Cleavon MD 💉 Profile picture
Feb 5 9 tweets 3 min read
Brandon Vaughn from Pine Knot, Kentucky is critically ill from COVID and on ECMO because his lungs are permanently damaged from the virus. Without a double-lung transplant he won't survive. He is 17. #KidsLivingWithCovid
ECMO stands for extracorporeal membrane oxygenation. The ECMO machine pumps and oxygenates a patient's blood outside the body, allowing the heart and lungs to rest. It's often a bridge to lung transplant.
As patients awaiting lung transplantation become sicker, ECMO enables them to remain active and participating in physical therapy to prepare for the rigors of surgery
If Brandon is fortunate to receive a lung transplant, then he will have to take more than a dozen medications for the rest of his life to prevent organ rejection and infections. #KidsLivingWithCovid
Some of the medications may include:

Immunosuppressants such as prednisone, CellCept (mycophenolate mofetil), and Prograf (tacrolimus).
Anti-infection medications such as Mepron (atovaquone), Valcyte (valganciclovir), and Diflucan (fluconazole).
Mepron is an antibiotic that prevents and treats Pneumocystis jiroveci pneumonia, a serious lung infection.

Valcyte is an antiviral that prevents and treats cytomegalovirus (CMV) infection. It may be replaced by acyclovir, another antiviral.
Diflucan is an antifungal that prevents and treats fungal infections.
Juggling Medications, Lab Tests, and Side Effects After Transplant pulmonaryfibrosisnews.com/2021/12/14/jug…

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More from @Cleavon_MD

Feb 6
🇧🇷 A year and half ago, before vaccines were available, 34 y.o. Dijane Silva from Taquarana Brazil developed a life-threatening condition following a COVID-19 infection that caused her to stop breathing when she fell asleep called Ondine Syndrome #TheySurvivedCovid 1/9 Image
The name is derived from a mythical tale. The nymph Ondine was an immortal water spirit who became human after falling in love. In one of the versions of the tale, she caught her husband having an affair then cursed him to remain awake in order to control his own breathing. 2/9 Image
Ondine Syndrome causes hypoxemia because the brain is unable to detect changes in carbon dioxide (CO2) levels in the body during sleep, which determine the breathing rate. Normally, high levels of CO2 increase breathing, whereas low levels of CO2 decrease breathing. 3/9
Read 10 tweets
Feb 6
🇮🇹 Biologist Franco Trinca, one of the coordinators of the “United for free choice” movement made up of various anti-vax associations died from Covid at a hospital in Città di Castello #Italy on Feb 4, 2022. #SoulsLostToCovid corriere.it/cronache/22_fe… Image
“Trinca has been a supporter of the use of vitamin C pills to treat COVID patients, according to Mediafax. On a TV show broadcast in September 2021, he stated that he did not get vaccinated because he "felt " that he had a good immune system”
“Franco Trinca had also been the protagonist of heated TV clashes with Selvaggia Lucarelli, expressing himself in favor of alternative therapies against covid, such as the use of hydroxychloroquine, vitamin C and flavonoids.”
Read 4 tweets
Feb 6
7 y.o. Finn from Jarrell #Texas was rushed to the emergency room severely ill from multisystem inflammatory syndrome due to COVID. "This was my healthy child, and all of a sudden he's crashing and it just was unreal" #KidsLivingWithCovid kvue.com/article/news/h… Image
Finn was diagnosed with MIS-C at age 7, a month after recovering from COVID-19. Image
"After your body has completely cleared the virus, your immune system has kind of gone hyper-inflamed and is overworking and now is gone too high and is fighting something that's no longer there in the body," Dr. Keren Hasbani, a pediatric cardiologist at Dell Children's, said.
Read 5 tweets
Feb 6
4 y.o. DJ Brunson developed high fevers, lethargy and became severely ill from multisystem inflammatory syndrome due to COVID. "It was one of the most gut-wrenching, heart-wrenching experiences that I've ever had." said mom #KidsLivingWithCovid abc.net.au/news/2022-01-2… Image
“You’re talking about a four-year-old kid who wants to run around and play. That’s all he wanted to do, was just get up and get out of bed.” Image
DJ is fully recovered from his MIS-C and back to the spunky little boy his parents are used to. Image
Read 4 tweets
Feb 6
🏴󠁧󠁢󠁥󠁮󠁧󠁿 11 y.o. Shenan Gnanaraj from Chesterfield #England struggled to breathe & began hallucinating due to multisystem inflammatory syndrome. He had a 50% chance of living. A heart valve & artery supplying blood to his heart is damaged. #KidsLivingWithCovid derbyshiretimes.co.uk/news/people/ch… ImageImage
Ganga said: “The people at A&E couldn’t understand why he had been sent home twice. They realised he was really poorly, but they thought he had lymphangitis because of the lump on his neck.
"Another paediatrician assessed Shenan and realised that Ganga was right, but by this stage, Shenan’s condition had deteriorated drastically, and doctors were unsure whether he would survive."
Read 5 tweets
Feb 5
16 y.o. Camden Tucker from Springdale Arkansas contracted COVID before vaccines were available in her age group. Her father is a physician. She was given a 1% chance of survival after going into cardiac arrest. #KidsLivingWithCovid thv11.com/article/news/h…
"There was a 99% chance she was not going to survive, which as a parent, that's hard to listen to," he said.

Donald said it all started on Sept. 19 when Camden went into cardiac arrest, quit breathing, and had multiple seizures during a family fishing trip.
"We pulled her out of the recliner and onto the floor, started doing CPR on her. I sent my wife, we didn't have any cell service, so I sent my wife to find a landline and call 911,"
Read 5 tweets

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