Dr K Fearnley Profile picture
Feb 8 7 tweets 2 min read
@NIHRresearch? What is going on?? What is actually going on?? 1.3 million people in this country have Long Covid. Meditation, yoga, home-based exercises, mental health support will not help myopericarditis, sensorineural hearing loss, visual loss, clots, microclots and the rest
We do not need to WASTE over 1.1 million to answer this question.

Talk to any long hauler. We are not in recovery. There is an ongoing pathological process which needs urgently addressing.
We have waited patiently. Some people have now been unwell for two years and counting. People are deteriorating, they are not getting better.
It’s not only money that is being wasted, but time. People are desperately unwell with resting heart rates in excess of 110bpm one year on. Still hallucinating. Still breathless. Unable to get out of bed, or leave the house
Employers cannot wait for us to recover. People are losing their jobs, homes, families…
Where are the studies trialling antiviral medication in Long Haulers? Trialling of monoclonal antibodies? Trialling of BC007? Funding of studies which try to unpick the pathophysiology? Which look for viral persistence? Autoimmunity?
Please stop funding research which we know will not help us.

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More from @fearnley_k

Feb 9
Key messages.

Long covid is not psychosomatic.
Serious pathology is evident when the correct investigations done.

Many long haulers have been unwell now for nearly 2 years; we are unlikely to get better on our own.
All long haulers whose blood has been tested has been positive for microclots

1 in 10 people will experience Long Covid. Prevention is key.

Long Covid patients present differently, with different, but often overlapping, symptoms.
Things we have to ask ourselves:

What is driving microclot formation? A damaged endothelium will do this.

We know the virus can directly damage the endothelium
Read 10 tweets
Feb 8
RPE MUST be worn by NHS workers. Employers who fail to provide RPE are leaving NHS workers exposed to a known deadly airborne pathogen and in my eyes, are liable. @UKHSA @BOHSworld @uhcw_inf_con
I am a doctor who contracted covid whilst caring for covid positive patients. I was only provide with droplet PPE, leaving me exposed to infection. Staff who raised their concerns about PPE were admonished.
14 months later I am still unwell with Long Covid. My diagnoses include neurological sleep aponea, encephalitis, pericarditis, bilateral sensorineural hearing loss, tinnitus, dysautomnia and POTs
Read 7 tweets
Feb 8
There is NOTHING psychosomatic about the cause of #MyalgicEncephalomyelitis. It is nothing more than a myth perpetuated by those morally bankrupt. A myth which needs putting to bed. #MedTwitter #MedEd
#me #CFS is not taught in UK medical schools. This needs to change. ME/CFS in its severest forms can be life-threatening and in all cases, prevents one from leading a normal life.
The body is oxygen starved and consequently there is an issue with aerobic respiration. Abnormally high levels of latic acid have been found on brain imaging
Read 6 tweets
Jan 30
14 mths Long Covid RHR 110 bpm ^ to 147 bpm *just* on standing. Still experiencing hypnagogic auditory hallucinations. There is an ongoing pathological process; it’s not rehabilitation patients need. #TreatLongCovid #pwLC #pwME #MedTwitter #MedEd #TeamGP
For anyone who thinks I’m exaggerating. Postural Orthostatic Tachycardia Syndrome (POTS) everybody:
Medics, if you haven’t heard of POTS pls educate yourselves. Many patients with Long Covid have a high resting HR (for the majority this is due to dysautomnia; a faulty autonomic nervous system, *not* anxiety). Some will also have POTs (i.e. ^ tachycardia on standing), as shown
Read 18 tweets
Jan 28
Attention all! Esp NHS clinicians.
The following study must be pulled with immediate effect.
fundingawards.nihr.ac.uk/award/NIHR1355…
The study seeks to answer whether use of routine use of FFP3 masks or fluid-resistant surgical masks (FRSM) by front-line healthcare workers affords better protection from illness due to respiratory viruses
We *know* SARS CoV-2 is unequivocally airborne.

Airborne transmission of SARS-CoV-2 has been officially recognised by WHO, ECDC and CDC.
Read 10 tweets
Jan 26
Great question; thanks for asking. The main reason people with medically unexplained physical symptoms (MUPS) are resistant to psychological therapy is because, they have been victims of relentless medical gaslighting./1 🧵
In absence of obvious biomarker & return of normal test results, patients with MUPS are often incorrectly ascribed a psychological diagnosis. Psychologisation of MUPS has become commonplace, and it is not acceptable. It is important to consider:/2
(A) The absence of obvious biomarker does not mean one does not exist. Simply, it has not yet been identified./3
Read 14 tweets

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