If you're chronically ill, so much of your wellbeing comes down to individuals. A doctor who believes you, a boss who lets you wfh, a specialist who recognises your symptoms. Systematically you're doomed, and u just have to hope your path crosses with people who get it. #NEISvoid
The fucked thing is that people "getting it" is determined by things outside of your control. PoC are less likely to be believed by drs, and industries like hospitality etc, where your physical wellbeing is key to the completion of your work, are unlikely to be supportive.
This isn't really a thought-out tweet, I'm just reflecting on how much of me being okay is due to individuals who advocated for me, and how much of that advocacy is due to me being a white women with a Masters degree, in a "professional" job. And even still, it's been so hard.
Just feels like society is woefully ill-equipped to take care of anyone going through health distress that isn't acute. It sucks.
P.S. these ramblings are based on my experiences as a Pākehā in Aotearoa New Zealand- no doubt your experiences vary based on your local context.
P.S. these ramblings are based on my experiences as a Pākehā in Aotearoa New Zealand- no doubt your experiences vary based on your local context.
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