This thread is for educators bc I am worried by how my students talk about their accommodations. Many are apologetic, many feel the need to convince me that they CAN do well and that they ARE smart. And all I can think is: what the fuck did you do to make them feel this way? 1/17
First of all I'm a disabled academic who has had accommodations since the sophomore year of undergrad. I had accommodations forms each term for the rest of undergrad and grad school - were they helpful? No. Accommodations treat disabilities like cookie cutter issues.2/17
Disability Services has a list of accommodations, and a set number of each they can give. It's a quota system of interventions like "time and a half" or "quiet test spaces" that's designed to save the school as much money as possible while pretending at access. 3/17
Read 17 tweets
Jan 20
Four months in to doing Xolair home injections. Told by my specialty pharmacy I don't have the paperwork on file to do injections at home from my dr. And they can't access the funds in my Xolair acct even tho it's active. Can anyone do their job? 1/3
Anyone? My Drs office? Xolair copay system? Blue Cross Blue Shield? Optum Pharmacy? Why am I constantly being threatened with losing care, and blamed when people fail to perform their tasks in these medico-insurance spaces? I'm so tired of begging for access to meds. 2/3
It's like for a few months things seem okay and I fall into this lull that maybe my care won't be disrupted. That maybe I won't spend hrs doing work to sort it all out. That maybe precedence means stability. But then days like this I watch that stability fall to pieces. 3/3
Read 4 tweets
Jan 8
Cw eugenics

If anything this pandemic has solidified my disabled identity and community. Hearing and reading eugenics-driven language every single day has made it impossible to belong or feel safe in non-disabled spaces. 1/5
Former friends and family members and colleagues have continuously rolled their eyes and scoffed and told me I'm overreacting. How can I be overreacting when I'm faced with statements like this every single day? 2/5
Let's pretend that someone looked at you and said "what do you really do for the world? Let's face it your life is expendable. Instead of protecting your life I'd rather go out to eat/go to a concert/travel, even if I might kill you after." 3/5
Read 5 tweets

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